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CMT-Support · CMT- Friends and Support

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Messages 67259 - 67291 of 69801   Oldest  |  < Older  |  Newer >  |  Newest
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67259 CMT-Support@yahoogrou... Send Email Dec 1, 2009
11:10 am
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
67260 CMT-Support@yahoogrou... Send Email Dec 1, 2009
11:10 am
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
67261 fittness
brianwahr Offline Send Email
Dec 3, 2009
8:42 pm
I am thinking about starting a CMT support group in Orlando,Fl. so this will be 2 groups that are in orlando.Im going to do it once every 2 months .What...
67262 fittness
brianwahr Offline Send Email
Dec 3, 2009
9:58 pm
I take naps and listen to my body when im tired and I relax.I think sometmes we push our selfs too much.I have cmt 1 x. I get tired after I work out and then I...
67263 sal2491 Offline Send Email Dec 3, 2009
10:22 pm
Hi Brian, I would think that it is a good thing. If you do it, I wish you well. Sal...
67264 moviefan65@...
moviefan65 Offline Send Email
Dec 4, 2009
4:25 am
put cloth napkins between your legs!...
67265 Ted
carp_apprent... Offline Send Email
Dec 4, 2009
5:55 am
my wife and I both use machines I use a c-pap and she uses a b-pap. c-pap forces air continuously into your lungs. She couldn't tolerate the force it used....
67266 fittness
brianwahr Offline Send Email
Dec 5, 2009
1:59 am
The other support group that was in Oviedo,FL. moved to a location in Orlando.So since it is almost a hour drive from Oviedo.I am thinking about starting a...
67267 Geri Melton
gerimelton Offline Send Email
Dec 7, 2009
9:58 pm
Been mighty quiet out there. Just freezing to death here along with the usual aches and pains. Hope all are doing well!! Geri [Non-text portions of this...
67268 fittness
brianwahr Offline Send Email
Dec 8, 2009
3:57 pm
Man I been having great work outs and it has been helping me out alot.I work out 2 times a week.And resting too and this has been helping me out.I do upper...
67269 Geri Melton
gerimelton Offline Send Email
Dec 8, 2009
4:11 pm
, Brian, Some of us have excruciating nerve pain and/or muscle cramps and require medication to function on a day to day basis. Geri ... From: fittness Date:...
67270 Angela
tlcforcmt Offline Send Email
Dec 8, 2009
4:26 pm
Hey Brian,   In general, it's considered wise for people who are about to start a new exercise routine to clear it with their doctor, even those who don't...
67271 Benjy Feen
benjyfeen Offline Send Email
Dec 8, 2009
4:38 pm
And there are those in between; I have been both helped by and harmed by my use of medications, workouts, and mental attitudes in coping with CMT. For ...
67272 fittness
brianwahr Offline Send Email
Dec 9, 2009
2:49 am
Hello, I can not go to my own support group in Orlando,Fl. or start a group.They are saying I upset people and am a distraction to the group.which is not the...
67273 demotte@...
ferret60000 Offline Send Email
Dec 9, 2009
4:27 am
Hi Brian, I can understand it if you are indeed doing whats it stated here, but you should not be singled out for having a difference in opinion, not knowing...
67274 Benjy Feen
benjyfeen Offline Send Email
Dec 9, 2009
4:57 am
... Hi Brian, It sounds like you're really frustrated with that group, and that you're feeling unfairly judged and labeled. I hear you, man, and I'm...
67275 Becky
slopokecmt Offline Send Email
Dec 9, 2009
4:45 pm
http://www.springerlink.com/content/fh568174h641v0l6/ Department of Neurology, University Hospital Münster, Albert-Schweitzer-Str. 33, 48129 Münster, Germany...
67276 Becky
slopokecmt Offline Send Email
Dec 9, 2009
4:46 pm
http://www3.interscience.wiley.com/journal/123195161/abstract?CRETRY=1&SRETRY=0 Laryngology Laryngeal neuropathy of Charcot-Marie-Tooth disease: Further...
67277 Becky
slopokecmt Offline Send Email
Dec 9, 2009
4:49 pm
Hi Brian, No one can stop you from starting your own support group. If you want to start one, do it and advertise about it. It may take some time, but in time...
67278 Benjy Feen
benjyfeen Offline Send Email
Dec 9, 2009
5:32 pm
Thank you, Becky! I seem to remember someone on this list has had thyroplasty--anyone have any comments on that? ... -- benjy@... [Non-text portions of...
67280 phantomsec4 Offline Send Email Dec 10, 2009
4:34 pm
Hey Neil - Don't be too shocked. Wierd things happen like this frequently. Variant is a word you learn to despise! In our families experience my sons genetic...
67281 CMT-Support@yahoogrou... Send Email Dec 11, 2009
11:11 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the CMT-Support group. File : /DNA...
67283 tvillingerne2004
tvillingerne... Offline Send Email
Dec 12, 2009
11:27 pm
Hi everybody I was wondering if any of you have CMT1b, or an new undergroup to this. What are your symptomes. I've got very big problems with my CMT1b, my CMT...
67285 Mrs.Denise Falsetto
kikisgrams Offline Send Email
Dec 14, 2009
2:36 am
Hi, If I remember my blood test results from Athena Diagnostics was 1 page saying positive CMT1A duplicate pmp22?? something like that but yeah I think I had...
67286 fittness
brianwahr Offline Send Email
Dec 14, 2009
2:53 am
I am not allowed to start a support group or go to te one in orlando.I need advice here . Thanks, Brian...
67287 fittness
brianwahr Offline Send Email
Dec 14, 2009
2:54 am
Lets all get together and tell our elected officals about CMT.Lets do a march. Brian...
67288 Jennifer Sanders
jenracesanders Offline Send Email
Dec 14, 2009
4:59 am
Brian: No one can stop you from starting one.  You can connect with other people with CMT and ask them to meet with you.  You can invite them to your home or...
67289 fittness
brianwahr Offline Send Email
Dec 14, 2009
11:53 am
Hello, You can start a support group in ur area.It is real easy to do.First contact the cmt association and they will get you in touch with the right person....
67290 Chris
robinc1961 Offline Send Email
Dec 14, 2009
5:19 pm
Hi everyone, I know I live in Kansas but if we want to keep the services that provide for someone to come in to our home and provide the care that we need we...
67291 Angela
tlcforcmt Offline Send Email
Dec 14, 2009
5:31 pm
Hi Neil,   I'm sorry you're having to go through this and that your DNA test produced more questions than answers.   In response to your question about...
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