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For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
67260
CMT-Support@yahoogrou...
Dec 1, 2009 11:10 am
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
I am thinking about starting a CMT support group in Orlando,Fl. so this will be 2 groups that are in orlando.Im going to do it once every 2 months .What...
I take naps and listen to my body when im tired and I relax.I think sometmes we push our selfs too much.I have cmt 1 x. I get tired after I work out and then I...
my wife and I both use machines I use a c-pap and she uses a b-pap. c-pap forces air continuously into your lungs. She couldn't tolerate the force it used....
The other support group that was in Oviedo,FL. moved to a location in Orlando.So since it is almost a hour drive from Oviedo.I am thinking about starting a...
Been mighty quiet out there. Just freezing to death here along with the
usual aches and pains. Hope all are doing well!! Geri [Non-text portions of this...
Man I been having great work outs and it has been helping me out alot.I work out 2 times a week.And resting too and this has been helping me out.I do upper...
, Brian, Some of us have excruciating nerve pain and/or muscle cramps and require
medication to function on a day to day basis. Geri ... From: fittness Date:...
Hey Brian,  In general, it's considered wise for people who are about to start a new exercise routine to clear it with their doctor, even those who don't...
And there are those in between; I have been both helped by and harmed by my use of medications, workouts, and mental attitudes in coping with CMT. For ...
Hello, I can not go to my own support group in Orlando,Fl. or start a group.They are saying I upset people and am a distraction to the group.which is not the...
Hi Brian, I can understand it if you are indeed doing whats it stated here, but you should not be singled out for having a difference in opinion, not knowing...
... Hi Brian, It sounds like you're really frustrated with that group, and that you're feeling unfairly judged and labeled. I hear you, man, and I'm...
http://www.springerlink.com/content/fh568174h641v0l6/ Department of Neurology, University Hospital Münster, Albert-Schweitzer-Str. 33, 48129 Münster, Germany...
Hi Brian, No one can stop you from starting your own support group. If you want to start one, do it and advertise about it. It may take some time, but in time...
Thank you, Becky! I seem to remember someone on this list has had thyroplasty--anyone have any comments on that? ... -- benjy@... [Non-text portions of...
Hey Neil - Don't be too shocked. Wierd things happen like this frequently. Variant is a word you learn to despise! In our families experience my sons genetic...
67281
CMT-Support@yahoogrou...
Dec 11, 2009 11:11 pm
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the CMT-Support group. File : /DNA...
Hi everybody I was wondering if any of you have CMT1b, or an new undergroup to this. What are your symptomes. I've got very big problems with my CMT1b, my CMT...
Hi, If I remember my blood test results from Athena Diagnostics was 1 page saying positive CMT1A duplicate pmp22?? something like that but yeah I think I had...
Brian: No one can stop you from starting one. You can connect with other people with CMT and ask them to meet with you. You can invite them to your home or...
Hello, You can start a support group in ur area.It is real easy to do.First contact the cmt association and they will get you in touch with the right person....
Hi everyone, I know I live in Kansas but if we want to keep the services that provide for someone to come in to our home and provide the care that we need we...
Hi Neil, Â I'm sorry you're having to go through this and that your DNA test produced more questions than answers. Â In response to your question about...