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Messages 66314 - 66344 of 67225   Oldest  |  < Older  |  Newer >  |  Newest
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66314
Hi Michael,   I'm so sorry to hear you having pain tonight.    What type of pain are you feeling?  Burning?  Shooting?  Aching?  Irritation?   Is this...
Angela
tlcforcmt
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Jun 1, 2009
8:02 am
66315
ALL THE PAIN I TAKE VICDIN 750 ... From: Angela <agraham2k@...> Subject: Re: [CMT-Support] i am in pain tonight To: CMT-Support@yahoogroups.com Date:...
Cassie Mahoney
cassiemahone...
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Jun 1, 2009
9:19 am
66316
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Send Email
Jun 1, 2009
10:01 am
66317
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Send Email
Jun 1, 2009
10:01 am
66318
Hi Michael,   I have all of these kinds of pain too and I also take Vicadin at times.   One of the things I've learned is that there are many things causing...
Angela
tlcforcmt
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Jun 1, 2009
3:56 pm
66319
I'm so sorry that you're in pain....my feet hurt too from time to time,but you cannot give in, you cannot give up. We may never meet,but you have tons of...
Lindafumi@...
lindafumi
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Jun 2, 2009
12:42 am
66320
Sorry to hear about your pain. I am also in more pain than usual today but all I can do is try to take it easier. I've learned that I have to "listen" to my...
Geri Melton
gerimelton
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Jun 2, 2009
1:34 pm
66321
Hi, Geri, Is            Re: [CMT-Support] and [CMT-Support] the same group? lj [Non-text portions of this message have been removed]...
Lana Jarvis
fyfer1949
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Jun 3, 2009
1:06 am
66322
Deep Irritation.  Core Nervousness.  It's actually restless leg syndrome.  drives me nuts. lj CMT2 ... From: Angela <agraham2k@...> Subject: Re:...
Lana Jarvis
fyfer1949
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Jun 3, 2009
1:13 am
66323
Hi Lana,   I believe my issue is CMT related.  The neurologist hasn't called it RLS.   As I understand it, the Restless Leg Syndrome is associated with a...
Angela
tlcforcmt
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Jun 3, 2009
2:40 am
66324
Hi Lana, didn't quite understand your message. Can you try again? Thanks! Geri ... From: Lana Jarvis Date: 6/2/2009 8:06:10 PM To:...
Geri Melton
gerimelton
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Jun 3, 2009
2:02 pm
66325
Lana,   Are you asking about the "Subject" line in the emails and how some of them say "CMT-Support" and some of them have an "Re:" before the words...
Angela
tlcforcmt
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Jun 3, 2009
4:23 pm
66326
http://www.ninds.nih.gov/disorders/restless_legs/detail_restless_legs.htm The general public has it as well. Sal...
sal2491
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Jun 3, 2009
7:52 pm
66327
Hi, Angela, I don't know, but it seems that everyone with CMT had RLS at one point.  But, I have that uncontrollable urge to 'move' in my trunk sometimes. ...
Lana Jarvis
fyfer1949
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Jun 3, 2009
9:22 pm
66328
Hi, Geri,  Ernie answered me as well.  He said that the two CMT support groups (below) are the same.   re: [CMT-Support] [CMT-Support]   Thank you for...
Lana Jarvis
fyfer1949
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Jun 4, 2009
12:11 am
66329
THANK YOU, All three of you! Much appreciated. lj ... From: Angela <agraham2k@...> Subject: Re: [CMT-Support] NOT CMT To: CMT-Support@yahoogroups.com ...
Lana Jarvis
fyfer1949
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Jun 4, 2009
12:12 am
66330
i found out i have cmt 2 years ago. i am trying to learn more about it....
farmer.marie
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Jun 4, 2009
1:19 am
66332
Hi, You can click on "files" in the upper left hand corner of this forum. There is much information there. Sal...
sal2491
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Jun 4, 2009
2:45 pm
66333
my boyfriend has cmt and was on ssi, but they took him off and he has been trying to get on, me and him don't know why they took him off but he is trying his...
hotbunz222
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Jun 4, 2009
5:08 pm
66334
He must prove that his ability to both stand/walk and sit combined do not exceed 8 hrs per day. For example, if the specialist says he can sit for a total of...
Geri Melton
gerimelton
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Jun 4, 2009
6:02 pm
66335
Get an attorney that specializes is Social Security claims and file an appeal right away....
lanman4choice
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Jun 4, 2009
6:10 pm
66336
Hey Everyone, I am starting a Los Angeles support group with the CMTA for those affected by CMT (as well as their friends and family). The group will be...
ryanmconlon
Offline Send Email
Jun 4, 2009
6:14 pm
66337
The CMTA has a list of all the support groups. Good luck with your group. http://www.charcot-marie-tooth.org/resources.php?&resource=support Thank you, Sal...
sal2491
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Jun 4, 2009
6:30 pm
66338
he is 25 years of age and he graduated but he did while he was in special ed classes, if he was in basic, i bet he would have dropped out and he has never...
sandy lyle
hotbunz222
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Jun 5, 2009
11:53 am
66339
You would be very surprised at the effect age has on disability. Each age group has different "listing levels" which are used to determine disability. SSA's...
Geri Melton
gerimelton
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Jun 5, 2009
12:45 pm
66340
Long story short -- 3 months after triple arthodesis and several other procedures and a month post fixed cast with a removable boot,. one of the joints isn't...
lanman4choice
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Jun 5, 2009
1:59 pm
66341
I was 27 when I was approved for SSD and my CMT was not affecting me that bad at the time.  I was able to walk very well at the time in fact and had no pain...
Jennifer Sanders
jenracesanders
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Jun 5, 2009
2:45 pm
66342
Hi Casey,   You may want to ask you doctor for physical therapy, including Electrical Stimulation of the bone.  Here's some info on this:   ...
Angela
tlcforcmt
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Jun 5, 2009
3:04 pm
66343
Thanks Angela. He said all along no PT until things were completely healed. I know he will try elec stimulation and a cast if things don't look better in a...
lanman4choice
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Jun 5, 2009
3:55 pm
66344
Well I hope everybody had a nice weekend. Would you believe we had snow yesterday morning? Not at all what I wanted to see! Anyways, I had an art show Friday...
fearlessmunchkin
FearlessMunc...
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Jun 7, 2009
11:49 pm
Messages 66314 - 66344 of 67225   Oldest  |  < Older  |  Newer >  |  Newest
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