This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
May 1, 2009 10:13 am
66196
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
May 1, 2009 10:13 am
66197
My 14 year old son was diagnosed with CMT this year. His great grandfather and his great aunt both have the disease. Of course I was never told about any of...
Hi Lisa, Everyone with CMT is different, even within the same family. Read everything you can find on CMT, ask questions here, and get multiple medical...
Hi Lisa, Do you know the type of CMT? You mention that your son's great grandfather and his great aunt both have CMT. It also more than likely came on down...
cmt is different in everyone... my father whom I got it from was very very mild.....I however am wheelchair bound and have had two surgeries on each foot. I?...
Leanne here.... I have a really nice aqua chair I can no longer use.... It is virtually brand new... made of stainless steel, mesh seat, I can send a pic of it...
Lisa: I have a 17 year old daughter with CMT 1a and I, my mother and grandmother all have it too. My grandmother was in her 70's, mom in her 50's, me in my...
Hi Lisa, Initial information about CMT can be very scary. I was diagnosed at 13 and they recommended surgery for high arches but I am 36 now and haven't had...
Hi Lisa! My son is 15 now and was diagnosed at age 9. CMT is a very personal disease in that it affects every person in a different way and at different rates...
It really surprises me. Wesley has been through physical therapy a couple of times when he was younger. Nobody ever mentioned anything like this to me. I...
I live in the Dallas/Fort Worth area. I was wondering how I can find local support groups for people dealing with CMT. Thank you for your help, Lisa...
http://www.charcot-marie-tooth.org/index.php lists local support groups but they're pretty thin or non-existant in many places. They will helop you start one...
Lisa, I would try to go through the MDA. There is no financial obligations and since CMT is in the family of MD, they know what they are talking about. It...
There are no support groups in TX. However, as suggested, you could start one. Check out http://www.charcot-marie-tooth.org site to get information as to how...
Here is a picture and the web site of the aqua chair I am selling if anyone is interested http://www.aquacreek.com/chairstainlesssteelaquatic.html [Non-text...
Hi, My father and I both seemed to be adult onset, although there were signs we have had it all our lives: clumsy in childhood, bowed legs, hammer toes,...
Hi, The first meeting of the Vermont/New Hampshire CMT support group met at Dartmouth/Hitchcock Medical Center in Lebanon, NH. One may have read about it in...
I wondered about that, but I quoted Dr. Cohen correctly. lj ... From: sal2491 <gbsb2002@...> Subject: [CMT-Support] Re: VT/NH support group, Finally!! ...
Thanks Lana, But, I cannot believe that they can say that (5 years) with certainty. "Hoping" for a cure/treatment for CMT1A would seem more like it. I don't...
IMO No one can say with certainty when a cure will be found for any CMT type. They may hope and have reason to think from research that a cure/treatment is...
Hey guys! Not a lot of venting going on lately, so I hope that means
everyone is doing as well as can be expected. I am having difficulty with
my left hand....
Congrates on your son! My fingers all are wierd anymore... my thumbs are uselss!? my forefingers are bent all the time.? i have no strength in my hands at...
... Perhaps you have a "trigger" finger - very common in the general population. I had surgery to release several of mine. The rest I am living with. I had...
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