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CMT-Support@yahoogrou...
Mar 1, 2009 1:38 pm
65888
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Mar 1, 2009 1:38 pm
65889
Hello, I was searching through the vitamin aisle at the grocery store. Looking for a good multiple vitamin for myself and my daughters, All of the selections...
There are way too many things in multivitamins nowadays. I guess that's what the public wants. It's very hard to find Vitamin B6 in the dose we should take....
You should not take more than the RDA limit which is 2mg. A mega dose is defined as 10 times the RDA limit. That would be 20mg. Obviously, some people take...
Hi I seem to take asprin extra stength alot and it does alliviate the pain for me anyway I find my hands to are hard to straighten out anymore It has been so...
My daughter's fingers are curled a bit due to lack of muscle. I believe that the lack of muscle strength can allow the tendons to shorten in the fingers much...
Hi, Just curious to see if it is just me or a common thing. I used to be able to take penecillion, but out of the blue had an allergic
reaation to it. Last...
welcome to thegroup... My hands and feet are always cold too...i have little to no use of my thumbs and my first fingers are bending are fair amount right now....
Leanne here... I got my power chair...It is really wonderful, however it is going to take me a while to adjust my mind to the whole thing. I have run into lots...
I see a lot of of us with CMT have lots of surgery and I wonder in the long term if it makes the end result worse. I have heard that from a lot of doctors...
Hi Leanna, I can identify with the reactions you get from your family about the CMT. I was diagnosed at the age of 5 yet my parents refused to get me any...
I have known I had CMT since I was 5 but only in the last few years has it effected the hand and fingers. I was told I had trigger finger because if I...
Andy, I know what you mean. I work long hours at a very stressful job and my
husband has been in denial for a long time. Some days when I get home I'm...
Andy, We all deny things .. guess that is part of us dealing wiht this horrible disease.. I still do it until I absolutely ahve to deal with something......
Hi Leanna and Andy. I cannot believe what I am reading.....Your families arein denial about your CMT!? I just felt how hurting this must be and how lonely this...
Valerie, The webpage named eHealthMe.com, compares any drugs, plus considerers any side effects that you may have. I entered your two drugs and your side...
Anne... My mom went with me to have surgeries.. my whole family has been tested for CMT/...it isn't that they are unaware of the CMT. It is that they don't...
Leanne. Is it at all any help if I just shaire with you that I could easily imagine how this might make you feel at times.Of course, it´s my projection...I...
aNNE, i APPRECIATE THE HUG.. We all need the once in a while! leanne **************Worried about job security? Check out the 5 safest jobs in a recession. ...
Hi Anne, Well I am 34 so I don't have a need or desire for their belief or support all I can do is learn from it and be the opposite to my daughter who I...
Leanna, Sorry to hear about your family thats horrible. At times you need to hold on to what little you may have in terms of support like close friends. I...
Geri, You are so right about having to push ourselves we need too otherwise we get worse. I can not stay home I would be agonizing all day, as much as it...
Hi, It may be you have urticaria. Some people get hives with penicillins, some get anaphylaxis... Maybe just a rash, a rash with redness, a rash with...
My last note to you should have read 'wheezing' (I misspelled it) and swelling of the throat. The swelling is the same as having hives on the outside skin. ...
Dear Andy, I think it was irresponsible for the doctor not to set your foot, whether or not you're in braces. I mean, all a brace does for a leg anyway is...
Hello all, Seems like forever since I've posted on this site, but I saw a couple comments on here that got me thinking. It's hard for me to fatham a family in...
Hey everyone, I haven't posted forever here, but keep up reading posts from all of you from time to time. I'm realizing now my son (8) is showing symptoms of...
Hi, Anne, my family is in denial, too, and both daughters have it! today, I got my special orthopedic sneakers to accomodate the braces. lj ... From: Anne...
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