Things to Be Aware of before Surgery Anyone having surgery should be aware of the risks associated with the surgical procedure and/or complications that...
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Apr 1, 2008 1:34 pm
63552
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Apr 1, 2008 1:34 pm
63553
Hey when I had my c-section back in January they gave me a spinal block that didn't work hardly at all. So after the baby was out they gave me something to...
Hello Summer, that is a difficult question to have a conclusive answer on. Merely making a personal assumption that with medications varying as with what works...
I believe with CMT1A especially, you can have what they call "onion bulbs" enlarged nerves and so it can be difficult to get the needle in the right place if...
Summer: I had an epidural with the birth of both of my kids. I had the very low body temperature and shook like crazy and they had to keep putting warm...
I am from Northern, IL the Joliet area to be specific. Have you heard about the Chicagoland area CMT group? We had Dr. Shy come out and talk to us at the...
Dear Leanne, I'm sorry to have to say that a pillow didn't help me. Nothing did. Then, I thought about taking Tylenol PM, 500mg before bedtime and that...
Dear Leanne, I'm sorry to have to say that a pillow didn't help me. Nothing did. Then, I thought about taking Tylenol PM, 500mg before bedtime and that...
Hi, Dawn and Friends, thank you for your input re: my GP. I'm going to take the suggestions to heart and print off some publications for him. What is the...
I'm in Galena so I'm on the opposite end. My family and I belong to the Rockford MDA and my daughter goes to the camp but they combined with the Chicagoland...
Lana are you in Pa? This is the Clinical Trial I signed up for too, but am still awaiting my initial appointment. I am in Pa. about 3 1/2 hour drive North of...
Hello Lana, This is the site URL...it is listed under: Charcot-Marie-Tooth Disorders: A Handbook for Primary Care Physicians If you click on the *Select* box...
From the ILRU at TIRR.. Use this updated link for the below: National Youth Leadership Network (NYLN) Teleconference/Webcast on Tuesday, April 15, 2008 ...
Hi, Merill, I have great news for you! My famous neurologist told me that CMT is NOT MD. I was very happy to hear that. CMT is a disease of the peripheral...
Hi, Tina. No, Im in VT, but I can make the trip to Philly in about 8 hours or less, I believe. I visit my mother in Hagerstown, MD, driving and can get there...
Hello, My name is Lisa Gordon and I am from East Central-Southern Illinois. I live in Palestine, IL and have for over 20 years. My sister and brother both...
Hello Merrill, Although I am not familiar with what California has available, yet wanting to mention that when someone moves to another state, and with looking...
One of the things I will say is that when it comes to support programs we have some great ones here through the regional center. For us we were getting DTT...
Oh yeah this is also because my son has Autism. ... From: spiritfree_dawn To: CMT-Support@yahoogroups.com Sent: Wednesday, April 02, 2008 2:23 AM Subject:...
No hopes crushing......... I am just throwing out some options. Thanks though, for being considerate. Where are you living? M Shelley and Merrill Staton Our...
I'm in the Los Angeles area, East San Fernando area to be closer to correct. ... From: statonville.com To: CMT-Support@yahoogroups.com Sent: Wednesday, April...
Reminder from: CMT-Support Yahoo! Group http://groups.yahoo.com/group/CMT-Support/cal MDA Living with CMT Chat Wednesday April 2, 2008 8:00 pm - 10:00 pm (This...
CMT-Support@yahoogrou...
Apr 2, 2008 5:55 pm
63577
Reminder from: CMT-Support Yahoo! Group http://groups.yahoo.com/group/CMT-Support/cal MDA Living with CMT Chat Wednesday April 2, 2008 8:00 pm - 10:00 pm (This...
CMT-Support@yahoogrou...
Apr 2, 2008 11:47 pm
63578
The Rehabilitation Research & Training Center in Neuromuscular Diseases, Univ. of California, Davis Here are a few of the five programs they have listed along...