Hello Julie, that is wonderful that it was not as involved as expected. May I ask, had the therapist considered a rental wheelchair through his healing...
Trish, wow! how wonderful to have a doctor be willing to research CMT, and the latest treatments. :-) hum, could be in part as Sal mentioned the blood pressure...
Hello Geri...after reading about the electrical stimulation wondering if this in itslef was not the cause and affects of the severe pain in your calf? merely a...
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Feb 1, 2008 12:24 pm
62690
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Feb 1, 2008 12:24 pm
62691
Hi Dawn! We actually left the hospital with a rental chair that has the elevated leg rests. Between the walker and the chair he was up and around for a bit...
Julie: I'm SO GLAD that his surgery went better than expected and less had to be done! That is excellent! Kara's foot surgery was the most painful one she's...
Karl: I felt like you did for a year and quit posting (until my daughter with CMT had surgery and then this group was a lifeline for me). It's o.k. to lurk,...
Hi Julie! :-) Great that Andrew has both a wheelchair and wakler. That tennis ball Jenn mentioned sounds like a good idea. Recalling when I had reconstructive...
You're welcome Sal. This *is* a good question, but likely difficult to find. If anyone can find the answer Becky can. Is all else fails I can always call my...
Geri, are you seeing an RPT (Rehabilitative Physical Therapist)? The electronic stim should never be set that high...why didn't they turn it down to a...
Melody, I don't exactly know what her official title was but she did tell me
that for the e-stim to be effective, it should be increased by a small
amount at...
Good idea Erin. I should have asked Dr. Shy when he was at one of our CMT Support Group meetings. But, I never thought of it at the time. Thanks again... Sal...
Oh, ok, I see....boy, your nerves ARE really sensitive. Still, I hope she's an RPT who has worked with neurological conditions before....there's nothing like...
Since back problems are often secondary to CMT, I wanted to share what an exceptional resource this site is for lower back/hip pain sufferers. I have recently...
Melody, how great this is, as you and so true with the back issues being secondary to CMT. I have read the stats on those with back issues, and quite amazing ...
Dear Kay, Tina, Dawn; Thanks for all the your kind replys and input! Will try the Lyrica and see if it helps. The BP medication prescribed is called Lisinopril...
Hello Karl :) Your one of the members I often think about. You're certainly not forgotten here. You may have noticed that some of us have adopted the use of...
Julie... such good news that Andrew's release could be done using only one toe; and he's up and about using a w/c and walker so soon; and going a good PT ......
Trish.... below is some info on Lisinopril. You'll also be happy to know that Lisinopril isn't on any of bthe blists of drugs toxic for CMTers. You can look up...
Thanks Erin! Andrew was cracking jokes with all the nurses and the anesthesiologist before surgery. They all got the biggest kick out of his positive attitude...
Leanne here... I decided to try and travel this weekend.. it has been a LONG time since I have been brave enough to do this and now I know why! I had to call...
This sounded like a good thing to pass on for anyone who has a cell phone, then thinking it can also be made on a note to have available posted on the fridge...
Leanne, how did you travel, by car? This is really interesting and also sad when we live in the US. I also require a high rise t-seat. I found this site that...
Sal, trying to pinpoint the date of availabilty of the first DNA test for CMT is tricky. So far I havne't been able to find the year. This is what has been...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
