For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Nov 1, 2007 10:55 am
61701
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
Thanks so much Dawn. :) As you know, I've been working with a young mother who has a son with Sethre Chotzen Syndrome. We had a crisis yesterday... she was,...
Erin.....expressing my sincerely empathy for the situation and knowing a few people who have been left in the lurch with cut backs on meds, and can create that...
Sharon....*thank you* so much for this article. As it has been my misfortune this past year of first the plantar fascia in the left foot, for which shots were...
There are two site here for assistance with those with mobility issues and more...adding the 2nd site Friends of Disabled Adults & Children FODAC Reuse of...
Leanne here.. I have a friend who was just diagnosed with Central Core, which is a form of MD... She is having difficulty carrying groceries into the house.. i...
Leanne...here is one of many sites that sell the *wheeled* grocery carts. I believe Erin had gotten a nice cart with wheels for this very use, of bringing in...
Leanne.... I had a 'take apart' scooter & Dawn's correct about needing good strength to lift the pieces parts into the trunk. However, there are 'lifters' that...
Clinical Trial....sleep apnea in children. http://clinicaltrials.gov/ct/show/NCT00458406?order=40 Versus CPAP in Children With OSA This study is not yet open...
I came across a site that had this Medical Education Resource Catalog that was issued in July 2007, and it has lots and lots of links to articles and files on...
I recieve a newesletter that reported unsafe medications, as listed below. Non of them are CMT specific; but are relevant for us to be aware of. Not wanting to...
Sharon....may I ask what site is the patients bill of rights located, at, as I would like to print this for my own personal use. Seems my eyes are misbehaving...
Erin, thank you and to those that are taking meds, please do check the *list* of medicines on this page. Many listed and neurontin is one of them. I do keep a...
Hi Leanne, Yes they do make a scooter that will break down and go into a trunk but as far as the cart I don't have any ideas to give that would help. I want...
Ampicillin- is it a safe drug for CMT affected peuple? 1. Ampicillin is a Penicilline group drug 2. Penicillamine is a metabolite of Penicilline. Dr John...
Dawn Here is the address again for the bill of rights: http://www.partnersagainstpain.com/index-pc.aspx?sid=29&aid=7688 I guess I should have posted the sites...
Hmmm, this sounds very interesting... A sensory-motor conflict. With this, it makes more sense why there are so many of us CMTers that have fibromyalgia. ...
This article is indeed very interesting to me and thought I would share it with you all. In the last 6 months or so I have been seeing an endocrinologist for...
For those that are interested in the Genetics as well as mutation types, phenotype or citation such as articles on any of the genetic information this site is...
Sharon the two links you added to your post would not open, thus finding this from the ASA. American Society of Anesthesiologists. Wondering how long it may...
Hello Sharon, with the 2 sites not willing to access and my curiosity peaked, please do read the reply on this I posted as it does have information reguarding ...
Hello Dan, please note the defination of the penicillamine you are asking about, below my comments. The ampicillin was not on the list in any category, listed...
I found this very interesting with finding the international Muscular Dystrophy Sites around the globe and wanted to share them. Perhaps one or maore may spark...
Good morning everyone. This is a notice to let everyone know that I am taking some classes to improve on portrait paintings for animals and people. I have been...
Dan... if you read one of the revised lists (2005), compiled by using the CMTA & CMTNA databases (see article in our file section in "CMT and Drugs"; you'll...
