For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Oct 1, 2007 10:49 am
61356
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Oct 1, 2007 10:49 am
61357
Hi all....I had my appt with genetic's clinic 6 mos after my DNA test that showed a defect on MFN2 gene. Doc said I can tell people I fall into the CMT2...
Hi Melody, Glad you have found out. Sounds like your doctor is wise in what he told you about your healthy son. Makes sense to me. You bet there can be...
Hi Melody, Wowie...huh! Good that the DNA came back and a definate category was located...especially knowing it would not serve your healthy son...any use and...
Perhaps some with children may find this most useful. dawn http://www.insurekidsnow.gov/ It's not the destination...It is the Journey! ... Luggage? GPS? Comic...
This article is from Dawn. Great find Dawn, thank you. :-) http://www.muscle.ca/content/index.php?id=998 Hereditary Motor and Sensory Neuropathy with...
Melody: I bet it's nice to finally have that definitive diagnosis. I haven't had my son tested for CMT because we were given the same advice. My son is 18 now...
hello everyone :) If you recall, I'd written to my contact at WSU in hopes of getting the *full* article. I heard back from her this AM. She's now retired from...
Nice article but,,IMHO ..it states that each generation is not as affected as the next is how I understtod it ..BUT in my families case each generation got...
I still don't see the results or findings of the study. Am I missing something? Karen ... From: Dawn To: Dawn ; cmt-support@yahoogroups.com Sent: Tuesday,...
Thank you Amy :) I was beginning to think I needed serious help... I also talk to myself & answer. I usually carry on an ongoing conversation with my dog too. ...
Jenn and Sandy.....please note the year that this article was written....in 1989. Taking this alone into consideration on how far advance, knowledge on CMT has...
Erin....thank you so much for the time in persuing this. All we can do is *hope* that he has the time and will reply, and certainly have my fingers crossed...
Jenn, my son touched on genetics in high school...he figured it out. We've talked a couple times including yesterday and he said 'yeah mom, I understand...see...
Hi Sandy, I didn't get that out of the article at all. Maybe just me. In my family each is affected differently and not worse as it goes along. Sal ... ...
Karen, this is the page from the site that one can inquire and/or do a search for the study in question. My apologies, for not having the time to address this...
Hi Jenn, This doesn't surprise me at all as far as the trouble you are having trying to get insurance for Kara. In Kara's case with everything she had to have...
I noticed a paragrah towards the middle and end that had stated for the Drs to relay to their patients that each generation the symtoms didnt seem as bad (not...
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