For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Jul 1, 2007 10:46 am
60066
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Jul 1, 2007 10:46 am
60067
Becky...*thank you* again ...for the time and patience on this! A good feeling knowing that at least...the doctors who had done the study and were involved...
the treatment of any cardiac issues are directed at the manifestation of such cardiac involvement as I am unaware of any specific therapy for the underlying...
Will - My post was not meant to offend the Cleveland Clinic...or attack their medical accumen in dealing with CMT.... I just found it so ridiculous that...
Jenn.... you really hit a chord of memory here. When I was Kara's age, I and a few friends went to a 'Party in the Park". There was dancing on the tennis...
Erin: wow, that's not a good memory I brought back for ya, sorry! LOL. Before I knew I had CMT I went to Disneyland with some friends (I lived in L.A. ...
I saw an ad on TV this morning that gave a site where suggested questions were given to ask on a physician visit, depending on our needs. I forgot the url...
Erin: Thanks! Looks like a good site. Kara has decided to become a vegetarian and she needs to read up on eating healthy. I am worried about her protein ...
ok .. for 1 thing i never said MDA camp wasn't safe... this was to have been my daughter's 5th year at camp with no major problems.. all i said was i don't...
This is about the most comprehensive site I've found. Use the drop down box of specific conditions to get to the suggested questions. I hope this helps us be...
Wow Jenn... that was a good one too! Why is it that (at that age) everything has to happen in front of a cute guy - or girl?? I wonder what good or NOT good...
Jamie, I'm really sorry about how you're feeling right now & wish you'd reconsider leaving the group. In following the posts about your daughter's horrible...
... No offense taken. This has been my dealings with the Clinic for more than 14 years. When we have so many of the premier CMT researchers that believe there ...
Good observation! It looks like studies need to be done with CMT individuals who have heart problems <<folks diagnosed with CMT who have mechanical problems...
Thanks Will! One of the things I admire most about this group is that everyone is welcome to voice their own opinions about how they view the world of CMT....
I have a question. I've had the CMT panel done around once every 2 years or so (Dr. Shy's research) and the outcome has always come back inconclusive. I have...
Was wondering if I could get some ideas about footwear. I love my rockports but after i slip in my orthotics and the foot plate of my braces my feet really get...
Good grief, I have so many I don't know which one to choose...LOL I guess the one when I went out on my first blind date...My best friend and her boyfriend...
I don't know what type I have either. In fact, my biopsy showed mixed spinocerebellar degenerations and didn't actually identify anything specifically. I...
It just stuns me that such poor judgment was used. sigh Amy In a message dated 6/28/2007 12:57:22 P.M. Central Daylight Time, dragonflylili@... writes: ...
Yeah please stay. I PMd you to say that I feel like I'm just getting to know you, and I hope you stay. I'm so sorry that happened to your daughter. I would...
Bob: maybe not much help here since I have worn women's Rockport Prowalkers for a LONG time. My biggest foot is about a 5M, but for the AFOs I have to wear a...
I'm not sure you can get orthotics and a brace footplate in a shoe. Your footplate should be molded enough to take the place of the orthotics. Having both in...
i've found that sketchers extra wide shoes work great. Summer Bob <barpak@...> wrote: Was wondering if I could get some ideas about footwear. I love my ...
one of my most embarrasing moments was probably the time in high school when i fell UP the stairs.....lol Summer AquaKath@... wrote: Good grief, I have so...
The one type of shoe that I use is the SAS they work great. you can take the inter sole out, and that allows for the brace to fit well in the show, as well as...
Oh..right, Bob...I forgot to say I take the insole out of the Rockports to make more room.....Melody ... take the inter sole out, and that allows for the brace...
Summer: I totally understand! I wish I had a dollar for every time I've fallen UP stairs, lol. If my poor knees could talk they would scream "don't take the ...
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