I always dread summer coming because I can't function in the heat and humidity...80 degrees to me is quite warm and as the temperatures increase, so do my CMT...
Hi Dan, welcome to CMT-Support. During an EMG test which I am assuming you are referring to, they measure the amplitude. Different neurological and ...
Hi Dan, Paul from Massachusetts USA. I can only make a guess on this but to me you don't have CMT. I am not a Doctor but do have CMT. Now lets say you don't...
Hi Erin, not upset at all. You are right to share what you found. I have a tendacy to shot my mouth off about things like this because for me I don't place ...
Hi All, The Temp for me CMT wise has no lower problems that I know of. So 65 and below is fine. The coldest I have experience was about -11 F and I was doing...
Hi John Welcome to CMT-Support. I can't help personally with any tendon lengthening surgery. But we do have members who have had this surgery done and I am...
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Oct 1, 2006 6:08 pm
56957
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Oct 1, 2006 6:08 pm
56958
Hello group. Has anyone had or heard of the following problem? Any time i lay down, within 30 min. my whole body goes numb. Head to toe. After i set up it will...
http://www.sciencedaily.com/releases/2006/09/060930094212.htm Robot Wheelchair May Give Patients More Independence Engineers at the National Institute of...
http://www.sciencedaily.com/releases/2006/09/060927120943.htm 3-D Brain Atlas To Help Unlock Mysteries Of Neurological Disorders The completion of the Allen...
I agree Becky. Have had several MRI,CT,CAT . and no such luck. I feel that when a person has been to the top i.e. Mayo Clinic, I do not know where to go. I can...
I agree Becky, The nerve roots that exit from the cervical vertebrae affect the head & neck, diaphragm (breathing) upper body muscles, wrist extensors, triceps...
Erin. Thanks for the reply. Was seen by cardido, pul,im,neur,infec des. and others i can remember. I feel the numbness spread thru my body. It is like when you...
Don't give up Dale. There is an answer out there somewhere. Just because its a big name like Mayo doesn't mean if they don't have any answers thats it. Just...
When we had a waterbed I had a very similiar problem. My legs and arms would go to sleep. This was years before I was diagnosed with CMT. The doctors could...
John: Last year my daughter (then 13) had her tendon lengthened and had surgery on her foot to flatten the arch and fuse the ankle. It has made a world of ...
Thanks for the idea but have beenaway fron the waterbed for several years. The harder the matress the deeper the numbness. It is like the more pressure i put...
Hi John: I'm down in Portland OR. I was wondering if you have seen Dr. Thomas Bird in Seattle, Univ of WA Dept of Neurology (last I heard). He is on the...
Hi Dale... I should have assumed you'd already been through a goodly amount of diagnostic procedures. Was your MRI done with contrast & what part of your body...
Hi Denise, Here is the one in Portland. Legacy of Good Sam Hospital (odd months)/Assembly of God Church (even months), Portland, OR Quarterly Contact:...
Denise: do contact Darlene. However, she has retired from facilitating the group, so there is no more CMT specific support group....I believe they just had...
Hello Dan... I can understand your quandary regarding your CMT diagnosis. It may be a comfort knowing that a good many of us had (and are still having)...
Good afternoon all. :) We have a few more reports in on how weather variables affect us. Thanks much Kathy, Sandy & Paul. The one constant that stands out...
Hi! The second doctor said that the NCV test was no so good in sensitive nerv ( 27,8 m/s and 37,5 m/s) He said that possible is a sensitive neuropathia or...
Erin. Thanks for the reply. Have had MRA of neck and brain ,MRI of spine, both with and without contrast.brain w/wo contrast. I have NOT been diagnosed with...
I am new to this group. I was diagnosed in 1994 after receiving chemotherapy which caused neuropathy but was not chemotherapathy. I had testing done but...
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