For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Aug 1, 2006 5:15 pm
56020
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Aug 1, 2006 5:15 pm
56021
... information to ... symptoms in ... PT ... walk. I ... pregnancy ... I...
I understand your frustration, it took 4 years to confirm a diagnoses in my six year old. She could not hardly take 4 or 5 steps without falling until she got...
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=16877806&itool=pubmed_DocSum 2006;47(3):255-60 How to assess...
I live in Alabama. We have seen two different orthopedics and three neurologists. I'm really having a tough time finding anyone local that knows much about ...
Jenn and Melisa, Jenn, this is what one of my concerns is, with any shot used, from experience in my hip last year, have no idea as to what he used or what he...
... Perhaps a Shriners Hospital could help you. Their medical care is free. http://www.shrinershq.org Have you seen a neurologist at a Muscular Dystrophy...
i highly recommend the shriner's as well.. they work with children with any orthopedic problems not just CMT... i have nothing but good to say about them. i ...
My daughter has been going to Greenville Shiners Hospital since she was 4. She loves going there because of it being centered towards children. They made her...
The Associated Press Delivers Story on Pain: "Advocates Demand Funding for Pain Treatment" To those who took action on the similar alert sent on Monday, July...
Reminder from the Calendar of CMT-Support http://groups.yahoo.com/group/CMT-Support/cal MDA Living with CMT Chat Wednesday August 2, 2006 8:00 pm - 10:00 pm ...
CMT-Support@yahoogrou...
Aug 2, 2006 6:03 pm
56032
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=16881064&itool=pubmed_DocSum ... Effects of exercise and...
Thanks Everyone! I had never heard of the Shriners Hospital before. I will definitely be looking into it. Stacey ... was 4. She loves going there because of...
Stacey, Here is the link for the hospital. Click on it and then to admission and then apply now for care. They will be a big help to you. They will either...
http://www.shrinershq.org/Hospitals/Greenville/ Sorry, I forgot to paste this Stacey! The heat here has gotten to my brain. Karen ... From: Karen Davis To:...
Good evening everyone. :) I was doing general research & came across a site that might be useful for those of us considering some type of home health care....
You bet Stacey. I wish you all the luck! You won't be sorry. Karen ... From: Stacey To: CMT-Support@yahoogroups.com Sent: Wednesday, August 02, 2006 5:53 PM ...
Reminder from the Calendar of CMT-Support http://groups.yahoo.com/group/CMT-Support/cal MDA Living with CMT Chat Wednesday August 2, 2006 8:00 pm - 10:00 pm ...
CMT-Support@yahoogrou...
Aug 2, 2006 11:40 pm
56040
Mike was selected to be our counties family for MDA fill the boot this year.. he will get to visit the fire departments in our town and surrounding areas....
As a recently diagnosed CMTer, I am investigating ways to lessen my symptoms. Has anyone noticed an improvement in their symptoms by eliminating aspartame,...
http://biz.yahoo.com/prnews/060802/nyw190.html?.v=24 Press Release Theragenex to Focus on Unique Breakthrough Pharmaceutical Therapy Wednesday August 2, 9:15...
Hi Patty: I have not used sugar substitutes except in an occasional diet drink. Since they are chemically derived (splenda too?) I maintain they aren't good...
Hi Patty, I will 2nd what Melody has mentioned. After doing many searches on all the sugar substitutes, none of them are healthy for anyone. Aspatome is the...
Stacey: My daughter was diagnosed at age 2 with CMT 1a. They recommended AFO's for her and she wore them for several years. I was advised later that they ...
Renee: How neat! I've wondered how you and Mike were doing. Kara is doing excellent! She has a job now and worked 8 full hours Saturday, on her feet for...
http://www.medicalnewstoday.com/medicalnews.php?newsid=48635&nfid=al ORADUR(TM) Technology Milestone: New ORADUR-based Investigational Drug Candidate Commences...
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