Hi Kelly We have 2 sons aged 8 and nearly 10, who both have CMT1A. The younger one toe walks constantly. He has had 2 lots of serial casting - the first one...
Prevalence of Charcot-Marie-Tooth Disease in Patients Who Have Bilateral Cavovarus Feet. Author:Nagai MK,Chan G,Guille JT,Kumar SJ,Scavina M,Mackenzie WG,...
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Jul 1, 2006 2:24 pm
55617
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Jul 1, 2006 2:24 pm
55618
Thanks Jenn :-) The pain is abit better today, but still there. Yes, Dr.'s just don't listen to us! It was my regular dr.'s partner who i had to see because...
Thanks Sharon :-) Cross everything ya can, lol, i can't cross or even move my toes either, lol. I do everything I can in moderation since I no longer work. I...
Hi Will, Thanks for writing, i was hoping to hear from you as you are "our group expert in cardiology"......you been through so much! What a trooper you really...
Hi Sharon, I can tell it was muscle pain as it is still with me but getting better. I just took some of the Skelaxin today.....i quartered the tablet and...
At this point I often have a hard time remembering what pain I felt before the pain I'm feeling now (lol) or how long I've been feeling any specific pain! But...
KiwiKaren: Thank you for your response. My children also have CMT1A. I am just very discouraged that obviousely we haven't been given good advice in the past...
In a message dated 6/30/2006 6:37:45 PM Eastern Standard Time, ... I go to a neurology and pain clinic at Pro-Health care on Long Island, New York. I've had...
We were given varied and poor advice with our daughter and her feet became very bad. I think it's hard for the doctors because the symptoms of CMT vary so...
... are "our ... trooper ... LMAO! ... describe, ... Tina, some people with atrial fib, which I have can have heart rates as high as 500 bpm so I guess we are...
Wow Will.....interesting stuff ya wrote here.....Thanks :-) Sooooo ummmm, ya think it sounds like i failed huh? LOL! My Mom and 58 yr old sister have had the...
Hello I stop in for information to stay informed I am grateful for memberhip here Just wanted you to know that each day presents new challenges for us. I...
Michelle & Kelly... I found an article on diagnosing and treating 'toe walking' in children with CMT. There are other disabilities discussed too, so you have...
Hi all I just found this group. My name is Tara and I am 32. I found this because I was looking for information on genetic counseling for people with CMT....
... So Far I know you get DNA tested. They just took blood from me and my son his was done 10 yrs ago the things change so much they want to do it over again....
... Tara, You may find this site helpful. http://www.nsgc.org/ Years ago, I contacted this association for a genetic counsellor, and was referred to one at a...
Hi Rita, not sure about those statistics...how true they are....all I know is that I haven't eaten bread in like two years....gone wheat free...among other...
http://www.medscape.com/viewarticle/537485?sssdmh=dm1.200164 <http://www.medscape.com/viewarticle/537485?sssdmh=dm1.200164&src=nldne> &src=nldne FDA Approvals:...
http://www.medscape.com/viewarticle/537578?sssdmh=dm1.200438 <http://www.medscape.com/viewarticle/537578?sssdmh=dm1.200438&src=nldne> &src=nldne FDA Approvals:...
SUCAMPO OBTAINS FDA APPROVAL FOR AMITIZAT CAPSULES AS TREATMENT FOR CHRONIC IDIOPATHIC CONSTIPATION IN ADULTS Bethesda, MD (January 31, 2006) -- Sucampo...
Hi all... At my last gastroenterology appointment the doc told me of a newly approved medication for chronic constipation that works differently than Zelnorm...
Is this a joke? Sure sounds like it. Sal ... the ... influenza ... 24 ... proven ... month! ... two ... to "harder" ... is ... lead ... Fahrenheit! ... that ...
Dawn... Are you meaning the ones like "Ensure" & similar products that aren't name brand? Or is there a one that is especially for protein? I'll have to look...
Erin....Yes...similar to the Ensure products, yet with much less sugar content, and higher in actual proteins. hum...the Ensure has 15 grams of sugar. My...
I am having my dna blood test done thursday,but Im wanting to know if anyone is on disability with this disease and was it easy being approved for it.thanks...
