Hi Val, I'm a bit behind with my messages sorry. I'm 28, just diagnosed although i've had CMT for as long as I can remember. I met my husband nearly 10 years...
Thank you for sharing with me. It is weird how it affects everyone so differently even in the same family. Thank you giving me input. Hi Bobbie and welcome I...
Thank you for that information that is most informative. cool, they can not test for all types yet but a few. It can be a help in a dx rocky ... x-rays, ... me...
hey im 33 and have cmt and it has effected me bad in a lot of ways my legs and feet hurt all the time and it has set in my back muscles so i stay in pain 24 7...
Becky, I'm finally getting back here. We had to go to a funeral yesterday of a dear friend, so I'm behind here in my mail. I'll try checking out this avenue....
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Jul 1, 2005 2:51 pm
47529
Kathy, Welcome to the group! I'm fairly new here myself. I'm trying to catch up on my emails, behind a couple of days due to a death and funeral. You'll...
Brad, Sorry I haven't responded sooner to you. Too many things the last couple days. Now I'm trying to read all my emails I'm behind on. I know where...
Ernie, No, I haven't had the oppotunity to contact MDA yet, about anything actually. I did check this link you gave me, but they show nothing for the whole...
Kay, Thank you. Yes, your post does make sense. Sorry I haven't replied sooner. I've been busy since you wrote. The viewing the night before, and the...
Hi Bobbie You are welcome and Thank you for the response Yes it is werid how CMT effects differently in the same family I wish all a good day I must go Kay ...
I hope you have a great day as well Kay. Hi Bobbie You are welcome and Thank you for the response Yes it is werid how CMT effects differently in the same...
You are not alone. I also have pain in my legs constantly. In fact right now I am in a lot of pain. Even to touch my legs it hurts. I also have a lot of...
This thing happened recently and I've put it behind me, but it is remarkable the spin people can take on saying 'no thank you', from us retired CMTers. I have...
Hi Kathy Welcome to the Group! Just Jump in this group is great (most of the time about answering question) If not ask again in a week and they will answer. I...
I don't blame you for saying no thank you and can't believe how she took it. This thing happened recently and I've put it behind me, but it is remarkable the...
Hi I'm Amy, My husband has CMT and has had since birth. He never really walked well as a child and slowly stopped walking all together because of CMT. Now he's...
Hi Amy. There can be phrenic nerve involvement (weakened diaphragm) with CMT. I know someone will be along to tell you more about this. And also the kind of...
hi amy.. im 45 and use a wheelchair fulltime now. i started useing one about 6 yrs ago. i have had cmt systoms all my life too. i've been on total disablility...
Hi Rob I just wanted to say Welcome. I am Lue 34 too but I am on the mild side of the spectrum. A lot of the group are on SSD and are busy beavers in a...
You're welcome Bobbie.... It sounds like you *do* have your hands full. Is your son seeing someone for the speech delay or helping you work with him at home? I...
Hi Amy, welcome to the group. I'm sorry to hear that your husband is having so many problems with his CMT at such a fairly young age. There are several...
Ahhhhh. Good news Rocky! :) I think you *are* getting CMT mastered. I walked home from high school & had to pass the grade school playground. Some of them ran...
Hi Amy, I've had CMT since birth also. I didn't crawl or pass developmental milestones when I should. I don't think I walked until maybe 2 years; I was always...
Hi I have breathing issues along with the CMT. It happens quite often. It involves the diaphram. Mine gets weaker when the weather is humid. I can now tell...
maemery@...
Jul 2, 2005 1:37 am
47548
Oh, yah most def have my hands full. I think more than i ever bargained for. He sees a speech theraphist at school and this summer he is seeing one thorugh...
Hi Bill Welcome to the group! dont be afaid to ask any questions this group is great. If theyh cant answer wait a week and they will. welcome again Lue bill...
I am a little behind in my saying hello but Welcome to the group. Lue ladyincal6 <ladyincal6@...> wrote: I found you. Figured out how to register and...
hmmmmmmmmmm ... playground. Some of them ran up to the fence when they saw me coming... called out "drunkard" or chanted marching tunes. I cried. ... with a dj...
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