Just wondering if eating and having a full belly can make it more difficult to breathe if the diaphragm is affected? And how about bending over to tie your...
Or 3 lol!! To get the diaphragm tested what kind of a doctor needs to be seen and is the test an emg-ncv or is something else involved? I am planning to ask...
Andy, I've noticed that for the past few years also. I can't even bend over, while sitting, to fasten my shoes and AFO at the same time if I have on a pair of...
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
May 1, 2005 4:18 pm
46160
Andy, that was one of Cheryl's biggest problems..She couldn't have a full stomach and breathe comfortably after...People tended to push her to eat more because...
I had the same surgery done on me about 3 years ago and the tendon release did nothing for me but my joint fusion has helped me alot and plan to have my right...
Kia Ora All , Well i,m 3/4 of the way thru my IVIG immuoglobulin treatments had session # 14 out of 18 today .Down to once a week as well. Can,t say theres any...
http://www.heralddemocrat.com/articles/2005/05/01/local_news/iq_1822518.txt Texas Lions Camp wants you It's easy to be a part, and free! Children with physical...
Kathy, there can be a few different reasons that CMT just "shows up" in a family. As you mentioned, those with symptoms that are so mild, that it is ignored or...
Katherine, My mom is in a regular wheelchair now and was just evaluated for a power chair last week. According to the person that did the evaluation, one of...
Andy, I have more problems with breathing for a period of time after I have eaten a full meal, and with the bending over issue also. As Pam has mentioned, a...
Grant, it's good to hear from you. I'm sorry to hear that your not getting any help from the IVIG treatments so far, but your almost done. One good thing,...
Katherine, You asked... Did you find the joystick easier to manuever than the toggle bar on the scooter? I have a scooter that I use 24/7, but while Lamar and...
Ernie, You've brought up some very interesting points here. I was recently diagnosed with "Charcot Foot" and am a "diet controlled" diabetic.( my morning blood...
Hi Sal, Thanks for the info on Charcot's foot. What doesn't make any sense to me, is that all my nerve,muscle and vascular tests came back 100 % perfect ! My...
Thanks, Ernie, That does help, but I guess CMT will be a mysterious predator for some of us for quite some time...I'm really thinking now that I'm not the...
Donna, when you say your nerve testing came out negative, did they do an EMG-NCV test on you? You mention that you are a diet controlled diabetic, did the...
From what you describe Kathy, that sounds like it may very well be your link.. I think it's interesting as to how some people react to the idea of having...
Tammi, I am another member who has not posted in quite a while but I do try to keep up with the posts. I had this type of surgery as a teenager almost 30...
I AM LIVING WITH A MAN WHO HAS CMT. I DONT KNOW IF THIS IS WHERE I NEED TO BE BUT I NEED SOME HELP DEALING WITH HIS BITTERNESS AND HATEFULLNESS. HIS ATTITUDE...
Wendie, this is exactly where you need to be. We are a support group that is more like a large family than anything else. What you are describing is not that...
Hi Ernie, Yes, I had both the EMG and NCV testing done, the neurologist said everything came out normal. My bloodsugars are usually around the same numbers,...
Andy, I have all the same symptoms that you have mentioned and had all the tests to diagnose the probable cause of the shortness of breath. I suggested the...
Thanks to everyone for the diaphragm info!!! Ernie, I had the pulminary function test sitting and standing today and my results were normal. Does this mean I...
ok - so how do you get the neurologist to do the phrenic nerve EMG when she swears it is not related to the CMT? Do you find another one?? Martha ... From:...
Martha Emery
maemery@...
May 2, 2005 8:08 pm
46183
... Oops I had the tests sitting and laying down....
Here is a link for meals for easy swallowing http://www.mdausa.org/publications/meals Hope the link works Kay [Non-text portions of this message have been...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
