Oh no - I know the feeling! I think that the mental anguish is often greater than the pain for us 'nearly normal' CMTers. Really glad you are doing so well...
Hi Renee Are Mike's current AFO's made using the casting or did they use another method? The reason I ask is that they may not be form fitting enough to him....
Hi Shannon, bad news on the fall but good news that you are doing so well. From your past posting I had the impression you were more severly affected. I was...
((((Shannon)))) The good news Is that was the best place to fall! Its the place people expect you to fall. No one cared because not as many people know you...
hi Lue... yes Mike's AFO's were cast fitted. as for how the pain runs.. i'm really not to sure.. he just said it hurts all over but that the worst is right ...
JD Hi this is Kay I was just wondering about Don and how he is doing All my thoughts and prayers are with him and his family Please keep us up to date on him...
the last year or so I have been getting pain from that area and have been doing streches twist and streches with the thera bands. I will scan and email you the...
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Apr 1, 2005 9:12 pm
45630
I've been lurking a bit here myself, but with *that* post I have to say "WELCOME BACK"!! I'd forgotten exactly what it was that I missed the most about you not...
they haven't started t-ball this year yet... first practice is next week.. i haven't even thought of that. i hope he will still be able to play. he really ...
I want to thank and the McLaughlin Family would really like to thank all of you for your prayers and such thoughtful messages for Don McLaughlin. I e-mailed...
Charcot-Marie-Tooth Association www.charcot-marie-tooth.org 3/31/2005 NIH Report: Workshop on CMT Research Planned The CMTA is making progress in its efforts...
Wonderful news JD. :) Keep us updated, we are all pulling for Don with prayers and wishes for a full speedy recovery. ~>Becky M. ... From: JD Griffith ...
JD, this is just wonderful news to hear, thank you so much for letting us know. I'm so glad he is doing better and I will continue as I'm sure others will too,...
Glad to hear Don is getting better....It's been a sad week in the news, so this is so good to hear...Best Wishes for a speedy recovery Don.......Kathy ...
Me too...ice, rest, and a firmer mattress. I had created an impression in the old mattress and my back was suffering. A new, firmer mattress with a comfy pad...
Although we've not met, I've read much about your contributions to research in CMT and efforts to share the wealth of knowledge with others; knowledge that has...
I have created an album for the cards sent to Don from us at CMT-Support.com. If anyone wishes to take a look, sign into Yahoo at our home page and click this...
I wanted to post this reminder about the CMT seminar in Columbus, Ohio, coming up this Friday. I'm pretty sure there are still spots available. I think they...
Don; This is CM or Libby! I've never had the pleasure of getting to know you, but you are in my prayers. I can understand some of the pain and difficulties you...
well i finally have updated photos of Mike's feet and AFO's but i can't figure out how to add them to the photo album. if someone could help me i would...
Renee; I too suffer sciatic back pain; Using Hot and cold packs help me; Heat alone can inflame already inflames muscles and tendons. Alternating heat and...
Renee... It's Erin. I've added an album for you called "Mike's Feet" When you get to the home page click on "photos" (at the far left)... then "CMT Feet".......
Renee... Forgot to tell you that if you want to put Mike's AFOs in the "AFO" album, follow the same instructions. But click on "AFOs" then create an album for...
Hi Renee, Here is a site concerning hot tubs. A warm shower can also make a person with CMT weak due to the muscles relaxing so much. So you have to be...
Send the photo's to me and I will add them. (rmax@...) Or send them to one of the moderators. We had some problems in the past with spam, that's when...
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