I notice that members on this list cannot start polls. I find them SO much better than all the emails when just a 'head count' is required. Could one of you...
Sorry Grace, I realized after I sent my post that I had the dup/del backwards. I don't know where mine came from. We suspect one parent and one other...
The first upper emg I had was fine, my problem was my lower. The velocities were ok (showing axonal only) but the amplitudes were real low. In all tests, the...
I'm going to miss Friday tomorrow since I won't be logging on, but I did have one godd one to share. So hold it for tomorrow: A magician worked on a cruise...
Ray...hum...will be thrilled when my copy of the EMG/NVC test results arrive. They said, the doc should get them by next Monday..n me, with the copy arriving...
... because ... exercise. This statement shows how out of touch most doctors and so called experts are when it comes to CMT. Fatigue is certainly one of the ...
Morning Ray, Sorry, don't mean to scare ya......wasn't my intention anyhow. Yes, NR means NO RESPONSE. There are several nerves on my report that were not...
Good morning to all! Tina was great n sent me a new site that is very updated iwth the various forms of CMT..! Thanks..a bunch girl! Am curious as to who...
Dawn I have a HIPAA form right here It is a Patient consent form Rules were made up bt the Department of Health and Human Services It is long , so Maybe It can...
Definitely get copies of all records, tests and films. It's the law that they have to give them to you upon request (at least in NYS - I'm not sure about...
Yes I seen that too It is a shame they don`t understand Also with Fibromayligia stress makes it worse And with Thyroid disease stress makes it worse and causes...
Good morning Dawn, I was dxd last week as "probable cmt2" even though it is a mild case. I'm still walking, although with pain and loss of balance, pes cavus,...
Kay n Ray..hay that ryhmes :-) lol. Grooping at some comedy here to pull through this, mountain of..stress factors , n as Ray had so aptly put it, having a...
About your computer, are you trying to enlarge the words on screen? Is this just for the internet (like these posts)? Let me know, I might be able to help....
Ray..yes...I need to enlarge the print oin the entire internet..as well as the posts. In the view..on the tool bar I have it set on Largest print! Have...
Dawn: I learned something important at our local support group mtg. HIPAA allows that your medical info be kept so confidential even with family members a dr....
Hey again got done with hair cut and eyebrow waxing . Still trying to figure this laptop out if you all are sick of me playing or trying to figure this out...
... Hi Dawn I was dx with type2, even though they dont make a test for my type 2 at athena. My symptoms are, no pain, other then lower back due to my gait....
Melody...yes, here the new thing has been to sign a form, & yes a good idea to designate a few family members just in case..as a precaution. My inquiry was for...
Hi, my name is Daniel. I was diognosed with CMT when I was 16(I think). Anyways my question is Does anyone have an extra bone in there foot? I am asking...
Hi Daniel, welcome to our group. I can't answer your question, as far as I know I do not have any extra bones in my feet/foot. Is it just one foot that has the...
Kelly and Grace; Both of you are very kind to be concerned and I do like that you can be Empathetic but I don't need sympathy! I truly do pretty well for the...
Melody...oops!...I have not moved yet, but in the process of, n preparing for the BIG move...hum..hoping for May 1st at the latest...depends on how my health...
Hi Daniel! :) Where is the extra bone located? We all have a secondary bone that our doctor calls a floater bone, it is not fully attached and has no use, the...
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