Hi Erica, The Dr. who told you CMT does not cause breathing problems needs to go back to med school. CMT most definitely can cause breathing problems, but...
I agree 100%, I have seen too many of my family with breathing problems that
have CMT What it basically boils down to is you have to be more up to date on CMT...
Breathing problems & CMT do exist. The phrenic nerve (innervates the diaphragm) is a peripheral nerve-as are the nerves that innervate our feet & hands-and can...
The recent discussion on CMT related breathing problems outlines one of the biggest problems we all face. Clueless doctors who refuse to listen. We've all...
I like to first say thank you to all of you that have replied to my questions about breathing. I feel so much better to know that there are people that...
... I was thinking the other day that it would be nice to have a "section" where we tell how CMT came about being diagnosed or known in each family/person's...
... Cathy, My husband said the same thing about the diswater temp!!! lol I don't want to push Neurontin on you. It works well for me, and not for others. There...
... Andy, Your post hits a big nail on the head. My neuro is a dept head at a teaching university, and belongs to the local MDA clinc. AND, he specializes in...
Linda, you ARE an angel! What a lovely way to include our group members who do not post messages. -- folly ~Linda aka vt_pure_angel wrote: Whether you are...
Thanks to everyone who replied to my message about the headaches. Very seldom do I get a headache or migraine other than when I wake up, so I was leaning...
I walk on the outsides of my feet, it’s worse when I’m tired (legs are tired) and have been up doing too much. I now wear an AFO on my left foot and for...
... Linda, You are very thoughtful to all of us with CMT and/or our family members. It would be nice our varied stories. Thanks for your sentiments, Kamie...
... Hi Ericka, The following is the MDA home page. This particular address is for the clinic sites, located by zip code. http://www.mdausa.org/clinics/ Kamie...
Have had a bad month Judi came down with a cold then flue and then phemonia and now Broncile Phnemonia and is having antibotic injections every day but is...
Aussie Brian ((((((((((((Big Hugs to you and your family)))))))))) You are in my thoughts and prayers! I got a good chuckle out of the old bathroom being...
Hi, Ericka, I have the breathing problems and was diagnosed with asthma. None of the meds worked either. Then tried Nexium for acid reflux which my asthma...
Hi Becky, your gastro problems sound a lot like mine used to be prior to my surgery. And still are but just not so bad. My esophagus muscles are only about 10%...
In a message dated 6/2/2003 6:59:45 AM Eastern Daylight Time, ... Hi Brian, Bob P. here. I hope Judi is much better today, and you are able to hang in there....
Hi Becky, I do not have swallowing problems just the breathing and diarrhea at this time. The breathing can be just sitting and talking and have trouble, been...
Hey, Andy, do you start to cough the longer you talk? Also, can't catch my breath while talking sometimes. I find chewing gum or sucking on a cough drop...
I have problems talking too. Trying to catch my breath. And I am worse at night too. I'm at a loss! If you find out anything , let us know. Becky E. ... ...
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12775342&dopt=Abstract Int J Neurosci 2003;113(6):777-785 Clinical Case Study:...
... Hello Brian, I am happy to hear that Judi is better. :) Hopefully she'll feel even better everyday! I sure hope the new toilet is finished soon. Sounds...
... Becky, What you have described is exactly how I have felt. The breath life savers worked well for me. My throat feels like I have cat hairs stuck in it (I...
That's it exactly! But what is it? Asthma, Acid Reflux, CMT, all of the above or something else. My primary physician has no clue (she even started ...
Becky, yes I do cough from the spasms. If they get really bad they gag me. Eating Halls cough drops and drinking lots of water helps. Talking doesn't make me...
Hi Kamie, I have some of your symptoms too. Eat very slowly. Chew extra long, cut my food really small and must have total concentration when swallowing. My...
Ericka, I am Jeanann and I had problems with diarrhea and I added half a cup of whole wheat fiber to my daily meals. General Mills-Fiber One Bran Cereal or...
