Hi Sonya, Welcome to CMT support! You have already joined the "family" since your message came through. I saw your message on the Charcot-Marie-Tooth disease...
I have just consulted your site:cmtnews.com. I find it well provides and interressant, but it misses an article on the driving licence and conveys it for the...
Hi all, Kat, I lol when you said you could hear your kids easily from a distance. My kids too I could hear if I were in the back bedroom in the house! They...
... whose ... body, ... into my ... Patsy, Buckeye Jim here; One of the type 2's, I think type 2b1(need to look this up for sure) is closely related to...
You have joined the group- I guess! oR at least your messages are coming thru! Welcome! Shannon ... I would like to join this group ... Do you Yahoo!? Yahoo!...
She's undergone various test for the past year, and finally in May we will know if it is CMT or not. I almost wish that it is, just so the uncertainty can...
Hi. i'm 19 and I am totally new to this site but i love this site...i dont know where to start.. I can't look over these 20,000+ posts... I heard there are...
Hello all new members!! Welcome, at the moment things are a little slow here on site compared to normal, people must be busy busy. I can't answer your...
I recently joined the list and am now beginning to wonder about some of my other symptoms that I did not know were related. I am recovering from bronchitis at...
Hello and welcome! One nice feature here is the "Search Archive" located in the upper right above the messages. Try doing a search for subjects that you may be...
Hi Gwen here welcome to the group. I am sure you will find many of us have the same symptoms you have.Just let us know what you would like to know and someone...
Hi Venusiakayway, Welcome to CMT Support! You daughter sounds alot like my son when he was her age. He is now 14. Sounds very typical of CMT to me, I think...
My daughter was diagnosed at 2 years old and she couldn't jump or run or walk up stairs or get up once she fell down. I thought she had beautiful feet too....
I'm not sure if many of you know, but the MDA has started several chat sessions through their web site. The link below will take you to their schedule. There...
I've had a difficult time getting in here, my initial post didn't show up and i wasted it. It was long, so i'll mak ethis short incase it gets lost again. I am...
Hi "Orthomet I don't have CMT, but my husband does. At his job, no-one knows he has a health problem - he had one foot totally rebuilt about 20 years ago, and...
Hello Orthomet. I am sorry your first post got lost in cyberspace I have had the same thing happened and it is frustrating. I will try to answer your question,...
I am 52 yo have had symptoms of CMT since I was 5 or 6 as far back as I can remember but I can remember the pain and have lived with that all my life and at 52...
Wed., 8:00-10:00 PM Eastern LIVING WITH CMT , Bringing together people with or loved ones affected by CMT. We share stories of all kinds that reflect what...
Hello! Ruth from Raleigh here. Welcome to the group. Your question is one I am sure many of ask ourselves. How do we know how to encourage the people we...
Hello, unfortunately there are no easy answers for your questions. I have type 1A and led a fairly normal and active life until I reached the early 40's. My...
Welcome to the group. I have a four year old with CMT1A. She was dx at 2. She falls a lot too. She could not climb or jump when she was two and three....
Welcome to the group. I can not answer your question because I do not take any meds for the pain YET. But others in the group will be able to answer for you. ...
Julie, I presonally think that it is CMT related. Everyone has their own ideas about this. If you ask one doctor they will say yes and the other will say no....
Welcome to the group. I also have cmt1. I was only diagnosed about eight years ago. I have a lot of trouble with my feet, but so far my hands are ok. I ...
Hi, just wanted to let ya all know that I finally went to a Chiropractor today! It was grrrrrrreat! I feel better already. She used a TENS unit on my back, and...
Hi Orthomet, welcome to the best CMT support group on the Net! You have already had some pretty good responses to your question so I'm not sure there's much...
Well, it is never good to hear bad news...But, sometimes you just want to be realistic... I am 33 and have CMT; I was diagnosed in 1988 and my hands were...
Note: forwarded message attached. ... Do you Yahoo!? Yahoo! Tax Center - File online, calculators, forms, and more [Non-text portions of this message have been...
Lisa from Va here, I haven't posted for ever so long, but have tried to keep up to date with reading the lists. So much has been going on, some fun and some...
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