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Linda, your story is similar to mine. My neuro thinks it's CMT and my rheumy thinks it's CMT and FMS. I have noticed that on the MDA site "Ask the experts",...
Good Morning Will, I have taken the view that if I can drive safely then I am qualified. I never mention my disabilities; although I must admit that I do not...
Allan The best education we can give the doctors, research and government can come right from this site and postings. I am tired of people not knowing what it ...
Wel. this time I was sick. Bu I really lucked out. Decided not to drive nd tried out one of those urgent care no appointment necessary places and the doctor...
For those with young children with CMT. An introduction to CMT suitable for young children. http://www.cmt.org.uk/kidsleaf.html It was the twentieth of April...
PAYMENTS INCREASE IN 2002 http://www.ssa.gov/enews/last.htm If you get Social Security or Supplemental Security Income (SSI) payments, here's some good news....
Roz, Frances here, Glad to hear that you were able to find out what was wrong. Boy those Sinus infections can really do a person in. Hope you are better soon....
Hi Brad and Will In the UK we have to notify the driving authorites if we have a condition that might have an affect on our driving and they check with our...
Good morning Sue, Brad here: Now what makes you think wearing braces, using a cane, etc. might have an effect on your driving?? We don't use the cane for...
Hi all, Frances, Patsy here, I too was dxw/ FMS. I would like to know if I can get a book about Fibromyalgia such as you have. Look up Mortons Neuroma. This is...
Brad wrote:- But the one person I never tried to fool was me. This sums it all up Brad. I don't use AFO's (they've never heard of them in the UK, just leave us...
Hello, Dr. Brad (and Sue): I agree with "Dr. Brad", I'm not going to shake that jar of bumblebees. If they want me, they can come and get me, but I'm not going...
I agree 100% and think that the best way is through the media, perhaps by convincing reporters of the appeal of a personal interest story. One thing I have...
Hi group! I just came from my pain mgt doc and mentioned to him that I was having increasing numbness and pain in my hands. He wants me to take Gabitril for...
Alan wrote One thing I have run into is, every doc I have ever seen completely denounces anything to have to do with the Internet. Oh Alan you don't know how...
Great big Ditto from me as well - as well as if you tell a "regular" Doctor you go to a chiropractor - well - that is like going to Satan himself and that...
Hi everyone - Karen here - thanks so much for your hints on info for others. (I used an amalgam of info from several sites to give to Ethan's teacher, but just...
Patsy, Frances here, My feet are growing out on both the sides of the foot by the big toe and little toe. The name of the Book I have I go at the bookstore,...
Alan, Frances here, Yes I know what you mean the first thing my Neurologist or Doctor says is oh looks like you have been on the Internet, and then more or...
... them in the UK, just leave us to deteriorate all on our own) but I do use a wheelchair and said the same about my chair as you did about your cane. I don't...
Will I live in a very rural village in the heart of the Midlands and I watch old dears get into their either very old cars and peer thorugh the steering wheel...
Maybe we're going about this the wrong was. First of all we have to convince the media of the benefits and the power of internet and then talk about CMT Love ...
Hi everyone, Sorry about printing Pediatric doc. I meant Orthopedic. LOL I am redfaced! LOL I have Webtv & it just up & quit printing my words! Went blank,...
I'm kinda like the Army. "Don't ask and Don't tell." I have never had a problem with my AFO"S and driving. ... qualified. I ... wheel up ... I don't ... ...
Alan & Frances, Yes, they do shut down when they find out we are on here because they realize that we are being educated by each other. I thank GOD for all of...
Thank you Owen. Often we forget our men and women who are ready to sacrifice themselves for all of us. Your post make me stop and think about them -- and how...
Hi everyone, I've been reading posts about fibromaglia & being misdiagnosed. Just wanted to put in my 2 cents worth. I just recently had genetic testing for...
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Marshal Levine
MSLevine@...
Nov 4, 2001 4:09 pm
Anita I have been unable to find any information on neurontin and memory loss. If you have more information or a reference I would appreciate it. My thanks,...