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CMT-Support · CMT- Friends and Support

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Messages 1291 - 1320 of 69801   Oldest  |  < Older  |  Newer >  |  Newest
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1291 atucker2567@...
atucker2567 Offline Send Email
Nov 1, 2001
8:16 am
Linda, your story is similar to mine. My neuro thinks it's CMT and my rheumy thinks it's CMT and FMS. I have noticed that on the MDA site "Ask the experts",...
1292 Dr. Brad
brad_betty Offline Send Email
Nov 1, 2001
1:02 pm
Good Morning Will, I have taken the view that if I can drive safely then I am qualified. I never mention my disabilities; although I must admit that I do not...
1293 leggylindars@...
leggylindars Offline Send Email
Nov 1, 2001
1:38 pm
Allan The best education we can give the doctors, research and government can come right from this site and postings. I am tired of people not knowing what it ...
1294 writerroz@...
writerroz Offline Send Email
Nov 1, 2001
7:51 pm
Wel. this time I was sick. Bu I really lucked out. Decided not to drive nd tried out one of those urgent care no appointment necessary places and the doctor...
1295 Rebecca Maxwell
slopokecmt Offline Send Email
Nov 2, 2001
4:04 am
For those with young children with CMT. An introduction to CMT suitable for young children. http://www.cmt.org.uk/kidsleaf.html It was the twentieth of April...
1296 Rebecca Maxwell
slopokecmt Offline Send Email
Nov 2, 2001
4:12 am
PAYMENTS INCREASE IN 2002 http://www.ssa.gov/enews/last.htm If you get Social Security or Supplemental Security Income (SSI) payments, here's some good news....
1297 fkcoxen Offline Send Email Nov 2, 2001
4:24 am
Roz, Frances here, Glad to hear that you were able to find out what was wrong. Boy those Sinus infections can really do a person in. Hope you are better soon....
1298 Sue Horder-Mason
suehmuk Offline Send Email
Nov 2, 2001
10:05 am
Hi Brad and Will In the UK we have to notify the driving authorites if we have a condition that might have an affect on our driving and they check with our...
1299 Dr. Brad
brad_betty Offline Send Email
Nov 2, 2001
12:49 pm
Good morning Sue, Brad here: Now what makes you think wearing braces, using a cane, etc. might have an effect on your driving?? We don't use the cane for...
1300 birdlady1128@...
birdlady1128... Offline Send Email
Nov 2, 2001
1:54 pm
Hi all, Frances, Patsy here, I too was dxw/ FMS. I would like to know if I can get a book about Fibromyalgia such as you have. Look up Mortons Neuroma. This is...
1301 Rebecca Maxwell
slopokecmt Offline Send Email
Nov 2, 2001
3:07 pm
Chris Medvescek, MDA, cmedvescek@..., 800-572-1717 MDA posted on a forum for homeschooling they are doing an article on homechooling children with...
1302 Sue Horder-Mason
suehmuk Offline Send Email
Nov 2, 2001
4:16 pm
Brad wrote:- But the one person I never tried to fool was me. This sums it all up Brad. I don't use AFO's (they've never heard of them in the UK, just leave us...
1303 atucker2567@...
atucker2567 Offline Send Email
Nov 2, 2001
7:03 pm
Hello, Dr. Brad (and Sue): I agree with "Dr. Brad", I'm not going to shake that jar of bumblebees. If they want me, they can come and get me, but I'm not going...
1304 atucker2567@...
atucker2567 Offline Send Email
Nov 2, 2001
7:08 pm
I agree 100% and think that the best way is through the media, perhaps by convincing reporters of the appeal of a personal interest story. One thing I have...
1305 atucker2567@...
atucker2567 Offline Send Email
Nov 2, 2001
7:17 pm
Hi group! I just came from my pain mgt doc and mentioned to him that I was having increasing numbness and pain in my hands. He wants me to take Gabitril for...
1306 Sue Horder-Mason
suehmuk Offline Send Email
Nov 2, 2001
7:35 pm
Alan wrote One thing I have run into is, every doc I have ever seen completely denounces anything to have to do with the Internet. Oh Alan you don't know how...
1307 Martha Emery
scenemb Offline Send Email
Nov 2, 2001
8:06 pm
Great big Ditto from me as well - as well as if you tell a "regular" Doctor you go to a chiropractor - well - that is like going to Satan himself and that...
1308 A & K Hitchcock
hitchnz40 Offline Send Email
Nov 2, 2001
8:35 pm
Hi everyone - Karen here - thanks so much for your hints on info for others. (I used an amalgam of info from several sites to give to Ethan's teacher, but just...
1309 fkcoxen Offline Send Email Nov 2, 2001
10:32 pm
Patsy, Frances here, My feet are growing out on both the sides of the foot by the big toe and little toe. The name of the Book I have I go at the bookstore,...
1310 fkcoxen Offline Send Email Nov 2, 2001
10:37 pm
Alan, Frances here, Yes I know what you mean the first thing my Neurologist or Doctor says is oh looks like you have been on the Internet, and then more or...
1311 Will Wright
fisherpro_99 Offline Send Email
Nov 2, 2001
11:35 pm
... them in the UK, just leave us to deteriorate all on our own) but I do use a wheelchair and said the same about my chair as you did about your cane. I don't...
1312 Sue Horder-Mason
suehmuk Offline Send Email
Nov 3, 2001
12:26 am
Will I live in a very rural village in the heart of the Midlands and I watch old dears get into their either very old cars and peer thorugh the steering wheel...
1313 Sue Horder-Mason
suehmuk Offline Send Email
Nov 3, 2001
12:28 am
Maybe we're going about this the wrong was. First of all we have to convince the media of the benefits and the power of internet and then talk about CMT Love ...
1314 birdlady1128@...
birdlady1128... Offline Send Email
Nov 3, 2001
3:30 am
Hi everyone, Sorry about printing Pediatric doc. I meant Orthopedic. LOL I am redfaced! LOL I have Webtv & it just up & quit printing my words! Went blank,...
1315 murkam1@...
murkam Offline Send Email
Nov 3, 2001
4:39 am
I'm kinda like the Army. "Don't ask and Don't tell." I have never had a problem with my AFO"S and driving. ... qualified. I ... wheel up ... I don't ... ...
1316 leggylindars@...
leggylindars Offline Send Email
Nov 3, 2001
12:46 pm
Alan & Frances, Yes, they do shut down when they find out we are on here because they realize that we are being educated by each other. I thank GOD for all of...
1317 Owen
owenfr1 Offline Send Email
Nov 3, 2001
1:55 pm
Night Before Christmas 2001...
1318 Nancy
fishcork2001 Offline Send Email
Nov 3, 2001
3:08 pm
Thank you Owen. Often we forget our men and women who are ready to sacrifice themselves for all of us. Your post make me stop and think about them -- and how...
1319 locolucy61@...
locolucy61 Offline Send Email
Nov 4, 2001
6:52 am
Hi everyone, I've been reading posts about fibromaglia & being misdiagnosed. Just wanted to put in my 2 cents worth. I just recently had genetic testing for...
1320 Marshal Levine
MSLevine@... Send Email
Nov 4, 2001
4:09 pm
Anita I have been unable to find any information on neurontin and memory loss. If you have more information or a reference I would appreciate it. My thanks,...
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