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New measurement tool for clinical trials to help children with Charcot-Marie-Tooth disease University of SydneyMonday 07 May 2012, 1:18PM Media release from...
I had a mri last week and found out i have a ruptured disc in my back. My neurologist gave me the fentanyl patch for pain. I was wondering if anyone has used...
Hi Summer, I have the spinal disc/stenosis problems too. I've been on the fentanyl patch for a couple of years and it definitely helps me. I think I...
Hi there, I also have tinnitus, I have it constantly for the past 20 years. Was quite distressing to start with but now have learnt to live with it, with a...
Hi everyone, I am new to this forum. I have known about my CMT for about 20 years. I am now 53 years old and not really experienced too many difficulties...
Hello my friends, I have had to deal with tinnitus all my life..I joke that "quiet time"is way too loud for me and I have to have some kind of noise in the...
Hello and welcome. Sad that you had to find us because you have CMT but glad you found us because it is good to talk to others who understand. It has been...
Thank you for such a speedy reply, I must admit it does help to have a reason why we have these ailments and to know that it is not something more sinister. ...
For me and my family the flu like symptoms only come when we have over done it. Like a long trip out of town or a full day cleaning the house or gardening or...
Just curious. I was just told by my eye doctor that I have a strange spot at the back of my retina. She believes it is Central Serous Retinopathy. I knew...
Malcome - My youngest twin daughter has the "buzzing" feeling in her right foot only. She is only 4 so I'm assuming that her foot is falling asleep. It...
Hi, Found these. You have probably read them. http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002579/ http://en.wikipedia.org/wiki/Central_serous_retinopathy It...
Hi Lorena, I have what I describe as "buzzing" too! Only it is down both my arms and into my fingers. I only notice it at night. I get woken up because my...
Thanks Sal. Yep, I already saw those articles :) I know it is in the general population but wondered if CMT would make something weaker in me that would...
The buzzing may be restless legs syndrome (which can affect arms and other parts as well). I have it and describe it to my doctor as electricity going up and...
I've described it as radio static or white noise, but "buzzing", like when standing near those big power lines, I like that explanation better!  I get...
Hello Graig: Â I have CMT type 1a. I have the same thing going on with me although over the last 4 years. My little fingers are pretty much useless to me and...
Hi Craig, yes, I take neurontin. I used to take 1-300 mg pill every evening, but now just take it as needed. I find it helpful for the discomfort you...
Thank you, Angela. Did your Neurologist prescribe or your GP? I am 52 and started symptoms (feet) in '00. If I may ask (and my mother told me not to), what is...
Hi Craig,  No problem. All questions are fair game here! :)  I'm 48 yrs old. I've had symptoms since childhood, but wasn't diagnosed until age 42. ...
Craig, Sorry to hear of your problems. As with Rick, I also have problems with my
wrists and hands. I did take Neurontin for a few years but, with the...
Thank you, Geri. J. Craig Horan General Manager, Commercial - Tubulars NA United States Steel Tubular Products 281-671-3796 O 214-507-0331 C jchoran@... ...
Hi, my 9-year old daughter was officially diagnosed with CMT1A about a year ago. She walks on her toes and has very tight thigh and calf muscles. She also has...
good morning. I dont know what serial casting is - had to google it - but i was diagnosed soooo long ago they thought they cured me - hahahaha LOTS and LOTS...
Hi all, We live in central Virginia and are looking for a pediatric neurologist who is knowledgeable about CMT for our 8 year old daughter who has CMT type 1b....
Hi, where do you live in central VA? I am in culpeper..... there is a MDA clinic in DC....Just check the website... I am way older than your daughter but have...
Scheduled Maintenance:
We are undertaking some essential, but extensive maintenance to improve Yahoo!
Calendar. Your Group Calendar is being migrated to a much improved version of
Yahoo! Calendar. During the maintenance period, you may not have access to your
Groups Calendar.
We sincerely apologize for this inconvenience. Your Groups Calendar is in great
shape and we are working to have it available again as quickly as possible
- Yahoo! Groups & Yahoo! Calendar Team
