Sorry you had to go through this Geri... In my opinion, I'd be putting together all the medical bills and turning them into your employer for payment.. It was...
Angela, you said: "So, if I feel like the Tin Man when I get up, I know I've gone too far already." SOOoooo if I feel like the Tin Man that has been left out...
Katherine, I want to thank you for taking the time to give us these tips and this information.. VERY MUCH appreciated.. I know it's a scary subject for most...
In my own case, I usually either get up and stay up for the day (if it's late enough) or wait till my body finally says it's exhausted and I fall asleep. Just...
i dont think insurance people really understand the need for drugs. its all a money issue to them. im taking lyrica but its not helping so i got a perscription...
For those members that are interested, here is a link to a world map showing the location of some of our members. ALL members are welcome to enter their city,...
CMT-Support@yahoogrou...
Nov 1, 2009 10:10 am
67200
This is an automatic message that is generated once a month as a friendly reminder to the members of the Yahoo hosted group CMT-Support...
CMT-Support@yahoogrou...
Nov 1, 2009 10:10 am
67201
I have had trouble swallowing for quite some time. I have CMT. I recently went in through the ER for an emergency endoscopy choking on chicken. They then 2...
Hi everyone - Andrew has been suffering from excruciating calf spasms for about 8 days now. Twice I've almost taken him to the ER but he says he doesn't want...
Julie: I take potasium supplements for my leg cramps Jenn ... From: phantomsec4 <phantomsec4@...> Subject: [CMT-Support] Severe Severe Calf Muscle Spasms...
I also take Cymbalta. My doc recommends gentle stretching of the leg muscles before going to bed. My mother wears the "booties" that keep the feet from...
I have had that feeling in the calves. It's red like a sunburn, too. lj CMT2 ... From: djarmb <djarmb@...> Subject: [CMT-Support] burning skin sensation...
As has been mentioned.. the potassium and magnesium levels are most likely the culprit and need to be checked by a blood test and adjusted from there.. IMO. IF...
Rebecca, thank you for your post here.. I'm sure it will help someone.. if not now, in the future.. These posts are open to the web and anyone can search for...
Julie, I've never had the extreme spasms (thank goodness) but at times have gone
for days with constant cramping in my legs. My doctor told me to try Tonic...
I fell last night and quickly realized I couldn't walk on my left foot. We went through the ER today and found I have broke the cuboid bone in my left foot....
I had a slightly different situation, I fell and fractured the fibula, they thought they might have to put in a plate, but after reviewing the x-rays, they...
Thanks to everyone for their suggestions. Geri I will try the tonic water if I can get him to drink it. He's just so miserable and can't stay focused on...
My daughter broke her left foot on Christmas Day and about three weeks ago, she broke her right foot. She has CMT1A. It is on the outside of the foot. I am...
Just an update....I now have both K attachments to my AFOs and they are working fine. Hardly any sciatica...no lumbar pain. I have learned to do a stretch in...
Hi Melody, glad your new kafo is working out for you. Do you have any pictures of what exactly it looks like? Also I would be interested in the stretch you...
http://www.sparkpeople.com/resource/exercises.asp?exercise=290 Betty, above is an example, but I've been doing it seated as in a chair or on the edge of the...
Hello, I looked on the internet about Muscle Spasms.It sudjest that you stretch every morning and excercise and drink 8 glasses of water a day. I typed in the...
hey daniel I have the same problem and my doctor,( gastrointestinalogist) performed and endoscopy ,, and said I had the sme thing and kept me on prilosect...
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