Hi Ernie,

I'm sure everyone's family is different. So we only go by what is happening in
our own family. It will be interesting as we are always learning. Have a great
weekend!

Sal

--- In CMT-Support@yahoogroups.com, "Ernie's Mail" <EZgoing2@...> wrote:
>
> In my opinion Sal, the study was done on too small a base group to be really
> useful... but they have to start somewhere with these ideas and theory's.
>
> In our case, there are family 'stories' of my great grandmother being stuck
> in bed or a chair from her mid 30's till she passed (but nothing known about
> CMT back then)... My mother was worse off than her dad at any given age.. I
> am farther progressed than my mom was at any given age. My youngest son is
> farther progressed than I was at his age, but his older sister (not
> confirmed yet) is much more mildly affected.. Hard to tell she has it if you
> didn't know what you were looking for.. Her daughter (again, not confirmed
> but should be changing that situation later this year or early next), is in
> pretty bad shape already. She can barely walk with out AFO's, hip
> dysplasia, gross and fine motor delays and she is only 2...
>
> It will be interesting to hear what others have to report on the subject..
>
> In any case, thanks for the reply... Hope you have a great weekend my
> friend..
>
> Ernie
>
>
>
>
> ----- Original Message -----
> From: "sal2491" <gbsb2002@...>
> To: <CMT-Support@yahoogroups.com>
> Sent: Friday, July 03, 2009 5:58 PM
> Subject: [CMT-Support] Re: Increased severity over generations of CMT 1A
>
>
> Not me and not my Mom, etc. Ernie. Thanks for the sites.
>
> Sal
>
> >
> > Anyone here find that later generations are affected more severely?
> >
> >
> >
>
>
>
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