Hello Karl :) Your one of the members I often think about. You're certainly not
forgotten here.

You may have noticed that some of us have adopted the use of "dragon" to refer
to the continual struggles in life that 'pop up' unexpectedly. Such an
encompassing & visual icon to infuse into our attitudes to life... especially
with CMT.

I'm *very* happy that you're doing well & are part of a loving support system. A
good many of our families, CMT or not, have found it uncomfortable to discuss
our situation. However, the younger parents seem more open with their children;
maybe because they feel more informed. Much more is known about CMT now. My
parents were 'old school', when many topics were taboo.

I can appreciate learning to work out your attitudes & feelings about CMT by
taking with you info gained from this group. I'm glad you're still part of our
family :)

If we can be of any help, please don't hesitate to post. And thanks for letting
us know you're still around.

~Erin~



----- Original Message -----
From: Karl
To: CMT-Support@yahoogroups.com
Sent: Thursday, January 31, 2008 3:51 PM
Subject: [CMT-Support] Lost but not forgotten, hopefully


Dear Erin and all,
A little while ago Erin posted about people who used
to participate here but who haven't for a while. I feel
like one of them, although I never did contribute much.
I do though read the posts, time available, and try
to follow some of the threads. I do feel a kind of
connection; likely it's having cmt too. But there is a
distance; I'm not as affected as most of the people here.
I guess this last sentence is true. Oh yeah, compared to
someone who doesn't have cmt, I'm quite affected.
Strange to think I'm fortunate to have the cmt that I do have.
And lucky in other ways. I have a large and mostly loving
family, none of whom have any sign of cmt, and
none, really, who want to talk about cmt. It's one of
the good things about this site; it's like a family and the
main topic is cmt. The sharing of information and personal
concerns has been important to me in how I work out my
own thoughts and feelings about having cmt.
Wish you all well, Karl



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