Hi Robyn, I have had scoliosis since I was a kid. I believe it is
pretty common with CMT. When first diagnosed the doctors told me I
would never be able to lift anything heavy or do any strenuous
activities. They were wrong. Also have lower back pain and am very
sensitive to what I sit and lay on. One weird thing with the back
pain is most chairs will bother me but when I go into the woods for
deer hunting I will sit on the ground and lean up against a big tree
and have no pain at all. Even if I sit there for a couple hours
there's no pain. Never figured out why.

Have fun educating that doctor!!
Andy


--- In CMT-Support@yahoogroups.com, LittleTwiny@a... wrote:
> hey Kay,
> Just looked up listed adverse reactions for ya..this is what i
> found...hope it helps...does not list eye problems, but i
personally wouldn't rule it out
> if it is something you are experiencing since you started the drug:
> LEXAPRO is well tolerated by most people. The most commonly
reported side
> effects of LEXAPRO are nausea, insomnia, problems with
ejaculation,
> somnolence, increased sweating, and fatigue. Most of the side
effects experienced by
> patients taking LEXAPRO are mild to moderate and go away with
continued
> treatment, and usually do not cause patients to stop taking
LEXAPRO.
>
> Now I have a question for the group...
> I finally dragged my butt to the dr...basically to address a
lower back
> problem i have been having. I mentioned to the dr that the lower
back hurts and
> he said that the majority of his patients complain of that. I
proceeded to
> tell him that i felt that i may be impinging on a nerve...maybe
due to one of my
> many falls down the stairs or CMT is affecting my lower back
muscles and
> scolosis is setting in....I do feel a curve in the spine..like a
bump at the area
> where the pain seems to generate from. He looked at me as if i had
3 eyes and
> said that he really finds that hard to believe being CMT doesn't
affect other
> muscles besides the feet and the hands and I told him that he has
to hit those
> books again because he is severely outdated. In anycase he decided
to humor me
> and check my spine for scolosis in the old fashioned way by
bending over and
> touching my toes....boy did he feel like an idiot because he found
> something...not sure what it is, he sent me all the way down into
manhattan for xrays
> because he felt like he needed a top bone dr on this...i gotta
wait till monday
> for the results...phew...so my question...how many of us are
experiencing this?
> My mom had it, my grandma, and my oldest sister seems to have the
beginnings
> of it as well. If any of us has been diagnosed with this
problem...what was
> your course of treatment?
> Also, there seems to also be some descrepency with my blood
test...low
> bicarbonate levels in the blood. He's hoping there was a mistake
at the lab and
> is retesting me...what i'm wondering is why wait a whole week to
retest?
> especially if the problem is lab related...he specifically said
let's wait a
> week...hmmmm.
> I understand that a low level of this is usual to those with
kidney disease,
> few lung disease and metabolic reasons are other causes of of low
bicarb
> levels. Symptoms include weakness and fatigue...which is normal
for us CMTers
> anyway. Has any of us had this problem? I'm still tryin to keep
positive, but this
> is a helluva way to kick start the new year...
> Look...I'm still smiling..hope you all are too!
> :) Robyn