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CFSFMExperimental · Experimental Treatment of ME/CFIDS/FMS

Group Information

  • Members: 3401
  • Category: Advice
  • Founded: Jan 28, 1999
  • Language: English
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Activity within 7 days:

1 New Member - 107 New Messages - New Questions

Description

A discussion for Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS, CFIDS) and Fibromyalgia (FMS) patients who are undergoing experimental medical treatments or who are interested in learning about them.

Myalgic encephalomyelitis is an acquired neurological disease with complex global dysfunctions. Pathological dysregulation of the nervous, immune and endocrine systems, cardiovascular abnormalities, impaired cellular energy metabolism and ion transport. Postexertional neuroimmune exhaustion is a prominent and compulsory feature.

The basis of this group is respect for each other and for all experimental treatments.

If you are new to treatment for CFIDS, please check out the Links AND Files section on the left and the lead moderator's site.We encourage you to join a group where you can discuss issues that may be new to you and learn about standard treatments.

Please review the complete list rules in the Files section: This is not a support or political action group but one focused on treatment issues ONLY.NCF and other orgs are off-topic. This is a no-flaming area. If you have strong feelings on an issue, it is best not to post Cite sources of information. The best source is PubMed (MEDLINE) If anything posted on this list is upsetting, please contact the moderators -- our aim is to benefit people and not to stress them -- we will take action. Currently, all posts are moderated.

Check out the Polls. Survey of Treatment Protocol Experiences.

Sub-Groups:

Methylation - Dr.Yasko Full Protocol and Rich Van K's Simplified Protocol
Politics and Definitions

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 166 165 97 154 307
2011 116 122 63 153 92 130 69 83 69 124 71 184
2010 412 314 221 168 149 138 132 296 235 163 74 124
2009 250 355 378 243 394 284 320 277 324 664 498 422
2008 610 571 581 319 476 451 618 282 271 183 320 275
2007 1485 1372 1231 500 864 1093 977 500 508 550 471 343
2006 2259 2107 2839 1981 1872 1682 3058 2419 1530 1109 1173 877
2005 496 766 1266 1129 1487 1445 1649 1575 1053 1294 1246 1777
2004 997 622 719 720 841 631 481 617 526 590 407 396
2003 1615 1438 1080 938 1480 1036 701 950 1025 1025 810 1058
2002 630 633 859 697 1072 1286 964 849 1085 1448 1630 1245
2001 1540 1367 1615 1106 1061 1093 724 698 498 586 662 652
2000 2023 1848 1543 1613 1299 1569 1411 1380 1832 2201 1489 1436
1999 5 619 1440 967 808 305 687 628 694 745 1303
1997 3
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