Personally, I would thihk this would be quite helpful to those whom
read the stories as well as those whom contribute. I believe in 'what goes
around, etc " too.
Blessings
Shan
I'm looking for people willing to periodically recount their
experiences in a ongoing series of blogs on the CFS Phoenix website.
You would committ to regularly give an account of what your life with
CFS is like. How often you would do this would be up to you; every
couple of days, once a week, once every two weeks, something like
that. You dont have to state what that would be - just commit to
doing it with some regularity over time. YOu would send your blog to
me via e-mail and I'll post it on the CFS Phoenix website.
I think its better to commit to something rather than leave completely
open ended.
This would help CFS patient know that they are not alone and give
others some idea of what life with CFS. Not long before Jason died he wrote
"Without the net, i do not know what i would do. I would be all alone.”
I encourage you to help somebody else with CFS by portraying bits of your
life with CFS.
This will also help those without CFS to understand it. Obviously very
very few people without CFS have any idea of what life with CFS is like.
Remember what your life was like before CFS and try to fathom that you would
be experiencing what you are now; its virtually impossible to do. That is the
bridge that needs to gapped between people with CFS and people without it.
You can reach me at:
phoenixcfs@...
or
cortttt@...
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