Would you be willing to share either the specific treatments she recommended or the categories of treatments (i.e. rx drugs, herbs, etc.) as well as what kinds of improvements you've seen?
--- On Sun, 11/22/09, James <js72email-web@...> wrote:
From: James <js72email-web@...> Subject: Re: [CEFSFB] Endocrinologist To: CEFSFB@yahoogroups.com Date: Sunday, November 22, 2009, 7:15 PM
Â
You might try Rachelle Halpern, MD. She is in Lafayette but can work by phone after the initial appointment. She doesn't take insurance but almost all lab work she does is covered by insurance (at least with Medicare). She does a very thorough evaluation and found several abnormalities to treat that no other doctor had found that have helped me. Her new number is 925-253-4425, she had to move to Orinda recently because her office was damaged in that huge rainstorm we had last month. Finally she did talk with me at no charge on the phone before I scheduled my first appointment to make sure she could help me.
James
From: debbietenenbaum <DebbieTenenbaum@ aol.com> To: CEFSFB@yahoogroups. com Sent: Sun, November 22, 2009 1:49:42 PM Subject: [CEFSFB] Endocrinologist
Â
Can anyone recommend an endocrinologist in the East Bay, preferably Berkeley or Oakland, who knows about CFIDS/FM? Someone who can work with the HPA axis, help balance adrenal
glands, and detect thyroid problems that don't show up on the regular tests? Thanks.
You might try Rachelle Halpern, MD. She is in Lafayette but can work by phone after the initial appointment. She doesn't take insurance but almost all lab work she does is covered by insurance (at least with Medicare). She does a very thorough evaluation and found several abnormalities to treat that no other doctor had found that have helped me. Her new number is 925-253-4425, she had to move to Orinda recently because her office was damaged in that huge rainstorm we had last month. Finally she did talk with me at no charge on the phone before I scheduled my first appointment to make sure she could help me.
James
From: debbietenenbaum <DebbieTenenbaum@...> To: CEFSFB@yahoogroups.com Sent: Sun, November 22, 2009 1:49:42 PM Subject: [CEFSFB] Endocrinologist
Can anyone recommend an endocrinologist in the East Bay, preferably Berkeley or Oakland, who knows about CFIDS/FM? Someone who can work with the HPA axis, help balance adrenal
glands, and detect thyroid problems that don't show up on the regular tests? Thanks.
Good idea, my vit D was low.. i have been taking about 4000 iu a day.. forgot about the lysine though.. thanks for the reminder- still sick.
sick of living in moldy, damp garage... i have covered the concrete floors-- but still freakn cold in here! have heat though... but drafty as all get out!
Chuck, Vitamin D can help your immune system a lot, but you should get your blood level checked first. The other thing that helps immune system and specifically herpes is the amino acid L-lysine (although don't overdo it or you end up with a arginine deficiency which could be bad for your heart). My cat's vet prescribed lysine for his frequent respiratory infections. And since starting extra vitamin D (I take 3000-4000 IU/day) and L-lysine last year I've had way fewer flu-like feelings, colds, and cold sores.
Chuck, Vitamin D can help your immune system a lot, but you should get your blood level checked first. The other thing that helps immune system and specifically herpes is the amino acid L-lysine (although don't overdo it or you end up with a arginine deficiency which could be bad for your heart). My cat's vet prescribed lysine for his frequent respiratory infections. And since starting extra vitamin D (I take 3000-4000 IU/day) and L-lysine last year I've had way fewer flu-like feelings, colds, and cold sores.
Can anyone recommend an endocrinologist in the East Bay, preferably Berkeley or
Oakland, who knows about CFIDS/FM? Someone who can work with the HPA axis, help
balance adrenal glands, and detect thyroid problems that don't show up on the
regular tests? Thanks.
Debbie T
Chuck, Vitamin D can help your immune system a lot, but you should get your blood level checked first. The other thing that helps immune system and specifically herpes is the amino acid L-lysine (although don't overdo it or you end up with a arginine deficiency which could be bad for your heart). My cat's vet prescribed lysine for his frequent respiratory infections. And since starting extra vitamin D (I take 3000-4000 IU/day) and L-lysine last year I've had way fewer flu-like feelings, colds, and cold sores.
For an application and brochure with complete course information, click here.
Applications are due December 18, 2009.
An Online Course for Practitioners and Activists in Human Rights, Public Health and Development Organizations and Movements
February 1 – April 1, 2010 (9 weeks, 5 hours per week)
The Disability, Sexuality and Rights Online Training provides a study of theory and practice for people working in fields such as development, health and rights, including disability and sexuality. The aim is to develop awareness of issues of disability and sexuality and a political perspectiveon disabled people’s sexual rights. Participants develop their ability to work in inclusive and holistic ways that further health and rights.
Why take this course?
* Disabled people are often excluded or discriminated against in relation to their sexuality by health, development and rights organizations because they are not considered sexual or they are thought to be vulnerable or uncontrolled sexually.
* Disability rights activists and service providers often disregard sexuality issues and rights in favor of issues considered more pressing and appropriate like employment and physical access.
* Sexuality is an important part of life, identity, society and culture for all people, including people with disabilities. It can be a source of pleasure and pain, empowerment and oppression. It cannot be ignored.
Key Questions and Content
* What is disability? What is sexuality? * What do human rights have to do with disability and sexuality? * Why are disabled people discriminated against in relation to sexuality? * Why is sexuality important to everyone, including disabled people? Why is sexuality important for health, development and rights organizations to consider? * How does the experience and politics of disability in the global South impact theory and practice on disability rights? How are people organizing and campaigning around these issues? * How can we advance the rights, health and well-being of people with disabilities?
Accessibility
People with disabilities are encouraged to apply for this training, which has been designed and tested to be accessible to people with various disabilities and those with slower computers and internet connection speeds. We will work with participants to adapt the course as necessary to meet needs and enable full participation.
Format and Workload
The course will be conducted entirely online in English with presentations, reading, discussion, research, activities and a final project. Special technology is not required, except a computer that can read Microsoft Word and Power Point documents and with Adobe Reader. Also required is internet access to download/upload documents and comments for 20-30 minutes, 2-3 times a week throughout the course. The Institute will not be done in real time; participants can complete the assignments at their convenience within the time parameters.
Organizers and Resource People
This training is organized and taught by an international group of academics and activists in the disability rights field who specialize in sexual and reproductive rights and health from a global South perspective: Anita Ghai (India), Caroline Earle (USA), Ekaete Judith Umoh (Nigeria), and Janet Price (UK). Full bios in brochure at http://www.creaworld.org/
For an application andbrochure with complete course information, click here. Applications are due December 18, 2009.
For more information, contact Caroline Earle - cearle@... +1-212-599-1071).
I have had the big swollen glands in my neck and lower mouth...since tuesday.. antibiotics are not helping- i know i had a "canker" sore last week ... before my mini make out session --- it had been over 2 years..
i am wondering if the "canker" sore got infected with saliva.. and now there is some strange viral infection going on? i am gargleing with salt water ---- but wondering about herpes- my first inital outbreak of herpes happend at 21 or 22 .... and seemed very similiar to this.. not sure what is going on..
it was great to have 5 days off work last week.... and a couple of them i had fun..(I am disappointed that I missed all the cool people in the ART group) now it seems i am paying the piper- i guess a person with low IGG subclasses, should not be exchanging body fluids- even if it is kissing.. ?? what a bummer!!
It is a question of whether to be so open about this on the list... but I have been to doctor.. with now help.. i'm just being human... and searching for clues.
and thanks for the cool art package!! sorry i missed the cookies!
Thanks for contacting me. I am not aware of any Spanish speaking groups. But I am posting this on the Bay Area CFIDS and FM email discussion list. Perhaps someone out there is interested in starting one.
Or perhaps a Spanish speaker can offer to translate at one of the in-person groups.
I am also including a list of Bay Area Resources below. Perhaps you can inquire with them as well.
Sharon
Below are websites that include information about (chronic fatigue immune dysfunction, environmental illness, lyme disease, and fibromyalgia) resources in the San Francisco Bay Area. If you still have questions after looking at these sites, please post your question on my email discussion group.
CEFSB EMAIL DISCUSSION GROUP
This is my email discussion group for discussing CFIDS, Environmental Illness, and fibromyalgia in the SF Bay Area. You can post your inquiries there. http://health.groups.yahoo.com/group/CEFSFB
SAN FRANCISCO CFIDS AND FIBROMYALGIA SELF-HELP AND ADVOCACY GROUP
To get on the group's email list, send a blank email to SFFSSG-subscribe@yahoogroups.com<mailto:SFFSSG-subscribe@yahoogroups.com> or go to http://health.groups.yahoo.com/group/SFFSSG/. If you are planning to go to meetings, I strongly suggest that you get on the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change. If you don't have email, call Cosi 415 564 2275 or Deborah 415 332 5279.
DISCLAIMER
I do NOT necessarily vouch for or endorse: the organizations and individuals associated with the following websites; the accuracy of information they provide; the competency of health care providers who are listed; or any consequences of using this information. Individuals are responsible for independently evaluating the credentials and competency of health care providers whom they choose to see.
BAY AREA DOCTORS
The San Francisco CFIDS and Fibromyalgia Self-Help and Advocacy group. This group has a compilation of various health care provider referral lists. They also have a collection of health care provider evaluation forms filled out by people who have seen them. You can see this compilation at the meeting. Call Sarah, to make sure that she will be attending, and bringing the booklet. 415 989 0091 .
A Listing of Bay Area Practicioners Specializing in CFIDS and FMS http://pages.sbcglobal.net/choandjewel/cfids/docs.htm
California, USA ME/CFS & FM Good Doctor List. http://www.co-cure.org/USA_CA.htm
This is the website for the SF CFIDS support group (currently on hiatus). There is a list of RECOMMENDED DOCTORS and general information about resources in the SF Bay Area. www.immunesupport.com/supportgroups.cfm?id=5<http://www.immunesupport.com/supportgroups.cfm?id=5>. At the very of "Resource Information" there is support group info.
BAY AREA GROUPS. Some also have info about doctors.
Northern California directory of support groups and resources. www.cacfsfms.org<http://www.cacfsfms.org/>
Ramon is starting a support/social group in San Francisco for gay men with fibromyalgia and CFIDS. 415 970 0770 .
Berkeley CFIDS support group. Currently defunct. http://health.groups.yahoo.com/group/BerkeleyCFIDSSupportGroup/
Berkeley Fibromyalgia support group. Deborah Rich fibro@...<mailto:fibro@...>. 510-644-3273 (M-F til 8pm, Sat/Sun til 6pm)
Environmental Health Network www.cacfsfms.org<http://www.cacfsfms.org/>.
General all-purpose yahoo website for MCS people in the Bay Area Group home page: http://groups.yahoo.com/group/bayareamcslist
http://health.groups.yahoo.com/group/BayCanaryGrapevine/?yguid=154307886 Support and information exchange for the chemically injured of the greater San Francisco Bay Area
http://groups.google.com/group/sfbayareachronicpain This group is for people of all ages who live in or near the SF Bay Area in California who suffer from invisible illnesses like Fibromyalgia, Myofascial Pain and others.
This has info about Sonoma County. www.cndsinfo.net<http://www.cndsinfo.net/>
San JoaquinCFIDS ME FMS support network http://www.med-help.com/Link5521-A.html
Hayward/Tri-Cities Support Group home.earthlink.net/~rolee/index.html
self-help program http://cfidsselfhelp.org<http://cfidsselfhelp.org/>
OTHER RESOURCES
INVISIBLE DISABILITIES GROUP - LOW FEE dianatoad@... I facilitate a support group for people with hidden physical disabilities--including chronic pain, chronic illness, and physical differences of various kinds. Diana, at 510-388-4932
Bay Area Lyme Disease Support Group Pages. http://lyme.ednixon.com<http://lyme.ednixon.com/>
S.F. Lyme Disease Support Group. Email or phone Diana at sf_lyme@..., (415) 786-9010 . "Regular meetings on first Thursday of the month: please email or call Diana to confirm location and time. "
Marin Lyme Disease Support Group email list http://health.groups.yahoo.com/group/marin-lyme
East Bay lyme disease support group. www.lymegroups.org/eastbay<http://www.lymegroups.org/eastbay>. Their email list http://health.groups.yahoo.com/group/EastBayLyme
Info about bay area celiac support groups and to get on their mailing list. deutschm@...<mailto:deutschm@...>
DISABILITY BENEFITS AND RIGHTS Independent Living Resource Center. http://ilrcsf.org/ Applying for disability/public benefits. How to request reasonable accomodations. Disabled rights. Assistive technology. Assistance finding housing.
SUICIDE PREVENTION San Francisco http://www.sfsuicide.org/ 24 hours hotline 415 781 0500 .
Please let me know if any info needs to be updated. Please also forward your suggestions to add to this list.
To: selby@... CC: selbygang@...; wellnessctr@...; trsusie@...; cfids_self_help@...; sharpark@...; erfreeman@... Subject: Support groups From: Jose.Trejo@... Date: Wed, 18 Nov 2009 09:23:51 -0800
Hello, I was just curious if you have, or happen to know of, any fibromyalgia support groups for Spanish speaking people in the bay area? I work at Kaiser and get a decent amount of patient's with fibromyalgia but do not know where to send them for support in their language. Thanks for any help.
Jose E. Trejo, MSW South San Francisco Adult Department of Psychiatry (650) 742-2755
NOTICE TO RECIPIENT: If you are not the intended recipient of this e-mail, you are prohibited from sharing, copying, or otherwise using or disclosing its contents. If you have received this e-mail in error, please notify the sender immediately by reply e-mail and permanently delete this e-mail and any attachments without reading, forwarding or saving them. Thank you.
Bing brings you maps, menus, and reviews organized in one place. Try it now.
i will be at the gallery one last time, on saturday, nov. 21st from 2-4pm and i would love to see you. the exhibit will continue until nov.24th.
with much love and creative spark,
lori
xoxo
The Bisexual Art Project Date: Now thru November 24, 2009 Time: I will be at the gallery on Saturday, Nov. 21st from 2-4pm Place: Good Vibrations Polk Street Gallery, 1620 Polk Street (at Sacramento Street) San Francisco, CA 94109
Good Vibrations and Jack Mohr, SFSU graduate student in Human Sexuality Studies, are proud to present an exhibition of visual works exploring the wide variety of experiences and expressions of bisexuality.
Jenny~ I'm so sorry. I hope everything subsides into quiet and peace and wellness. Pls. call if you need any help. Do you need any help?
And Sarah, take good care of your precious self~ it's a beautiful day to rest~ that's what I'm doing~ only got up at 1pm!!
May we all be well and happy! Deborah
--- On Wed, 11/18/09, Jennifer Holbrook <jennilor@...> wrote:
From: Jennifer Holbrook <jennilor@...> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups.com Date: Wednesday, November 18, 2009, 9:13 PM
I'm almost positive I won't be coming today after all. My mother is having angina (she already has congestive heart failure) and it won't calm down (one of the crazy things happening today), and I have to stay with her.
Jenny
--- On Wed, 11/18/09, Jennifer Holbrook <jennilor@sbcglobal. net> wrote:
From: Jennifer Holbrook <jennilor@sbcglobal. net> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups. com Date: Wednesday, November 18, 2009, 12:29 PM
Hi Sarah,
I'm sorry you're not feeling well. Rest up and take care of yourself.
Jenny
P.S. I'm still hoping to come, but my day has been crazy so far, so if I don't show up it's because I'm swamped.
--- On Wed, 11/18/09, Sarah Glaubman <sglaubman@gmail. com> wrote:
From: Sarah Glaubman <sglaubman@gmail. com> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups. com Date: Wednesday, November 18, 2009, 11:33 AM
I don't think I'm well enough to come. I'm glad it's going to keep going.
I'm almost positive I won't be coming today after all. My mother is having angina (she already has congestive heart failure) and it won't calm down (one of the crazy things happening today), and I have to stay with her.
Jenny
--- On Wed, 11/18/09, Jennifer Holbrook <jennilor@...> wrote:
From: Jennifer Holbrook <jennilor@...> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups.com Date: Wednesday, November 18, 2009, 12:29 PM
Hi Sarah,
I'm sorry you're not feeling well. Rest up and take care of yourself.
Jenny
P.S. I'm still hoping to come, but my day has been crazy so far, so if I don't show up it's because I'm swamped.
--- On Wed, 11/18/09, Sarah Glaubman <sglaubman@gmail. com> wrote:
From: Sarah Glaubman <sglaubman@gmail. com> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups. com Date: Wednesday, November 18, 2009, 11:33 AM
I don't think I'm well enough to come. I'm glad it's going to keep going.
I'm sorry you're not feeling well. Rest up and take care of yourself.
Jenny
P.S. I'm still hoping to come, but my day has been crazy so far, so if I don't show up it's because I'm swamped.
--- On Wed, 11/18/09, Sarah Glaubman <sglaubman@...> wrote:
From: Sarah Glaubman <sglaubman@...> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups.com Date: Wednesday, November 18, 2009, 11:33 AM
I don't think I'm well enough to come. I'm glad it's going to keep going.
Thanks for the reminder, James. I've been really tired this week, but I'm going to try to make it tomorrow.
Jenny
--- On Tue, 11/17/09, mizz yelli <mizzyelli@...> wrote:
From: mizz yelli <mizzyelli@...> Subject: Re: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday) To: CEFSFB@yahoogroups.com Date: Tuesday, November 17, 2009, 3:52 PM
hi james, i hope to make it this week. i've been too sick for the last couple but will hopefully be able to join tomorrow.
thanks!
~ariyele
From: jmsschin <js72email-web@ yahoo.com> To: CEFSFB@yahoogroups. com Sent: Tue, November 17, 2009 11:56:07 AM Subject: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday)
Hi Everyone,
We will be meeting tomorrow at 2pm (unless I don't hear back from anyone).
We have changed our meeting place to: Au Coquelet Cafe 2000 University Ave, Berkeley, CA 94704
It is indoors and centrally located in Berkeley, a block or two from bus and BART as well as street parking.
hi james, i hope to make it this week. i've been too sick for the last couple but will hopefully be able to join tomorrow.
thanks!
~ariyele
From: jmsschin <js72email-web@...> To: CEFSFB@yahoogroups.com Sent: Tue, November 17, 2009 11:56:07 AM Subject: [CEFSFB] East Bay Cafe Meeting Tomorrow (Wednesday)
Hi Everyone,
We will be meeting tomorrow at 2pm (unless I don't hear back from anyone).
We have changed our meeting place to: Au Coquelet Cafe 2000 University Ave, Berkeley, CA 94704
It is indoors and centrally located in Berkeley, a block or two from bus and BART as well as street parking.
Hi Everyone,
We will be meeting tomorrow at 2pm (unless I don't hear back from anyone).
We have changed our meeting place to:
Au Coquelet Cafe
2000 University Ave, Berkeley, CA 94704
It is indoors and centrally located in Berkeley, a block or two from bus and
BART as well as street parking.
James
I am really sorry I missed the group..I hope the art time will happen again.
Lori, I trust you got a ride home?
i was in a major meltdown on saturday... i could have used the support around going out on disability...i couldn't get off the floor though - many tears where shed that day.
Subject: Re: [CEFSFB] CFIDS/FM Group Meets Nov 14 - ART TIME!!
Thank you!
It was really very healing for me to be in the presence of so many wonderful people who are also suffering, and also making it through. Josh and I both felt very welcomed.
I plan on being there today - first time - with my partner (my main support person, who could also use some support). My understanding from previous posts is that it's OK to bring a support person to the group? Please let me know if this is not the case.
***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###***
This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT come to the meeting if you are CONTAGIOUS.
THE INFORMATION WE SHARE AT THESE MEETINGS IS **CONFIDENTIAL* *.
BY ATTENDING THIS MEETING, YOU AGREE TO NOT SHARE INFORMATION ABOUT MEMBERS WITH THOSE OUTSIDE OF THE GROUP.
[Disclaimer: I cannot guarantee that all members will abide by this rule.]
The SF Fibromyalgia and CFIDS Self-Help and Advocacy Group meets Saturday, November 14, 2-4 pm with David leading the first hour.
We continue with the following format: an hour for individual sharing (4-6 minutes each) followed by an hour devoted to a specific topic. HOLD EVERYTHING !! SPECIAL 2ND HALF THIS MONTH IS ART!!!
ABOUT ART FOR NOVEMBER: Please let me know if you're planning to come, so we know how many tables to set up.
To protect the tables, we will need table cloths. Please let me know if you can bring one. Also, I ask that you refrain from bringing very "messy" art materials, like oil paint, or anything that can't easily be cleaned up.
Don't forget to bring any CFIDS or FM-inspired art that you have already made.
Looking forward to this!! This should be fun!!
Sharon
Here's a message from Lori about our NOVEMBER meeting:
we'll use the first hour of our support group to check-in, as usual. but, instead of using the second hour for discussion, we thought it would be fun to play.
we'll bring some art supplies, but feel free to bring some of your own: scissors, glue sticks, paper, magazines, old calendars, ribbon, yarn, stickers, crayons, etc.
we could make collages, or holiday cards or postcards for cfids/fm political advocacy or whatever floats your boat. ***we especially encourage you to create art that is inspired by your illnesses, and your struggles with them.*** you could even bring in your own art project to work on: your novel, your knitting, your newest craft-y obssesion, what ever you want to do, the point is to have fun.
also bring art you have already created, especially if it is something inspired by you having CFIDS or FM.
LOCATION Davies Campus of the California Pacific Medical Center, at Castro St. and Duboce St. Room B2-3. Enter the North Tower, take the elevator to level B. It is near the cafeteria.
Parking in the garage is free. Take a ticket when you enter and insert it into the slot when you leave. Sometimes you won't receive a card when you enter. In either case, you won't be charged. Public transportation: N, J, 22, 24, 6, 7, 66, 71. Wheelchair accessible.
Please make an effort to be on time to the meeting, as late arrivals can be disruptive, especially to those who are sharing. It is better to come to the meeting late, than not at all, but please make a concerted effort to come on time.
DECEMBER 12: PACING JANUARY 9: WEEKLY TARGETS: SETTING AND MEETING GOALS FEBRUARY 13: STRESS MANAGEMENT
To receive meeting notices, get on the group's email list by sending a blank email to SFFSSG-subscribe@ yahoogroups. com You will receive an email with a link that you will need to click in order to confirm your subscription. You can also get on the email list by going to http://health. groups.yahoo. com/group/ SFFSSG/. If you are planning to go to meetings, I strongly suggest that you get on the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change.
Please note that SFFSSG is an email newsletter, ***NOT*** an email discussion group. This email list will only have administrative messages to the group. If you're interested in an email discussion group for the Bay Area, check out http://health. groups.yahoo. com/ group/CEFSFB .
Questions, comments, suggestions: Email jrqbear@juno. com or if you don't have email, call phone contacts. Please don't be offended if we take a while to respond to email or not at all. We get A LOT of inquiries and we do the best we can. Again, the email discussion group is a great place to get info about the Bay Area.
Jim Remer Assistant Moderator
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by Bruce Campbell. Campbell also offers a free on-line course, and sometimes an in-person course. Phone: 650/856-2109. Email:CFIDS_ Self_Help@ Website: www.cfidsselfhelp. org.
It was really very healing for me to be in the presence of so many wonderful people who are also suffering, and also making it through. Josh and I both felt very welcomed.
Hope to see you again next month.
Best,
Pella
On Sun, Nov 15, 2009 at 11:33 AM, Deborah Temple <deborahtemple@...> wrote:
Hi Pella~ It was great to have you guys at the meeting yesterday~ our first ever Art Day~ and hope it was useful/helpful/inspiring for both of you!
Hope to see you guys next month! Deborah ( :
--- On Sat, 11/14/09, Pella Schafer <Pella1@...> wrote
I plan on being there today - first time - with my partner (my main support person, who could also use some support). My understanding from previous posts is that it's OK to bring a support person to the group? Please let me know if this is not the case.
***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###***
This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT come to the meeting if you are CONTAGIOUS.
THE INFORMATION WE SHARE AT THESE MEETINGS IS **CONFIDENTIAL* *.
BY ATTENDING THIS MEETING, YOU AGREE TO NOT SHARE INFORMATION ABOUT MEMBERS WITH THOSE OUTSIDE OF THE GROUP.
[Disclaimer: I cannot guarantee that all members will abide by this rule.]
The SF Fibromyalgia and CFIDS Self-Help and Advocacy Group meets Saturday, November 14, 2-4 pm with David leading the first hour.
We continue with the following format: an hour for individual sharing (4-6 minutes each) followed by an hour devoted to a specific
topic. HOLD EVERYTHING !! SPECIAL 2ND HALF THIS MONTH IS ART!!!
ABOUT ART FOR NOVEMBER: Please let me know if you're planning to come, so we know how many tables to set up.
To protect the tables, we will need table cloths. Please let me know if you can bring one. Also, I ask that you refrain from bringing very "messy" art materials, like oil paint, or anything that can't easily be cleaned up.
Don't forget to bring any CFIDS or FM-inspired art that you have already made.
Looking forward to this!! This should be fun!!
Sharon
Here's a message from Lori about our NOVEMBER meeting:
we'll use the first hour of our support group to check-in, as usual. but, instead of using the second hour for discussion, we thought it would be fun to play.
we'll bring some art supplies, but feel free to bring some of your own: scissors, glue sticks, paper, magazines, old calendars, ribbon, yarn, stickers, crayons, etc.
we could make collages, or holiday cards or postcards for cfids/fm political advocacy or whatever floats your boat. ***we especially encourage you to create art that is
inspired by your illnesses, and your struggles with them.*** you could even bring in your own art project to work on: your novel, your knitting, your newest craft-y obssesion, what ever you want to do, the point is to have fun.
also bring art you have already created, especially if it is something inspired by you having CFIDS or FM.
LOCATION Davies Campus of the California Pacific Medical Center, at Castro St. and Duboce St. Room B2-3. Enter the North Tower, take the
elevator to level B. It is near the cafeteria.
Parking in the garage is free. Take a ticket when you enter and insert it into the slot when you leave. Sometimes you won't receive a card when you enter. In either case, you won't be charged. Public
transportation: N, J, 22, 24, 6, 7, 66, 71. Wheelchair accessible.
Please make an effort to be on time to the meeting, as late arrivals can be disruptive, especially to those who are sharing. It is
better to come to the meeting late, than not at all, but please make a concerted effort to come on time.
DECEMBER 12: PACING JANUARY 9: WEEKLY TARGETS: SETTING AND MEETING GOALS
FEBRUARY 13: STRESS MANAGEMENT
To receive meeting notices, get on the group's email list by sending a blank email to SFFSSG-subscribe@ yahoogroups. com You will receive an
email with a link that you will need to click in order to confirm your subscription. You can also get on the email list by going to http://health. groups.yahoo. com/group/ SFFSSG/. If you are planning
to go to meetings, I strongly suggest that you get on
the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change.
Please note that SFFSSG is an email newsletter, ***NOT*** an email
discussion group. This email list will only have administrative messages to the group. If you're interested in an email discussion group for the Bay Area, check out http://health. groups.yahoo. com/
group/CEFSFB .
Questions, comments, suggestions: Email jrqbear@juno. com or if you don't have email, call phone contacts. Please don't be offended if we
take a while to respond to email or not at all. We get A LOT of inquiries and we do the best we can. Again, the email discussion
group is a great place to get info about the Bay Area.
Jim Remer Assistant Moderator
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by Bruce Campbell. Campbell also offers a free on-line course, and
sometimes an in-person course. Phone: 650/856-2109. Email:CFIDS_ Self_Help@ Website: www.cfidsselfhelp. org.
Hi Pella~ It was great to have you guys at the meeting yesterday~ our first ever Art Day~ and hope it was useful/helpful/inspiring for both of you!
Hope to see you guys next month! Deborah ( :
--- On Sat, 11/14/09, Pella Schafer <Pella1@...> wrote
I plan on being there today - first time - with my partner (my main support person, who could also use some support). My understanding from previous posts is that it's OK to bring a support person to the group? Please let me know if this is not the case.
***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###***
This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT come to the meeting if you are CONTAGIOUS.
THE INFORMATION WE SHARE AT THESE MEETINGS IS **CONFIDENTIAL* *.
BY ATTENDING THIS MEETING, YOU AGREE TO NOT SHARE INFORMATION ABOUT MEMBERS WITH THOSE OUTSIDE OF THE GROUP.
[Disclaimer: I cannot guarantee that all members will abide by this rule.]
The SF Fibromyalgia and CFIDS Self-Help and Advocacy Group meets Saturday, November 14, 2-4 pm with David leading the first hour.
We continue with the following format: an hour for individual sharing (4-6 minutes each) followed by an hour devoted to a specific topic. HOLD EVERYTHING !! SPECIAL 2ND HALF THIS MONTH IS ART!!!
ABOUT ART FOR NOVEMBER: Please let me know if you're planning to come, so we know how many tables to set up.
To protect the tables, we will need table cloths. Please let me know if you can bring one. Also, I ask that you refrain from bringing very "messy" art materials, like oil paint, or anything that can't easily be cleaned up.
Don't forget to bring any CFIDS or FM-inspired art that you have already made.
Looking forward to this!! This should be fun!!
Sharon
Here's a message from Lori about our NOVEMBER meeting:
we'll use the first hour of our support group to check-in, as usual. but, instead of using the second hour for discussion, we thought it would be fun to play.
we'll bring some art supplies, but feel free to bring some of your own: scissors, glue sticks, paper, magazines, old calendars, ribbon, yarn, stickers, crayons, etc.
we could make collages, or holiday cards or postcards for cfids/fm political advocacy or whatever floats your boat. ***we especially encourage you to create art that is
inspired by your illnesses, and your struggles with them.*** you could even bring in your own art project to work on: your novel, your knitting, your newest craft-y obssesion, what ever you want to do, the point is to have fun.
also bring art you have already created, especially if it is something inspired by you having CFIDS or FM.
LOCATION Davies Campus of the California Pacific Medical Center, at Castro St. and Duboce St. Room B2-3. Enter the North Tower, take the elevator to level B. It is near the cafeteria.
Parking in the garage is free. Take a ticket when you enter and insert it into the slot when you leave. Sometimes you won't receive a card when you enter. In either case, you won't be charged. Public transportation: N, J, 22, 24, 6, 7, 66, 71. Wheelchair accessible.
Please make an effort to be on time to the meeting, as late arrivals can be disruptive, especially to those who are sharing. It is
better to come to the meeting late, than not at all, but please make a concerted effort to come on time.
DECEMBER 12: PACING JANUARY 9: WEEKLY TARGETS: SETTING AND MEETING GOALS FEBRUARY 13: STRESS MANAGEMENT
To receive meeting notices, get on the group's email list by sending a blank email to SFFSSG-subscribe@ yahoogroups. com You will receive an email with a link that you will need to click in order to confirm your subscription. You can also get on the email list by going to http://health. groups.yahoo. com/group/ SFFSSG/. If you are planning to go to meetings, I strongly suggest that you get on
the email list so that you can receive important notices. While meeting times and location will probably be the same every month, they are subject to change.
Please note that SFFSSG is an email newsletter, ***NOT*** an email discussion group. This email list will only have administrative messages to the group. If you're interested in an email discussion group for the Bay Area, check out http://health. groups.yahoo. com/ group/CEFSFB .
Questions, comments, suggestions: Email jrqbear@juno. com or if you don't have email, call phone contacts. Please don't be offended if we take a while to respond to email or not at all. We get A LOT of inquiries and we do the best we can. Again, the email discussion
group is a great place to get info about the Bay Area.
Jim Remer Assistant Moderator
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by Bruce Campbell. Campbell also offers a free on-line course, and sometimes an in-person course. Phone: 650/856-2109. Email:CFIDS_ Self_Help@ Website: www.cfidsselfhelp. org.
yay pella! i'm glad you're coming. and it's totally cool to bring your partner.
xoxo
lori
In a message dated 11/14/2009 12:41:27 P.M. Pacific Standard Time, Pella1@... writes:
I plan on being there today - first time - with my partner (my main support person, who could also use some support). My understanding from previous posts is that it's OK to bring a support person to the group? Please let me know if this is not the case.
I plan on being there today - first time - with my partner (my main support person, who could also use some support). My understanding from previous posts is that it's OK to bring a support person to the group? Please let me know if this is not the case.
Best,
Pella
On Wed, Nov 11, 2009 at 6:31 PM, Jim <jrqbear@...> wrote:
HELLO FABULOUS PEOPLE! - Saturday, NOVEMBER 14
***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###***
This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT come to
the meeting if you are CONTAGIOUS.
THE INFORMATION WE SHARE AT THESE MEETINGS IS **CONFIDENTIAL**.
BY ATTENDING THIS MEETING, YOU AGREE TO NOT SHARE INFORMATION ABOUT MEMBERS WITH THOSE OUTSIDE OF THE GROUP.
[Disclaimer: I cannot guarantee that all members will abide by this rule.]
The SF Fibromyalgia and CFIDS Self-Help and Advocacy Group meets
Saturday, November 14, 2-4 pm with David leading the first hour.
We continue with the following format: an hour for individual
sharing (4-6 minutes each) followed by an hour devoted to a specific
topic. HOLD EVERYTHING !! SPECIAL 2ND HALF THIS MONTH IS ART!!!
ABOUT ART FOR NOVEMBER:
Please let me know if you're planning to come, so we know how many tables to set up.
To protect the tables, we will need table cloths. Please let me know if you can bring one. Also, I ask that you refrain from bringing very "messy" art materials, like oil paint, or anything that can't easily be cleaned up.
Don't forget to bring any CFIDS or FM-inspired art that you have already made.
Looking forward to this!! This should be fun!!
Sharon
Here's a message from Lori about our NOVEMBER meeting:
we'll use the first hour of our support group to check-in, as usual. but, instead of using the second hour for discussion, we thought it would be fun to play.
we'll bring some art supplies, but feel free to bring some of your own: scissors, glue sticks, paper, magazines, old calendars, ribbon, yarn, stickers, crayons, etc.
we could make collages, or holiday cards or postcards for cfids/fm political advocacy or whatever floats your boat. ***we especially encourage you to create art that is inspired by your illnesses, and your struggles with them.*** you could even bring in your own art project to work on: your novel, your knitting, your newest craft-y obssesion, what ever you want to do, the point is to have fun.
also bring art you have already created, especially if it is something inspired by you having CFIDS or FM.
LOCATION
Davies Campus of the California Pacific Medical Center, at Castro
St. and Duboce St. Room B2-3. Enter the North Tower, take the
elevator to level B. It is near the cafeteria.
Parking in the garage is free. Take a ticket when you enter and
insert it into the slot when you leave. Sometimes you won't receive a
card when you enter. In either case, you won't be charged. Public
transportation: N, J, 22, 24, 6, 7, 66, 71. Wheelchair accessible.
Please make an effort to be on time to the meeting, as late arrivals
can be disruptive, especially to those who are sharing. It is better
to come to the meeting late, than not at all, but please make a
concerted effort to come on time.
DECEMBER 12: PACING
JANUARY 9: WEEKLY TARGETS: SETTING AND MEETING GOALS
FEBRUARY 13: STRESS MANAGEMENT
To receive meeting notices, get on the group's email list by sending a
blank email to SFFSSG-subscribe@yahoogroups.com You will receive an
email with a link that you will need to click in order to confirm
your subscription. You can also get on the email list by going to http://health.groups.yahoo.com/group/SFFSSG/. If you are planning
to go to meetings, I strongly suggest that you get on the email list
so that you can receive important notices. While meeting times and
location will probably be the same every month, they are subject to
change.
Please note that SFFSSG is an email newsletter, ***NOT*** an email
discussion group. This email list will only have administrative
messages to the group. If you're interested in an email discussion
group for the Bay Area, check out http://health.groups.yahoo.com/
group/CEFSFB .
Questions, comments, suggestions: Email jrqbear@... or if you
don't have email, call phone contacts. Please don't be offended if we
take a while to respond to email or not at all. We get A LOT of
inquiries and we do the best we can. Again, the email discussion group
is a great place to get info about the Bay Area.
Jim Remer
Assistant Moderator
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by
Bruce Campbell. Campbell also offers a free on-line course, and
sometimes an in-person course. Phone: 650/856-2109.
Email:CFIDS_Self_Help@ Website: www.cfidsselfhelp.org.
i'm looking forward to making art with you on saturday at the sf cfs/fm group. deborah will be giving me and my art supplies a ride to group, but i will need a ride back home. i live at 18th ave & judah in the sunset. thanks for your help.
i'm looking forward to making art with you on saturday at the sf cfs/fm group. deborah will be giving me and my art supplies a ride to group, but i will need a ride back home. i live at 18th ave & judah in the sunset. thanks for your help.
HELLO FABULOUS PEOPLE! - Saturday, NOVEMBER 14
***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###***
This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT come to
the meeting if you are CONTAGIOUS.
THE INFORMATION WE SHARE AT THESE MEETINGS IS **CONFIDENTIAL**.
BY ATTENDING THIS MEETING, YOU AGREE TO NOT SHARE INFORMATION ABOUT MEMBERS WITH
THOSE OUTSIDE OF THE GROUP.
[Disclaimer: I cannot guarantee that all members will abide by this rule.]
The SF Fibromyalgia and CFIDS Self-Help and Advocacy Group meets
Saturday, November 14, 2-4 pm with David leading the first hour.
We continue with the following format: an hour for individual
sharing (4-6 minutes each) followed by an hour devoted to a specific
topic. HOLD EVERYTHING !! SPECIAL 2ND HALF THIS MONTH IS ART!!!
ABOUT ART FOR NOVEMBER:
Please let me know if you're planning to come, so we know how many tables to set
up.
To protect the tables, we will need table cloths. Please let me know if you can
bring one. Also, I ask that you refrain from bringing very "messy" art
materials, like oil paint, or anything that can't easily be cleaned up.
Don't forget to bring any CFIDS or FM-inspired art that you have already made.
Looking forward to this!! This should be fun!!
Sharon
Here's a message from Lori about our NOVEMBER meeting:
we'll use the first hour of our support group to check-in, as usual. but,
instead of using the second hour for discussion, we thought it would be fun to
play.
we'll bring some art supplies, but feel free to bring some of your own:
scissors, glue sticks, paper, magazines, old calendars, ribbon, yarn, stickers,
crayons, etc.
we could make collages, or holiday cards or postcards for cfids/fm political
advocacy or whatever floats your boat. ***we especially encourage you to create
art that is inspired by your illnesses, and your struggles with them.*** you
could even bring in your own art project to work on: your novel, your knitting,
your newest craft-y obssesion, what ever you want to do, the point is to have
fun.
also bring art you have already created, especially if it is something
inspired by you having CFIDS or FM.
LOCATION
Davies Campus of the California Pacific Medical Center, at Castro
St. and Duboce St. Room B2-3. Enter the North Tower, take the
elevator to level B. It is near the cafeteria.
Parking in the garage is free. Take a ticket when you enter and
insert it into the slot when you leave. Sometimes you won't receive a
card when you enter. In either case, you won't be charged. Public
transportation: N, J, 22, 24, 6, 7, 66, 71. Wheelchair accessible.
Please make an effort to be on time to the meeting, as late arrivals
can be disruptive, especially to those who are sharing. It is better
to come to the meeting late, than not at all, but please make a
concerted effort to come on time.
FUTURE MEETINGS & TOPICS (2nd Saturday, 2:00-4:00):
DECEMBER 12: PACING
JANUARY 9: WEEKLY TARGETS: SETTING AND MEETING GOALS
FEBRUARY 13: STRESS MANAGEMENT
To receive meeting notices, get on the group's email list by sending a
blank email to SFFSSG-subscribe@yahoogroups.com You will receive an
email with a link that you will need to click in order to confirm
your subscription. You can also get on the email list by going to
http://health.groups.yahoo.com/group/SFFSSG/. If you are planning
to go to meetings, I strongly suggest that you get on the email list
so that you can receive important notices. While meeting times and
location will probably be the same every month, they are subject to
change.
Please note that SFFSSG is an email newsletter, ***NOT*** an email
discussion group. This email list will only have administrative
messages to the group. If you're interested in an email discussion
group for the Bay Area, check out http://health.groups.yahoo.com/
group/CEFSFB .
Questions, comments, suggestions: Email jrqbear@... or if you
don't have email, call phone contacts. Please don't be offended if we
take a while to respond to email or not at all. We get A LOT of
inquiries and we do the best we can. Again, the email discussion group
is a great place to get info about the Bay Area.
Jim Remer
Assistant Moderator
***--From CFIDS Self-Help: Materials for Alumni/On-going Groups by
Bruce Campbell. Campbell also offers a free on-line course, and
sometimes an in-person course. Phone: 650/856-2109.
Email:CFIDS_Self_Help@ Website: www.cfidsselfhelp.org.
It's not over yet.. After getting mean emails for my"future Ex landlord" on Friday, I thought all was done.
I left a small kitchen table there- I thought, I will just write it off.. I don’t want to see her.
I get a txt msg from her saying, come get your table.. And your over mopping with natures' mircle damaged some of my newly sealed wood floors- I know the guy that did her floors only charged her $200 so many I could pay him to fix that one spot where the floors buckled..
I'm not sure how to deal with this.. I will call the oakland tennants union.
I am so glad I didn't sign a contract with her.
And I hope if I don’t respond to her txt msg she will go away!
thank you! i have place to look at tomorrow.. it say communicative household.. how do i tell them i have this illness..and sometimes i can't communicate.. ? i guess i'll just show up and see what happens.
Being a trans person is NOT a fault!! Try to keep your mind from attaching to that thought!
What is fmla? Take a deep breath and exhale and use the wkend to keep looking for a place to live. Take your dog w/you. Go for a walk. You've got sunshine to enjoy.
Sit quietly for just a minute and watch yourself breathe~ with NO judgements! Works every time. Hang in there.
Deborah
thanks Deobrah, congradulations on the new laptop! freedom..!!
a part of me thinks it's my fault.. because i'm a "trans guy" not a real guy... i'm wondering if some of her abuse comes from "phobia"
i might try to still get into the place and just stay far out of her way- i know that sounds crazy, but this garage where i live is dark - i'm not sure how much i will be able to afford for rent on fmla- in the winter here with heat bills i pay around $1000.
as far as the real job.. i think i'm taking fmla - i am so stressed with everything, i can't take it anymore! my body is wiped out! teh person i had hired to help me clean got a real job.. .. so i 've got messy 1 room place... maybe i can redecorate here and call it a day.
i really want to drink espresso and scream!! take my dog out to the woods and hike, but my neck and back are in a flare up-- this is a trip
i am so glad i dont have to go through all this alone-------
Sorry, everyone~ I'm having trouble adjusting to my new, used laptop and my last email went out incomplete.
If the woman, who has an illegal unit w/smelly cat pee and no vent for the gas stove, is calling YOU crazy while sending abusive msgs~ it could only get worse.
Your in a process of lifting yourself out of a hole (who hasn't been there?). Keep on doing your process. This is a good time of year to look for a place. Many people tend to move in the summer~ so landlords will be happy to fill their vacant places w/a guy w/good credit and a legitimate, good job. We're all sending you good energy and our wishes for finding a place that fits your needs w/o the crazy parts!!
Blessings, Deborah
--- On Sat, 11/7/09, jrqbear@juno. com <jrqbear@juno. com> wrote:
Hi Chuck,
I would detach from that woman as fast as possible... but... do you have a signed lease with her? It sounds like she may be the crazy person. You did say she said her unit wasn't really legal, didn't you?
I know there are some good living situations in the East Bay, more so than in the City. I hope you can connect with the right one.
Jim Remer
 i just got really mean text messages from the landlady at the "cat pee cottage" - she just got back from china, was really abusvie to me in her messages.. i mentioned a place that could reconnect the heat duct that is loose and stinky with cat pee..... and she said she doesn't want me as a tennat.. she doen'st have time for a crazy jobless person-
I want to say thank you everyone for your support.. I appreciate it and need it! coming to work and trying to move is not easy. especially moving into a place that has problems. i feel like i am trying to make it "fit" for me. it has to be bettr than the dark garage.