HELLO FABULOUS PEOPLE! - Saturday, MARCH 14 ***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###*** This is a ***FRAGRANCE FREE*** meeting. AND please DO...
Hi group: I want to say a belated thank you to Sharon and the group for posting my request about a rheumatologist referral for me back in December. I sent...
And though the name here is from Joe Smith, it is from me, Michael J. I created the yahoo account awhile back when I didn't have back pain and was mildly...
I received the following from the American Pain Foundation. I have started listening and it seems to be very informative as to what our health-care providers...
Your rheumatologist sounds very thorough, Michael. Who are you using? You're going through a lot. Hang in there! Deborah ... Hi group: I want to say a...
*1) Name: AK *2) Age: 35 *3) What medical conditions do you have, or think you may have? Fibromyalgia *4)Are you the friend or family of someone w/ one of...
I wanted to let the group know that I'm working with a teacher of Alexander Technique who is building her practice and is offering discount introductory...
Has anyone been prescribed the nitroglycerin pill or patch for chronic fatigue or fibro? I recently went to a doc that did this, I'm a bit uncomfortable but...
Hi Chuck, I have not heard of this prescription. I will ask my Peninsula CFS connections about it and let you know if I hear anything pertinent. It is so hard...
Hi everyone, I have been taking Elavil for 20 years. I started tapering off of it (in 5mg increments) in December (because I am having tachacardia). I finally...
Since starting elavil I haven't had to get off. But I do know that when I forget to take it, I can't get to sleep. I think I also remember my Dr saying that...
I don't have an answer for you but I just want to offer some empathy for the suffering you're going through. It's a tough situation. I recently titrated off...
CFIDS, EI, and FM in the SF Bay Area Has anyone heard of this place in SF? I am considering seeing them for lyme.. and possible all this other CFS stuff. ...
Hello Everyone, My name is Pella and I am a 38 year old female living in San Francisco. I have been diagnosed with Chronic Fatigue Syndrome and Fibromyalgia. I...
Hi Pella, Have you been referred to the Chronic Pain Clinic at SF Kaiser? I was in the program years ago and it was helpful. I have just re-enrolled...
Thanks, Chris. My fibro is pretty mild - more achiness and soreness than actual pain, so I don't think the pain clinic is for me. I wish you best of luck and...
HELLO FABULOUS PEOPLE! - Saturday, APRIL 11 ***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###*** This is a ***FRAGRANCE FREE*** meeting. AND please DO...
Hello again friends! I have a big announcement that I want to share. We have been working very hard on launching a new website, and it has finally arrived! It...
Please welcome new member Lanya. She would like recommendations for a Blue Cross Provider. "I've used many wonderful bay area holistic practitioners, but due...
I bought an ergonomic chair in the fall and it turns out that it doesn't fit the shape of my back no matter how I adjust it. It seemed comfortable in the store...
Hi everyone,hope your having less painful/fatigued evening or day. Though this isn't anything new for anyone,I always think reminders are always helpful. Micah...
Hi Everyone, I really need an exceptional dentist who can take fibromyalgia into consideration. I may need major work done but not on everything on the same...
My former dentist is very sensitive to all human conditions. Although I don't think he will like it if you cancel appointments. His name is Gregory Zabek at...
HELLO FABULOUS PEOPLE! - Saturday, MAY 9 ***###_ WE MEET THE SECOND SATURDAY OF EVERY MONTH. _###*** This is a ***FRAGRANCE FREE*** meeting. AND please DO NOT...
I'm having a lot of trouble finding a local doctor. I went to one who was ready to diagnose me with MS (already ruled out) and another who told me I was...
Hi Terry~ As far as I can tell, my PC doesn't seem to know much abt cfids/fm but she's very kind and patient and always willing to refer me to a specialist....
... Hi Terri My PCP knows what CFIDS is (to the extent that mainstream medicine knows) and has been willing to do some research to see whether there is...
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