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CEFSFB · CFIDS, EI, and FM in the SF Bay Area
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Messages 4 - 33 of 850   Oldest  |  < Older  |  Newer >  |  Newest
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4
I just came across this and wanted to share: http://www.engelpub.com/News/Index.cfm?articleid=404542 Looks promising! Tracey...
teejkay2002
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Jan 9, 2007
4:07 am
5
Fabulous, Tracey! Thanks so much! It was extremely heartening to read! Deborah teejkay2002 <teejkay@...> wrote: I just came across this and...
Deborah Temple
deborahtemple
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Jan 10, 2007
3:04 am
6
If you have any questions about this event, please direct them to Louise. S ... From: "Louise Yost" <louyo@...> Sent: Tuesday, January 09, 2007 4:31...
Sharon Park
hosnar
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Jan 21, 2007
10:49 am
7
Hello Fabulous People! The next meeting of the SF Fibromyalgia and CFIDS Self-Help and Advocacy Group is this Sat, Feb 3rd, 2-4 pm. FORMAT OF THE MEETING ...
Sharon P
hosnar
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Feb 1, 2007
1:12 pm
8
You're welcome. Turns out my doctor, Barbara Bishop who I found thanks to people at this site, is going to prescribe Valcyte for me in March so I don't have...
teejkay2002
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Feb 6, 2007
8:17 am
9
What can you tell us abt Barbara Bishop? Where is she located and how familiar is she w/CFIDS/FM? Does she take insurance? Thanks, Tracey! And good luck w/the...
Deborah Temple
deborahtemple
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Feb 6, 2007
8:13 pm
10
Dr. Bishop MD is at 1580 Valencia Street San Francisco, California (CA) 415-550-0811 She takes insurance. She's very nice and understanding. She'll work with...
teejkay2002
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Feb 17, 2007
12:44 am
11
I am forwarding this at the request of Whitney. Contact her directly if you have any questions or comments. S ... From: Whitney Walker To: Sharon P Sent:...
Sharon P
hosnar
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Feb 17, 2007
6:04 am
12
Whitney, I take my hat off to you. Thank you for making this endeavor. I too visited the Good Doctor list and was severely disappointed. I'm in San...
Patricia Shahamiri
albie425
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Feb 17, 2007
9:26 pm
13
Hello Fabulous People! Many thanks to Deborah T. for stepping up to be one of our phone contacts. Also, please note that descriptions of the meeting topics...
Sharon P
hosnar
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Feb 28, 2007
7:23 am
14
Please direct your inquiries to the email address below. S ... From: "Kris P. Hopkins" <KPHopkins@...> Sent: Friday, March 02, 2007 12:00 PM Subject: CFS...
Sharon P
hosnar
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Mar 2, 2007
9:17 pm
15
Hi! I'm new to the group. So does anybody have a doctor to recommend in the East Bay? It sounds like a good doctor is really tough to find. I guess I'm looking...
Cus
howell_21
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Mar 8, 2007
3:45 am
16
Has anyone else applied for the Stanford study on using Valcyte for CFS? I recently got tested for the EBV and HHV-6 antibodies and was surprised to find out...
debbietenenbaum
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Mar 8, 2007
7:28 pm
17
A nursing student studying chronic pain has asked if folks might be interested in completing her study. If you have any questions or comments about this,...
Sharon P
hosnar
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Mar 22, 2007
5:46 am
18
Daneen Akers, a local filmaker whose mother has FM, has created a documentary about FM w/ her husband. This film, Living with Fibromyalgia, has been chosen by...
Sharon P
hosnar
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Apr 2, 2007
4:01 am
19
Hello Fabulous People! Many thanks to Michael S. for filling in for me last month. It was the first meeting I missed in over 3 years. Felt weird not being...
Sharon P
hosnar
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Apr 4, 2007
5:05 am
20
... From: Megan To: Hosnar@... Sent: Thursday, April 05, 2007 2:25 AM Subject: CFS enquiry from Australia Hello, my name is Megan Poad from Melbourne...
Sharon P
hosnar
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Apr 5, 2007
3:50 pm
21
Hi Megan~ Pls. keep us posted if you find out any news abt the trials at Stanford or the use of this new medication~ I have a feeling we'd all like whatever...
Deborah Temple
deborahtemple
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Apr 9, 2007
6:47 pm
22
Oh, I needed to add that I have read that some people have relapsed now that were on Valcyte with Montoya. I'm sorry to say. Tracey...
Tracey
teejkay2002
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Apr 12, 2007
11:12 am
23
Hi, I just read Megan's request for people on Valcyte. I'm on it. I'm following the Montoya protocol with my doctor in SF. I'm in the 4th week on it and I...
Tracey
teejkay2002
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Apr 12, 2007
11:18 am
24
I've been chatting off and on with Sharon about planning a San Francisco screening of Living With Fibromyalgia: A Journey of Hope and Understanding, a...
daneenakers
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Apr 25, 2007
2:24 am
25
HI! I just wanted to thank you so much for finally putting such a wonderful movie like this one together. I bought it for myself and my support group, which I...
Whitney Walker
infinite89
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Apr 25, 2007
2:43 am
26
Hello Fabulous People! The next meeting of the SF Fibromyalgia and CFIDS Self-Help and Advocacy Group is this Sat, May 5th, 2-4 pm. FORMAT OF THE MEETING ...
Sharon P
hosnar
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May 2, 2007
4:33 pm
27
Hello, I thought I remembered a table that used to be saved online with our group that contained a listing of CFS and EI doctors in the Bay Area and which...
Sue
bozzosc
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May 22, 2007
5:33 pm
28
Hi everyone, I'm new. Does anyone know anything about "Fibromyalgia and Fatigue Centers, Inc.?" Website is: http://www.fibroandfatigue.com/aboutus.php. ...
earllui
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May 29, 2007
4:09 am
29
... http://www.fibroandfatigue.com/aboutus.php. ... HI Earl, I do not have direct experience with the 'Fibro & Fatigue Centers'...but I do have an appt. w/Dr...
j_higgins1
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May 29, 2007
12:39 pm
30
Jenny, Thanks for the quick reply. After I did more digging on Google, I saw Dr. Holtorf's website too and I am planning on calling and making an appointment....
earl lui
earllui
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May 29, 2007
6:23 pm
31
Earl, Your welcome...no doesn't seem to be an equivalent to Holtorf in Bay area. My Appt. is Aug.30th, but I will most likely re-sched. for later date because...
Jennifer Patterson
j_higgins1
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May 29, 2007
7:09 pm
32
Hi folks, Dr. Carol Jessup (sp?) in Oakland was recommended to me and I was wondering if anyone had been under her care for cfids/fm/ei? Is there a doctor in...
photosynthesis_studio
photosynthes...
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May 29, 2007
7:53 pm
33
hi - ... been under her care for cfids/fm/ei? Dr. Jessup practiced in El Cerrito but retired from private practice in the late 80's or early 90's . She's an...
Judith Gilbert
jaegilbert1
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May 29, 2007
8:38 pm
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