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Great advice, Susan!! Everything you've said has been true for my experience, too~ it's been sixteen years for me and I'm much better but still working on it~ and if I don't work rest and recuperation into my schedule, I suffer!
It's a fine line for me between making wise effort/pushing through some lethargy and knowing when to stop and respect my body's need to retreat and rest. My level of motivation (to get something done or to attend an event) affects my energy but the body always has the final say. Most often, when I struggle w/myself abt which choice to make (doing something or not) and finally give up an activity, I usually find I've made the right choice by staying home~ even if I have some regret abt missing something. Giving myself permission to rest and relax is restorative. Prioritize, prioritize.
As far as medications go, Teri, if you're worried, you
can do what some of us do and start w/the medication at half or quarter strength of whatever you've been prescribed. Just get a pill cutter. Slowly give your body a chance to adapt. I tried several antidepressants over the years before I found one that didn't give me side effects and which was actually helpful. I believe what Susan wrote abt therapies is exactly right~ we're all so individual. I think after enough time and trial and error, we become better discerners of where our limits are~ which may change with the seasons.
Best regards and well-wishes to all, Deborah
susan s <darsheni@...> wrote:
Hi Terri,It's hard to respond well without knowing more about you and your situation. The only thing I can say with confidence is -- as much as possible, arrange your life to rest and engage in restorative activity. If you like your job but are having to "push through" to do it, then seriously consider giving it up for now if you can afford to, or at least taking a leave of absence. You best chance at recovery is early in the illness. The longer it goes on, the more entrenched it can become. I wish someone had told me this and encouraged me to rest more at the beginning.Whether the drugs will be good for you -- all the conceivable therapies work differently for different people, so it is hard to know. There is a lot of trial and error that people generally have to go through. Part of the process is becoming attuned to your body and seeing how things affect you.If you feel comfortable posting your phone number, I'm happy to call you and talk more about the particulars of your situation. I can't write a lot because of a repetitive stress injury.best wishes,susan----- Original Message -----From: TerriSent: Thursday, November 08, 2007 10:05 AMSubject: [CEFSFB] New to groupHi there,
I'm new to this group and new to being diagnosed with cfid's. I'm
having a difficult time adjusting and figuring out what it means in
terms of how to live my life. I feel a bit lost with trying to sort
through all the different information on the web. I'm interested in
other's experiences and what seems to help. I have some major
decisions to make regarding my career and giving up something that I
love doing. I'm just not able to function like I used to.
I've been prescribed provigil and an ssri but am reluctant to take
them for fear that although they might help in the short run, they
might ultimately delay my healing. Any opinions or experiences on
that? I'm also having the brain fog.
Also, how do you know when to let go of jobs (I can barely work 9
hours per week at this point) or whether this is a temporary thing
that one can push through?
This post ended up a bit long.
Thanks,
Terri
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