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Complete Recovery? And Walking/Phone Buddy Needed   Message List  
Reply | Forward Message #559 of 906 |
RE: [CEFSFB] Complete Recovery? And Walking/Phone Buddy Needed

Hi Dawn~ You are soooo not alone!! Every issue you've mentioned is one I've dealt with and/or deal with and.... I think I can safely say~ they are issues at least familiar to all of us!!
 
Take heart! Hang in! It's a rough ride. I like to think of all of us as Spiritual Warriors willing to live our lives despite these outrageous fortunes! And to live them w/honesty, integrity, sensitivity and compassion~ to the best of our abilities~ which may fluctuate from day to day or moment to moment. And we all need humor~ lots and lots of humor! I've just finished reading a David Sedaris book and boy did that help me laugh!!
 
I, too, am just exiting frm a rough patch. For the past three months~ I did too much, over-extended, didn't have enough compassion for myself (or integrated learning or something) to make wiser boundaries, to say no, etc. The results?!!! Financial expenses (really stupid ones) I can't afford and a fall down a flight of stairs which left me bruised, stiff, flared-up and stitched up!! It sucks. And worst of all~ I took myself out of my own life to support the lives of others! Gddmt!! But..... after days of anger, frustration and feeling powerless and alone, which led to more anger... I decided to look beyond the apparent and try to find~ "ok, what do I need to learn frm this AGAIN?!" Then I went to my therapist!!! Now I'm sharing (dumping?) on the grp~ who I hope will have forebearance and even laughter frm this recounting!!
 
This group is precious bec. it's such a resource! I'm grateful it's here and that we can all reach out to each other through it. Thank you for asking for emotional support! Here we find people who CAN understand, who WILL take the time to listen and GIVE EMPATHY.
Others don't understand! How could they?! I've given up expecting them to!!
 
As one of our CFIDS/FM support members has wisely shared at our mtg~ hang out w/sick people!! 
 
I've unwittingly deleted your email and all those preceding and I don't know if this has felt supportive at all but, girl, I hear you and you're amazing!!! And now there are others in Oakland for you to hook up with! May your joined energies and spirits bring relief, release, laughter and love! Deborah

--- On Thu, 6/25/09, Dawn Fraley <dawn87@...> wrote
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Fri Jun 26, 2009 1:06 am

deborahtemple
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Message #559 of 906 |
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Please welcome newcomer Ariyele. She has a question and a request... "has anyone ever heard of someone healing completely from this illness? i am also open to...
Sharon R P
hosnar
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Jun 23, 2009
3:52 am

Hello Ariyele, I can soooo relate to many of your challenges and interests. My name is Franky Dolan and I am now completely housebound, just turned 31. I have...
franky dreamer
frankydreamer
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Jun 23, 2009
5:09 am

I am in Oakland if you would want to share, I feel all alone there myself, I have no family here and my current friends give me a hard time and do not...
Dawn Fraley
dawn_fraley
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Jun 23, 2009
8:02 pm

Hello Ariyele and Everyone, I spoke to a friend-of-a-friend who had CFS and now, in her words, is "completely recovered". She has 3 young children and is...
Pella Schafer
pella_s
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Jun 24, 2009
2:12 am

hi dawn, thanks for writing back. i'd love to meet and share if you have the energy to. where in oakland are you? i'm in rockridge close to bart. my friends...
Ariyele Ressler
arressler
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Jun 25, 2009
2:32 am

hello to all! thank you so much for writing! i do know how hard it can be to muster the energy to respond to emails, phone calls etc, so your being able to...
Ariyele Ressler
arressler
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Jun 25, 2009
2:30 am

Do you know what it is that brought on the recovery.........diet, herbs,fasting,yoga......do you have the details............and was it  CFS or...
fran jerzgarzewski
franj12000
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Jun 24, 2009
3:31 am

She said she believed it was when she stopped doing anything except resting that she really started to recover. She also did acupuncture and dietary changes (I...
Pella Schafer
pella_s
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Jun 24, 2009
3:52 am

Thank you Fran J ... From: Pella Schafer <Pella1@...> Subject: Re: [CEFSFB] Complete Recovery? And Walking/Phone Buddy Needed To: CEFSFB@yahoogroups.com ...
fran jerzgarzewski
franj12000
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Jun 24, 2009
3:22 pm

I just wanted to add my voice of welcome to you Ariyele. I can related to all of the issues you outlined. There is a lot of loss to deal with especially in the...
Terri Campbell
carpinteria6
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Jun 25, 2009
3:07 am

Hi all, I really need some emotional support. I work part-time in San Francisco, so I trek there. I live on Adams point in Oakland. It is very difficult to...
Dawn Fraley
dawn_fraley
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Jun 25, 2009
5:21 am

hi dawn and terri and anyone else who'd is able to and would like to meet in oakland for tea, i think it'd be great if we could make it out to meet and talk...
Ariyele Ressler
arressler
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Jun 26, 2009
7:43 pm

Hi thank you this is much appreciated Today was really tough for me. AS far as meeting, Wednesdays are better for me or Saturdays in general. Dawn To:...
Dawn Fraley
dawn_fraley
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Jun 27, 2009
3:41 am

Hi Dawn~ You are soooo not alone!! Every issue you've mentioned is one I've dealt with and/or deal with and.... I think I can safely say~ they are issues at...
Deborah Temple
deborahtemple
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Jun 26, 2009
1:07 am

I'm having a tilt table test at Alta Bates on Thursday. I've heard that one can crash from the test.   I'm available any other day for tea.   I'm really...
Terri Campbell
carpinteria6
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Jun 27, 2009
6:49 pm

Hi Terri, Dawn, and others, I'm in downtown Oakland, and am also really interested if people want to meet for tea or in walking/phone buddies. I have had CFIDS...
Sarah Glaubman
ssglaubman
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Jul 10, 2009
5:42 pm

  I think we should try to get together in the next couple weeks if people can. It sounds like there are a number of us struggling with similar issues.   I...
Terri Campbell
carpinteria6
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Jul 10, 2009
7:05 pm

I'm pretty flexible too. Next week I'm busy on Tuesday. I'm flexible about where we meet since I am close to BART and busses. I try to make it to SF meeting...
Sarah Glaubman
ssglaubman
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Jul 10, 2009
8:18 pm

hi all, i am trying to coordinate an in-person meeting for the folks who live in oakland and are semi-functional enough to be able to join us for some tea,...
Ariyele Ressler
arressler
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Jul 11, 2009
12:03 am

I'd like to come. Late morning and early afternoon is best for me (around 11-3). Sarah ... -- Sarah Glaubman 674 10th St. Apt. 5 Oakland, CA 94607 ...
Sarah Glaubman
ssglaubman
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Jul 11, 2009
2:14 am

I also would be interested in meeting with other folks as I have been unable to make it to the meetings in the city but can get around locally ok (I live in...
James
jmsschin
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Jul 13, 2009
6:51 am

Hi James. It does sound as if we have some similar issues. Most of my energy also goes into daily living tasks, especially cooking, and my best friends around...
Sarah Glaubman
ssglaubman
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Jul 13, 2009
5:17 pm

hi all, so several peeps close to or in oakland have been talking about meeting for support and commiseration this wednesday at 2pm at the rockridge bart...
Ariyele Ressler
arressler
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Jul 14, 2009
7:02 pm

Hi group, I am available most any day. I have been bed ridden today just when I thot I had found my rhythm I lost my part time job to 'its just not a good...
Dawn Fraley
dawn_fraley
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Jul 12, 2009
5:25 am

Hi Dawn, (et al) I just wanted to say that I am sorry to hear that you lost your job. It can be so very difficult just to do regular duties. ..I always thought...
franky dreamer
frankydreamer
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Jul 13, 2009
8:27 pm

Thanks for that suggestion, and friendship, Franky. I could use small part-time jobs to supplement my SSDI, which is not enough to live on, but although I've...
Sarah Glaubman
ssglaubman
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Jul 13, 2009
8:52 pm

INSOMNIA anyone.....Ambien here I come.... Dawn To: CEFSFB@yahoogroups.com From: frankydreamer@... Date: Mon, 13 Jul 2009 13:27:09 -0700 Subject: Re:...
Dawn Fraley
dawn_fraley
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Jul 14, 2009
9:29 am

Franky, I had no idea how bad it was I remember you saying that you couldn't go out of the house. You are too nice of a person for this. But have you noticed...
Dawn Fraley
dawn_fraley
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Jul 14, 2009
9:37 am
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