Thanks, Chris.

My fibro is pretty mild - more achiness and soreness than actual pain, so I
don't think the pain clinic is for me. I wish you best of luck and hope you find
great relief!

I have looked on the Kaiser website, no docs say that they work with CFS...when
my primary care provider (internist) tried to refer me to rheumatology they said
they wouldn't take the referral/"don't treat CFS"....still trying...

:) Pella


--- In CEFSFB@yahoogroups.com, Chris Vaughn <tideguy79@...> wrote:
>
> Hi Pella,
>
> Have you been referred  to the Chronic Pain Clinic at SF Kaiser?  I was in the
program years ago and it was helpful.  I have just  re-enrolled and I believe
they have a section devoted to Fibro.  I will let the group know how it goes
after my intake appointment this week.  I would suggest looking at the Kaiser
web page and see if any of the Dr's click for you.  After I re-enrolled at
Kaiser my doctor immediately referred me to the pain clinic (as he in not a pain
specialist)  where my case will be monitored by a pain specialist, physical
therapist and another Dr.  So far they have been very helpful and taken my case
seriously.  I hope that helps.
>
> Chris
>
> --- On Sun, 4/5/09, Sharon R P <hosnar@...> wrote:
>
> From: Sharon R P <hosnar@...>
> Subject: [CEFSFB] Kaiser Referral Requested
> To: "CEFSFB Yahoo" <cefsfb@yahoogroups.com>
> Date: Sunday, April 5, 2009, 10:25 PM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Hello Everyone,
>
>
>
>
> My name is Pella and I am a 38 year old female living in San Francisco. I have
been diagnosed with Chronic Fatigue Syndrome and Fibromyalgia.
>
>
> I am slowly recovering, I believe, but it is a very, very slow process and I
often feel blue about how little I am still able to do (although it is
definitely more than when I was at my most sick). 
>
>
> I would love a referral to a Kaiser doctor (ideally in SF, but I will travel
if necessary) who can help treat CFS. I have had no luck in SF yet (I've so far
tried my Internist and Member Services, neither had a referral for me).
>
>
> I am also interested in what is working for people - especially alternative
treatments, but I am also open to more allopathic/mainstre am approaches.
>
>
> I have been working with an alternative MD in Santa Rosa who is pretty good,
and a Tibetan doctor who I think is a real healer (in Sausalito). I would love
more local people! (And I am happy to share referral information if this is
appropriate - either with the list or with individuals) . 
>
>
> Thanks so much and I look forward to connecting,
>
>
> Pella
>
> On Thu, Mar 26, 2009 at 9:55 PM, Sharon R P <hosnar@hotmail. com> wrote:
>
>
> Thanks for your interest in the group.  I'd like to introduce you to the list
and make sure that you're not a spammer.  Please answer the following
questions.  The ones w/ stars are mandatory.  All of your answers, except the
first one, will be forwarded to the group.  Feel free to use a pseudonym to
protect your anonymity.
>
> *How did you come to learn about this group? 
>
> *1) Name
> *2) Age
> *3) What medical conditions do you have, or think you may have? 
> *4)Are you the friend or family of someone w/ one of these illnesses? 
> *5) Male/female
> 6) Town or City you live in
> 7) Ethnicity
> 8) Sexual orientation/ Gender Identity (I ask this question bc/ many gay,
lesbian, and transgendered people w/ these illnesses have expressed that they
feel more comfortable in groups like this, if they know that there are others
like them in it.  I am a lesbian.)
> 9) Level of functionality - i.e. homebound - unable to cook or clean for self,
able to get out a few days in a week, work part-time, work full-time
> 10) Questions you have for the group i.e. "does anyone have a good
rheumatologists who knows how to treat FM," "does anyone have a good Kaiser
doctor," "would anyone like a walking buddy," "would anyone like a phone buddy"
> 11) Interests you have that have nothing to do w/ your illness(es)
> 12) Anything else you want to say about yourself.
>  
> We appreciate the interest of healthcare providers, but they are not allowed
to join this list unless they have one of these illnesses and are joining for
personal reasons.  But we are glad to forward your info to the group.  If you
would like to make your services known to the people on the list, email your
info to CEFSFB-owner@ yahoogroups. com, and it will be forwarded to the group. 
You may do this once a year. 
>
> Sharon
> Group list owner
>
>
>
>
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