Hi Michael--

Welcome to the group.

Sorry I don't know of a good Kaiser MD for you - if you find one please
post it. I live in Berkeley and still haven't found any private MD
knowledgeable about CFIDS/FMS. I'll probaby be looking for an Oakland
Kaiser MD when I retire and go back to Kaiser in a few years. Where is
Eric Gordon, and is he really helpful?

I applied for the Valcyte study, but on my final blood test my EBV and
HHV-6 titers dropped and I wasn't eligible. Dr. Montoya at Stanford
seems to know a lot; maybe you can continue seeing him after the study.
At this point I'd like to try anything. I know my immune system,
adrenals and other hormones are way out of whack and I've tried various
supplements without much success, but I don't know what to do next!

--- In CEFSFB@yahoogroups.com, "msallen1984" <msallen1984@...> wrote:
>
> Hi,
>
> I'm new to this group. I've had ME/CFS (this seems to be the new
> acronym) for about 16 years. I've lived in SF for 14 years.
>
> I was wondering if anyone knew of a primary care doc at Kaiser who
> was actually interested in CFS. I'm assuming that they don't exist or
> won't admit to it, but Sharon (who told me about this group) suggested
> I ask. I've got a non Kaiser CFS doc, Eric Gordon, but he's not nearby
> and it would help to have someone at Kaiser who actually cared.
>
> Also, I'm in the Stanford Valcyte trial if anyone is curious
> about it. I have a hunch I'm on the placebo, but it's a blinded study
> so I can't be absolutely certain.
>
> michael
>