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CEFSFB · CFIDS, EI, and FM in the SF Bay Area
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Fw: CFS enquiry from Australia   Message List  
Reply | Forward Message #21 of 895 |
Re: [CEFSFB] Fw: CFS enquiry from Australia

 
----- Original Message -----
From: Megan
Sent: Thursday, April 05, 2007 2:25 AM
Subject: CFS enquiry from Australia

Hello, my name is Megan Poad from Melbourne Australia.  I have been suffering from CFS for four years following a bout of epstein barr virus.  I have read about the trials at Stanford University regarding the use of Valganciclovir for CFS and am very interested in persuing this therapy. 
 
I am keen to chat with anyone that has undergone this treatment or is undergoing treatment in the current trials.  In short I want to know if this is really as good as it sounds, and if people have had any sign of relapse after stopping the use of the drug.  I would really appreciate some contact with anyone in your group that may have knowledge of this.
 
Many thanks,
 
Megan Poad.


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Mon Apr 9, 2007 5:59 pm

deborahtemple
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Message #21 of 895 |
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... From: Megan To: Hosnar@... Sent: Thursday, April 05, 2007 2:25 AM Subject: CFS enquiry from Australia Hello, my name is Megan Poad from Melbourne...
Sharon P
hosnar
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Apr 5, 2007
3:50 pm

Hi Megan~ Pls. keep us posted if you find out any news abt the trials at Stanford or the use of this new medication~ I have a feeling we'd all like whatever...
Deborah Temple
deborahtemple
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Apr 9, 2007
6:47 pm

Oh, I needed to add that I have read that some people have relapsed now that were on Valcyte with Montoya. I'm sorry to say. Tracey...
Tracey
teejkay2002
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Apr 12, 2007
11:12 am

Hi, I just read Megan's request for people on Valcyte. I'm on it. I'm following the Montoya protocol with my doctor in SF. I'm in the 4th week on it and I...
Tracey
teejkay2002
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Apr 12, 2007
11:18 am
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