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CEFSFB · CFIDS, EI, and FM in the SF Bay Area
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Hoping for advice re: Doctor's and Treatment   Message List  
Reply | Forward Message #150 of 906 |
[CEFSFB] Treatment Advice

Hi Terri and everyone out there,

I have something important to share. I joined this group 6 months ago when I moved to the Bay Area. I was diagnosed with CFIDS in 2004 and was living the typical CFIDS life, no job, house-bound often with fatigue, pains, crazy symptoms etc. etc. A few months ago, all that changed, basically I found a treatment that pretty much cured me and I desperately want to let everyone and anyone know so that maybe someone else can have the same improvement in quality of life that I have experienced. This isn’t a gimmick or hoax or anything, I’m probably just like most of you, typical CFIDS person who has tried everything to get back to your old self and feel normal again. You may be skeptical, as I was when I first heard of this. All I can say is give it a try, it can’t hurt anything.

So, all I did was read a few books by John Sarno, M.D. (Healing Back Pain, The Mind-Body Prescription, The Divided Mind). I know what you’re thinking… “this will not help me, I have a serious medical illness and a book is not going to help.” I was saying the exact same thing, I promise. This book is all about curing serious syndromes like CFIDS, FM, chronic back pain, IBS etc. It validates them as painful, real illnesses, but ones which are rooted in psychiatric phenomena. I know, it sounds weird and unbelievable. But it’s not. I am proof that it can work. All I can say is that I was desperate, I rented the books from the library, read them thoroughly a couple times, took notes and did a lot of thinking, and now I am cured.

I hope I don’t offend anyone by posting this. I honestly just want to help anyone I can, I know how terrible CFIDS can be and I really feel for anyone like me who has suffered from this awful illness.

 

Take care,

 

Anna

 

 

-----Original Message-----
From: CEFSFB@yahoogroups.com [mailto:CEFSFB@yahoogroups.com] On Behalf Of Terri
Sent:
Friday, February 01, 2008 11:34 AM
To: CEFSFB@yahoogroups.com
Subject: [CEFSFB] Hoping for advice re: Doctor's and Treatment

 

Hi,

It's been almost 3 months since being diagnosed. I find myself
alternating between feeling hopeful that maybe I can improve or
feeling hopeless and wanting to give up.

I've been doing acupuncture and chinese herbs for the past 4 months
and the only thing that has improved is my sleep. Everything else has
actually become worse.

At this point I'm pretty much housebound. It's very discouraging.

I've decided to see someone who specializes in cfid's.

I have 2 names and was wondering if anybody has heard or seen either
one of these people: Gordan and Associates or Dr. Lois Johnson.

Cost is a huge issue for me. Neither one takes insurance and I'm part
of an HMO that is designed for healthy people.

I was also wondering if there are any treatments/supplements that
anybody has tried with some success?

Thanks-

Terri



Fri Feb 1, 2008 11:28 pm

annadelamotte
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Forward
Message #150 of 906 |
Expand Messages Author Sort by Date

Hi, It's been almost 3 months since being diagnosed. I find myself alternating between feeling hopeful that maybe I can improve or feeling hopeless and wanting...
Terri
carpinteria6
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Feb 1, 2008
7:34 pm

Hi Terri and everyone out there, I have something important to share. I joined this group 6 months ago when I moved to the Bay Area. I was diagnosed with CFIDS...
Anna de la Motte
annadelamotte
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Feb 1, 2008
11:24 pm

Terri, thank you so much for sharing this!!! I want to urge everybody to give this a chance. From what I have learned, I would be surprised if this wasn't the...
howell_21
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Jul 26, 2008
6:33 pm
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