HELLO IM 32 AND HAVE COLON CANCER I ALSO HAVE A COLOSTOMY I WOULD LIKE TO TALK
TO ANYONE WHO HAS HAD THIS.

Hello Pam,<br><br>My name is Eric
Kingson.<br><br>My wife, Joan, is in treatment at MSK with Dr.
Kemeny for recurrent colon cancer.<br><br>Want to let
you know that I appreciate the information you
provide via the list.<br><br>Thanks

The chat is scheduled now and I am here-Pam (semicolon1st). Don't let the name
confuse you.

I had the same surgery 3years ago and did have
the same problems as you describe. It is important to
monitor how much fiber you eat. If the gas and frequent
bowls continue, caution yourself on the fiber. I either
have excessive stools or none. Depends also on what I
eat. Let's just say it has never been the same as
prior to the surgery. I had over a foot of the colon
removed. Keep in touch

How can I help may anyone with Colon Rectal Cancer.  I had a year of Chemo and
fine now. Always have the fear, but moving on

Got your reply about your rectal cancer. Where
did you have your operation? Did you have radiation
and/or chemo? Any sexual disfunction?<br>Any temporary
colostomy...and how did your surgeon do
this?<br>jcol585756@...

hello<br> i am 36 male from jordan i had my
surgery in march 1997 in the rectum the tumer was only 2
inches inside which you can touch with finger. i did not
have a colostomy and everything is ok with me now . i
had acolonoscopy last week.<br> the tumer was stage 3

I would appreciate any info. on dealing with
gastro/intestinal problems following cancer treatment. It will be a
year in May 2000 since completion of my chemo
treatment for stage III rectal cancer. I suffer from excess
gas and problems regulating my bowels. Would like to
know if this is normal-- will it last forever. Does
anyone have suggestions on dealing with this problem?

In response to the individual looking for
patients with low rectal tumors - I was diagnosed with
stage III rectal cancer in September 1998. I had
surgery removing the tumor and a section of the lower
colon followed by chemo and chemo/radiation. Thanks to
an excelent surgeon I did not have to have a
colostomy. I experienced temporary erectile dysfunction
following the radiation. The only lasting effect as a
result of the surgery is what is referred to as reverse
ejaculation. I am 58 years of age. Hope this information is
helpful.

Hi! I'm looking for people who had a tumor in
their low or mid rectum or even the upper anus. My dad
has a tumor in his mid to lower rectum and he wants
to find out if there are people who had a similar
thing but didn't need a colostomy, and didn't have any
erectile dysfunction. Or, if you did have a colostomy and
erictile dysfunction--why? and where was your
tumor?<br>Any help is really appreciated!! thanks

Hi christie,<br>My mom has a permament colostomy.  Try the united ostomy
association.  www.uoa.org. They have a lot of information on their website.
<br><br>Marlena

Hi! I am looking to talk with people who have
experienced, or know things about temporary ileostomies,
colostomies and tumors in the lower rectum. Any help is
hugely appreciated!! I'm also looking for the woman
named Sue who wrote the personal story called My Story,
about her battle with colon cancer. She had a temp
ileostomy and I would love to talk to her or any like her!!
thanks so much!<br>-Christy

select Chat from the left side bar or scroll down
the page to Chat & click 'enter'. (due to a glitch it
says NONE are currently in the room, but this feature
is broken, so enter the chat) It should log you in.
Pati

Hi. How do you use the Chat room

Please see our calendar for new times!

This Wednesday the 12th from 7pm to 8pm

My mother has been wearing colostomy bag since
her last major operation since 4 months
ago.<br>Actually, it is on her illestomy, and therefore there is a
lot of wastestage in the form of liqiud.<br><br>We
had a lot of trouble because until now we do not know
how is the correct way to do it. The reps of the
company (convotech) only showed us once and after that we
never heard from them again.<br><br>I have a few Q that
i need some help on.<br><br>1. Is it normal for the
bag to be leak up to 2 to 3 times a day?<br><br>2.
Are we suppose to use the powder around the skin
before we put on the bag?<br><br>3. Are we suppose to
put the glue to stregthen the bond?<br><br>4.
COncerning the leak, I heard if a person use a colostomy
belt it can reduce the chances of leaking because it
can help to balance the weight in the bag. Is it
true? where can i get it?<br><br>Thanks<br><br>razim

My mother has been wearing colostomy bag since
her last major operation since 4 months
ago.<br>Actually, it is on her illestomy, and therefore there is a
lot of wastestage in the form of liqiud.<br><br>We
had a lot of trouble because until now we do not know
how is the correct way to do it. The reps of the
company (convotech) only showed us once and after that we
never heard from them again.<br><br>I have a few Q that
i need some help on.<br><br>1. Is it normal for the
bag to be leak up to 2 to 3 times a day?<br><br>2.
Are we suppose to use the powder around the skin
before we put on the bag?<br><br>3. Are we suppose to
put the glue to stregthen the bond?<br><br>4.
COncerning the leak, I heard if a person use a colostomy
belt it can reduce the chances of leaking because it
can help to balance the weight in the bag. Is it
true? where can i get it?<br><br>Thanks<br><br>razim

Hi Everyone!<br><br>I am new here and i am from
Malaysia. My mother has Stage 4 cancer and now wears a
colostomy bag on her illestomy. We face a lot of problems
because this kind of cases is very rare in malaysia and
even the dr. dont quite know how to handle it. I hope
i can gain information and help from ppl here,
especially from those who are ni the same position as my
mother. I love her and want the best for her. Nice to
meet you all

Hi everyone... I'm new at this and hope I'm
doing<br>this right. Here's a little history and we will go
from there.<br><br>I have a tumor and my rectum
removed in Jan 99. Then did radiation for 6 weeks and
chemo for 6 months (ended Sept.) In Sept. I have 2
small sections on my small intestine removed due to
blockage caused by the radiation.<br><br>My doctor(s) said
everything is "OK" now and I could eat anything I wanted
(wrong). In the past couple weeks I have averaged 20-35
BM's a day and night. I would get up on the hour at
night. I started a "Low Fiber" diet a few days ago and
things seem to be improving, but I still have a bad pain
in my rectum area that I can only describe as it
feels like a "Pressure or as I tell my wife, a rubber
ball up there". The only thing that seems to slow me
down when the BMs and pain gets going is 2 tablets of
MSIR 15mg which is morphine. I end up taking 2 of
these pills a day. Is that ok? I also seem to have much
more gas than normal. I watch my milk intake,
etc.<br><br>Sorry for the long story, I just would like to here
from others in the same boat and learn more on do's
and
dont's.<br><br>Thanks<br>Dennis<br><br>Dennisp@...

You have the right attitude.  Hang tuff!

Hi folks!<br>I've just finished liver resection
surgery from metastatic cancer from my original colon
cancer. Guess I'm off to chemo once again... But; it was
caught early and I'm ready to do battle once again! I'm
36 years old and going to continue to fight as long
as I can. <br>Stay positive folks!!

Sorry to hear that your side effects were like
mine. Your system will take a time to adjust, the
healing process is long term, I have been out of
treatment for over a year and still not normal (my docs say
this is not out of the ordinary), but it gets better
aal the time and you can feel the difference, so do
not despair.Hope your scan is ok,let me know. I am
going for follow up colonoscopy and scans over the next
two weeks. Bye for now.

Hi Adele!  Welcome.  Just hit chat and you will enter the chat room.  Look at
our calendar to find out when chats are scheduled.  Glad you joined. ~Amy

Hi, I am also stage 3. I have been off chemo and
Rad since March 1999. I had the runs (to put it
mildly) until June. Now I alternate beteen constipation
and the runs. I feel like I will never be normal
again. Also, I been experiencing debilitating pain on my
lower right side. It feels like cramps... My doc thinks
that it could be adhesions, could also be ovarian
cysts. I had a CT scan yesterday, so we will see...

Hi Amy, you finally got me to try a chat thing. But this is something that I
have never done so what is the deal?

Hi Eden,<br> Sorry that it has taken me so long
to respond, I have been dealing with more health
issues. <br><br> My cancer was restaged to Stage I after
my surgery. This is good. I did end up with a
permant colostomy though and had many problems with it.
Had surgery again. I had a number of adheasions,
blockages and they needed to move the colostomey from one
side to the other. This was the 19th of this month and
I am recovering from this now. What an ordeal this
has been. I hope to ge back to work right after the
1st of the year now......<br><br>How are you
feeling?<br>Char

Dear friends:<br> Is it in poor taste to offer
you wonderful folks a greeting based on the giving of
thanks?<br>Somehow, the irony strikes hot and cruelly, but if we can
see past that to the gift of life we cling to, and to
the reasons we do -- could it be there is still
reason to give thanks? If so, I join you if you permit
me in a wholehearted spirit. I am your friend, Bob
Willis

Andy,<br><br>Although I did not have to go
through Chemo or any of the usual "treatments", I had all
but 4" of my colon removed when I was 18. Since then,
I have gotten married and had 6 children. I cannot
say for sure how things will go for you and your
wife, but I say, by all means go for it. I do not
regret any of my decisions and cherish all of my kids.
The big thing is to follow your doc's advice.<br>I
hope this might help in some way. Carrie

My husband and I are also considering trying to
conceive. We have a daughter that is 2 1/2 years old and
she want's "a baby sister". I Completed my treatment
about 4 months ago in July 1999. I went to see my
Doctor(ongilist) today and he said he had no problem with me
trying next July. I need to be off of the chemo for one
full year. My obgyn said he would run some tests
closer to the time we are going to try to make sure the
chemo did not do any damage to the reproductive area. I
had four and a half feet of my lower intestine
removed on December 31, 1998. He said if I do become
pregnet I will be watched very closely. I am at high risk
because of my weight (350 lbs) and a history of PE. Two
and a half months after my daughter was born I
blacked out, was taken to the hospital. After lots of
test they found my lungs to be 3/4 of the way filled
with blood clots. After a week in the hospital I went
home on cumadin(a blood thiner) and stayed on it for
about 9 months. While haveing treatment for colon
cancer I started to develope blood clots in my left arm
and was put back on cumadin. If or when I become
pregnet I will be put back on it agion. Your wife should
talk with her oncoligest and her obgyn before you try.
They may be able to run tests or something to help.
Please remimber that having had colon cancer your risks
are higher for blood clots. Her Doctors may have her
take an asprian a day to help thin the blood to
prevint clots during her pregnacy. Best of luck to both
of you.<br><br>God Bless You<br>Dorothy