This is a welcome message to everyone who subscribes to this newsgroup. Hopefully, we'll openly share information, many triumphs and few defeats with one ...
saxfiend@xxxx.xxx
Sep 18, 1999 1:46 pm
2
Hello! Thanks for joining CAHwith3BetaHSD mailing list. As you already know, doctors don't have a lot of information to share with us about this disorder,...
saxfiend
saxfiend@xxxx.xxxx
Sep 20, 1999 5:49 pm
3
Dr. Gabe Merkin has a website with many excellent articles. Here's one about why a low-salt diet isn't good for us, ... VERY LOW-SALT DIETS ARE HARMFUL Report...
saxfiend
saxfiend@xxxx.xxxx
Sep 20, 1999 6:18 pm
4
Hi all,I'm a new member and I don't know if I have CAH,but I know my adrenal gland is overproducing DHEA-S and I don't know for sure what is causing this.Robin...
Ortiz3@xxxxxxx.xxx
Sep 20, 1999 8:14 pm
5
... Robin, what did your doctor tell your about your other hormone levels?...
saxfiend
saxfiend@xxxx.xxxx
Sep 20, 1999 8:48 pm
6
Perhaps it would be most helpful to find out who's now taking a cortisone type drug to help the 3Beta HSD condition and who isn't. Here's my experience many...
saxfiend
saxfiend@xxxx.xxxx
Sep 20, 1999 9:13 pm
7
Hello, There is a new survey for the CAHwith3BetaHSD community. This survey is to find out which symptoms are most prevalent in 3Beta HDS deficiency. The...
CAHwith3BetaHSD-owner...
Sep 20, 1999 11:07 pm
8
Hi Deb and everyone else --- all 4 of you, lol. I say everyone else because I can't seem to access the "members" section in the list to the left. I see that no...
Promecia@xxx.xxx
Sep 21, 1999 5:11 am
9
I am a 29 year old female recently diagnosed with this form of adult onset CAH. My main symptoms are no menstrual periods before medication and hirsuitism. I...
michelle@xxxxxxxxxxxx...
Sep 21, 1999 6:27 pm
10
My other hormone levels are normal.I wrote my dr.to ask how you tell if you have CAH.I have pco.So can you have both or could I have CAH and not pco?I do have...
Ortiz
Ortiz3@xxxxxxx.xxxx
Sep 22, 1999 3:50 am
11
Hello to all: I just got the following message from someone who now knows about our problem. We've been e-mailing about CAH and excessive DHEA. I explained how...
saxfiend
saxfiend@xxxx.xxxx
Sep 25, 1999 6:53 pm
12
There hasn't been much of a dialog going on, so I thought I'd start it off. Feel free to bring up any other issues or symptoms on your mind that relate to...
saxfiend
saxfiend@xxxx.xxxx
Sep 25, 1999 7:12 pm
13
Cathy, I started a mailing list for people with a 3beta HSD. If they'd like to join, you can have them write to: CAHwith3BetaHSD@onelist.com Thanks!...
saxfiend
saxfiend@xxxx.xxxx
Sep 25, 1999 7:55 pm
14
I still don't know if I have this.Just suspect cah since my dhea-s was elevated.I wrote my dr.to see how you know if you have it or not or just pco.She hasn't...
Ortiz
Ortiz3@xxxxxxx.xxxx
Sep 28, 1999 4:32 am
15
Hi Guys! This is in response to Debs post concerning some questions her friend had about our treatment and reaction to corticosteroids. I was initially given...
Promecia@xxx.xxx
Sep 28, 1999 2:53 am
16
Quick Note from Deb: Erin, I just wanted to thank you for getting the ball rolling. I also want everyone to know about the DHEA web page I found in case you...
saxfiend
saxfiend@xxxx.xxxx
Sep 28, 1999 7:48 am
17
First Issue: We'll be getting more people to join our mailing list after I write up a report in the Magic Society. I hope we see more activity in the mailing ...
saxfiend
saxfiend@xxxx.xxxx
Sep 29, 1999 1:10 am
18
Interresting,guess I won't be eating soy.Don't need any more dhea.Robin...
Ortiz
Ortiz3@xxxxxxx.xxxx
Sep 30, 1999 4:12 am
19
Well, there you go folks - finally something positive concerning all this DHEA swimming around in our systems! I'd like to think it's one less thing for us to...
Promecia@xxx.xxx
Sep 30, 1999 4:31 pm
20
Erin wrote: Well, there you go folks - finally something positive concerning all this DHEA swimming around in our systems! I'd like to think it's one less...
saxfiend
saxfiend@xxxx.xxxx
Oct 2, 1999 8:02 am
21
I should have written a bit more. The web page author's credentials are good, but his theories haven't been tested out, so it's sheer speculation on his part....
saxfiend
saxfiend@xxxx.xxxx
Oct 2, 1999 8:05 am
22
I was wondering how much our adrenal disorder effects our moods. I for one tend to be rather high strung. One doctor said it may because I have an artistic...
saxfiend
saxfiend@xxxx.xxxx
Oct 4, 1999 5:52 am
23
Just read Deb's post. Oh, boy! Don't even know where to start! This has been a major problem for me and not one that garners much sympathy from doctors or even...
Promecia@xxx.xxx
Oct 4, 1999 7:16 pm
24
... Yes, it IS interesting that we may be in that same group of people who can't metabolize cortisone -- UNLESS someone on our 3 Beta mailing list tells us...
saxfiend
saxfiend@xxxx.xxxx
Oct 5, 1999 5:45 am
25
Well, this is a puzzling article just written up in the New England Journal of Medicine. I'm not sure whether I sent this to the 3Beta newsletter yet, but...
saxfiend
saxfiend@xxxx.xxxx
Oct 5, 1999 11:33 pm
26
I grind my teeth,but I have a mouth piece I wear at night that the dentist made for me.My jaw used to hurt.I'm going to another fertility center.They are...
Ortiz
Ortiz3@xxxxxxx.xxxx
Oct 6, 1999 2:49 am
27
... Hi Ortiz, Yet another thing 3Betas may have in common. I've worn a bite guard for many years, too. It would be interesting to know if this imbalance also...
saxfiend
saxfiend@xxxx.xxxx
Oct 6, 1999 6:19 pm
28
I have also been diagnosed recently with CAH 3 Beta (late onset). I am 29. My symtoms have really only been an absence of menstration for most of my life. The...
michelle@xxxxxxxxxxxx...
Oct 7, 1999 12:55 pm
29
Wendy, have your adrenals been retested yet? Have you gotten the results back? Maybe all of us should get our test scores and compare them? Deb...
saxfiend
saxfiend@xxxx.xxxx
Oct 8, 1999 12:24 am
30
Hi everyone, I recently was retested for DHEA and it was lower. I think it's because I've been on a low carbohydrate diet for years now, since being diagnosed...
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