I'm not sure my messages have been getting out, but I'll need someone as a replacement for the 3 beta list. If one person e-mails me, I'll know this message...
Ok, we need three more people who are receiving this mailing list to fill out the survey, otherwise it will be changed without having everyone's input. I plan...
I'd like your comments on this please... I recently went to see the doctor at the teaching hospital I go to, and I mapped out a plan via fax ahead of time....
... Only one person has answered this so far. Maybe I can ask another way that's clearer. If you had your choice of symtoms that you could make disappear,...
Since there are a number of tests that can be taken for 3Beta HSD, I was hoping you'd like to share with the group the kind of test you took. Dexamethasone...
I'm now in contact with the NIH doctor who knows the most about our particular form of adrenal hyperplasia. In order to get him to do a study, I'd like to...
... Thanks for your reply, Kebs. Do you know which tests they ran to diagnose your 3Beta HSD? Have they put you on medications? What symptoms are you hoping...
Hello everyone, I'd like to know if any of you have had gene testing along with blood tests for your 3Beta HSD dianosis or if your doctor diagnosed it strictly...
I'm not sure whether I posted this to the newsgroup yet, but after being tested, my DHEA levels were much lower. I suspect it's from being on a very low carbo...
hello. ... From: CAHwith3BetaHSD@onelist.com [mailto:CAHwith3BetaHSD@onelist.com] Sent: Friday, October 15, 1999 5:15 AM To: CAHwith3BetaHSD@onelist.com ...
Hi Deb! Here's my "hello":) I've been experiencing some problems with my e-mail. I'm not sure if it's my computer or an AOL problem. Having an awful time ...
Hi everyone, I recently was retested for DHEA and it was lower. I think it's because I've been on a low carbohydrate diet for years now, since being diagnosed...
I have also been diagnosed recently with CAH 3 Beta (late onset). I am 29. My symtoms have really only been an absence of menstration for most of my life. The...
I grind my teeth,but I have a mouth piece I wear at night that the dentist made for me.My jaw used to hurt.I'm going to another fertility center.They are...
Well, this is a puzzling article just written up in the New England Journal of Medicine. I'm not sure whether I sent this to the 3Beta newsletter yet, but...
... Yes, it IS interesting that we may be in that same group of people who can't metabolize cortisone -- UNLESS someone on our 3 Beta mailing list tells us...
Just read Deb's post. Oh, boy! Don't even know where to start! This has been a major problem for me and not one that garners much sympathy from doctors or even...
I was wondering how much our adrenal disorder effects our moods. I for one tend to be rather high strung. One doctor said it may because I have an artistic...
I should have written a bit more. The web page author's credentials are good, but his theories haven't been tested out, so it's sheer speculation on his part....
Well, there you go folks - finally something positive concerning all this DHEA swimming around in our systems! I'd like to think it's one less thing for us to...
First Issue: We'll be getting more people to join our mailing list after I write up a report in the Magic Society. I hope we see more activity in the mailing ...
Quick Note from Deb: Erin, I just wanted to thank you for getting the ball rolling. I also want everyone to know about the DHEA web page I found in case you...
Hi Guys! This is in response to Debs post concerning some questions her friend had about our treatment and reaction to corticosteroids. I was initially given...
I still don't know if I have this.Just suspect cah since my dhea-s was elevated.I wrote my dr.to see how you know if you have it or not or just pco.She hasn't...
Cathy, I started a mailing list for people with a 3beta HSD. If they'd like to join, you can have them write to: CAHwith3BetaHSD@onelist.com Thanks!...
There hasn't been much of a dialog going on, so I thought I'd start it off. Feel free to bring up any other issues or symptoms on your mind that relate to...
Hello to all: I just got the following message from someone who now knows about our problem. We've been e-mailing about CAH and excessive DHEA. I explained how...
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