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CAHwith3BetaHSD · Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency.
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Re: My Wierd 3 Beta Experience   Message List  
Reply | Forward Message #42 of 45 |
I'd like your comments on this please...

I recently went to see the doctor at the teaching hospital I go to, and
I mapped out a plan via fax ahead of time. This was my first visit. I
faxed and asked him to run some tests based on old medical information
from NIH. The appointment lasted for 45 minutes, he billed my insurance
$450 and he agreed on the plan to test me again for 3beta and some other
tests (billed my insurance for $450).

After I left, I realized he'd forgotten to mention the pain in my side
that I'd faxed him about, and then I noticed he'd only tested for DHEA
sulfate, which I thought was a preliminary test but not the entire test,
so expected more info when the nurse called back and said everything is
fine, nothing to worry about, my DHEA sulfate is a little high.

That didn't ring right, so I wanted to talk to the doc, faxed him 3
questions, waited a few days for either a call or a fax. Nothing. So
I faxed him the questions again. Nothing. To make a long story short,
(and a long time lapse and much pressuring on my part) the head of the
department finally told me I'd have to get more tests for 3 beta HSD but
he also reminded me that the parameters of the 3beta HSD test scores had
changed.

Has anyone had this much trouble getting re-tested?








Then it suddenly dawned on me after the appointment, that he didn't
address





Wed Nov 24, 1999 11:29 pm

saxfiend@xxxx.xxxx
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Message #42 of 45 |
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I'd like your comments on this please... I recently went to see the doctor at the teaching hospital I go to, and I mapped out a plan via fax ahead of time....
saxfiend
saxfiend@xxxx.xxxx
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Nov 24, 1999
11:29 pm
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