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CAHwith3BetaHSD · Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency.
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Re: 3 Beta HSD - A study #2   Message List  
Reply | Forward Message #41 of 45 |
saxfiend wrote:
>
> From: saxfiend <saxfiend@...>
>
> I'm now in contact with the NIH doctor who knows the most about our
> particular form of adrenal hyperplasia. In order to get him to do a
> study, I'd like to know what you think are the most crucial issues that
> need to be addressed. Please reply ASAP so that I can tell him what he
> needs to know from the patient's viewpoint.


Only one person has answered this so far. Maybe I can ask another way
that's clearer. If you had your choice of symtoms that you could make
disappear, which ones would they be. Perhaps that's an easier way to
address the question.





Sat Nov 20, 1999 1:01 pm

saxfiend@xxxx.xxxx
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... Only one person has answered this so far. Maybe I can ask another way that's clearer. If you had your choice of symtoms that you could make disappear,...
saxfiend
saxfiend@xxxx.xxxx
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Nov 20, 1999
1:01 pm
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