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I'm now in contact with the NIH doctor who knows the most about our
particular form of adrenal hyperplasia. In order to get him to do a
study, I'd like to know what you think are the most crucial issues that
need to be addressed. Please reply ASAP so that I can tell him what he
needs to know from the patient's viewpoint.
Incidently, I may be changing my online name soon. I had originally
intended to get involved with music newsgroups, but while surfing, I got
into medical issues. I know this name doesn't inspire much confidence
when dealing with serious medical issues, but I'll let you know before I
do change my name.
Thanks.
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