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CAHwith3BetaHSD · Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency.
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3 Beta HSD - A study   Message List  
Reply | Forward Message #39 of 45 |

I'm now in contact with the NIH doctor who knows the most about our
particular form of adrenal hyperplasia. In order to get him to do a
study, I'd like to know what you think are the most crucial issues that
need to be addressed. Please reply ASAP so that I can tell him what he
needs to know from the patient's viewpoint.

Incidently, I may be changing my online name soon. I had originally
intended to get involved with music newsgroups, but while surfing, I got
into medical issues. I know this name doesn't inspire much confidence
when dealing with serious medical issues, but I'll let you know before I
do change my name.

Thanks.





Fri Nov 19, 1999 7:23 pm

saxfiend@xxxx.xxxx
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Message #39 of 45 |
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I'm now in contact with the NIH doctor who knows the most about our particular form of adrenal hyperplasia. In order to get him to do a study, I'd like to...
saxfiend
saxfiend@xxxx.xxxx
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Nov 19, 1999
7:23 pm
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