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CAHwith3BetaHSD · Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency.
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Re: Digest Number 10   Message List  
Reply | Forward Message #26 of 45 |
I grind my teeth,but I have a mouth piece I wear at night that the dentist made
for
me.My jaw used to hurt.I'm going to another fertility center.They are nurses
that
run it.They will refer me to an Endo so maybee now I'll get some answers about
the
adrenal problems and see if any other hormones are elevated.Robin

CAHwith3BetaHSD@onelist.com wrote:

> > Community email addresses:
> Post message: CAHwith3BetaHSD@onelist.com
> Subscribe: CAHwith3BetaHSD-subscribe@onelist.com
> Unsubscribe: CAHwith3BetaHSD-unsubscribe@onelist.com
> List owner: CAHwith3BetaHSD-owner@onelist.com
>
> Shortcut URL to this page:
> http://www.onelist.com/community/CAHwith3BetaHSD
> ------------------------------------------------------------------------
>
> There are 2 messages in this issue.
>
> Topics in today's digest:
>
> 1. Moods, Corticosteroids and Memory (or lack thereof-lol)
> From: Promecia@...
> 2. Re: Moods, Corticosteroids and Memory (or lack thereof-lol)
> From: saxfiend <saxfiend@...>
>
>
_______________________________________________________________________________
>
_______________________________________________________________________________
>
> Message: 1
> Date: 4 Oct 1999 19:16:04 -0000
> From: Promecia@...
> Subject: Moods, Corticosteroids and Memory (or lack thereof-lol)
>
> Just read Deb's post. Oh, boy! Don't even know where to start! This has
> been a major problem for me and not one that garners much sympathy from
> doctors or even my own family. They just think I'm nuts;) I can't tell
> you how many times I've been called "high-strung" or "overly sensitive".
> I've also had difficulty with my memory. It started way back before I was
> diagnosed with 3-BetaHSD. And my experience with steroids (Dex. and Pred.)
> was that it made everything worse. Particularly the Dexamethasone, but my
> reaction to that drug was extreme. It seems to be my short-term memory that
> has suffered the most. Deb, didn't you mention being taken off Dex. years
> ago because of muscle weakness? When the same thing happened to me a
> neurologist told me that a tiny percentage of the public does not metabolize
> the drug. Wouldn't it be amazing if that same tiny group are the same people
> who suffer from 3-Beta? Hmmmm?
>
> As far as mood swings and anxiety go...
> I tend to over react to little things. I also get into these horrible moods
> that literally scare me. Very dramatic, nasty moods where I say things and
> react in a manner that is not indicative of who I really am and what my
> normal personality is like. I have anxiety almost all the time but do not
> have major anxiety attacks. I have had them, but only 3 times and they were
> all related to actual very stressful events happening at the time. There
> were also 2 other incidents where it felt like an anxiety attack but turned
> out to be an adrenal crisis brought on by the physical stress on my body
> caused by kidney infections. My doctor tripled my steriods at the time and
> that solved the problem.
>
> Deb, what is Klonapin? Does it help a lot? Are there any negative side effects
> in your experience? Also, does anyone else suffer from insomnia?
>
> Just wanted to let you know that I have to take a series of classes this week
> on "Participatory Management" that are pretty much going to wipe me out and
> I might not be online the rest of the week. But I'll be back soon so keep
> posting and e-mailing me. And hopefully I'll catch up! And if anyone has
> learned the art of saying "No!" to people begging you to volunteer for nine
> million things at school, please let me know;)
>
> Talk to you all later!
> Stressed-out Erin
>
>
_______________________________________________________________________________
>
_______________________________________________________________________________
>
> Message: 2
> Date: Tue, 05 Oct 1999 01:45:45 -0400
> From: saxfiend <saxfiend@...>
> Subject: Re: Moods, Corticosteroids and Memory (or lack thereof-lol)
>
> Promecia@... wrote:
> >
> > From: Promecia@...
> >
> > Just read Deb's post. Oh, boy! Don't even know where to start! This has
> > been a major problem for me and not one that garners much sympathy from
> > doctors or even my own family. They just think I'm nuts;) I can't tell
> > you how many times I've been called "high-strung" or "overly sensitive".
> > I've also had difficulty with my memory. It started way back before I was
> > diagnosed with 3-BetaHSD. And my experience with steroids (Dex. and Pred.)
> > was that it made everything worse. Particularly the Dexamethasone, but my
> > reaction to that drug was extreme. It seems to be my short-term memory that
> > has suffered the most. Deb, didn't you mention being taken off Dex. years
> > ago because of muscle weakness? When the same thing happened to me a
> > neurologist told me that a tiny percentage of the public does not metabolize
> > the drug. Wouldn't it be amazing if that same tiny group are the same people
> > who suffer from 3-Beta? Hmmmm?
>
> Yes, it IS interesting that we may be in that same group of people who
> can't metabolize cortisone -- UNLESS someone on our 3 Beta mailing list
> tells us otherwise.
>
> > As far as mood swings and anxiety go...
> > I tend to over react to little things. I also get into these horrible moods
> > that literally scare me. Very dramatic, nasty moods where I say things and
> > react in a manner that is not indicative of who I really am and what my
> > normal personality is like. I have anxiety almost all the time but do not
> > have major anxiety attacks. I have had them, but only 3 times and they were
> > all related to actual very stressful events happening at the time. There
> > were also 2 other incidents where it felt like an anxiety attack but turned
> > out to be an adrenal crisis brought on by the physical stress on my body
> > caused by kidney infections. My doctor tripled my steriods at the time and
> > that solved the problem.
>
> Yep, I can relate. Some have told me the temperament thing is due to
> having
> a a musical/artistic temperament, but I think that's a stereotype. Have
> you
> taken any medications for this that helped?
>
> > Deb, what is Klonapin? Does it help a lot? Are there any negative side
effects
> > in your experience? Also, does anyone else suffer from insomnia?
>
> I've used .5 mg. of Klonapin so that I don't grind my teeth as hard
> when I'm sleeping. It does help. Because I don't like to take many
> medications, I take it ONLY at night. I had to stop taking afternoon
> naps because I'd wake up with terrible jaw pain. Klonapin is one of
> those meds used for lots of things, but basically it's marketed as an
> anti-seizure medication, I believe, but it helps reduce anxiety.
>
>
> > Just wanted to let you know that I have to take a series of classes this
week
> > on "Participatory Management" that are pretty much going to wipe me out and
> > I might not be online the rest of the week. But I'll be back soon so keep
> > posting and e-mailing me. And hopefully I'll catch up! And if anyone has
> > learned the art of saying "No!" to people begging you to volunteer for nine
> > million things at school, please let me know;)
>
> Talk to you all later!
> > Stressed-out Erin
>
> I hope you enjoy the class! And good luck practicing saying, "NO". :)
>
> P.S. to everyone:
> For those of you who haven't written to the group, I'd like to know if
> you can't relate to what we're talking about or because you're shy. Just
> a sentence or two will do.
>
>
_______________________________________________________________________________
>
_______________________________________________________________________________






Wed Oct 6, 1999 2:49 am

Ortiz3@xxxxxxx.xxxx
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Message #26 of 45 |
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I grind my teeth,but I have a mouth piece I wear at night that the dentist made for me.My jaw used to hurt.I'm going to another fertility center.They are...
Ortiz
Ortiz3@xxxxxxx.xxxx
Send Email
Oct 6, 1999
2:49 am

... Hi Ortiz, Yet another thing 3Betas may have in common. I've worn a bite guard for many years, too. It would be interesting to know if this imbalance also...
saxfiend
saxfiend@xxxx.xxxx
Send Email
Oct 6, 1999
6:19 pm
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