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CAHwith3BetaHSD · Congenital Adrenal Hyperplasia with 3 Beta HydroxySteroid Deficiency.
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Re: Quick Note From Deb (UPDATE)   Message List  
Reply | Forward Message #16 of 45 |
Quick Note from Deb:

Erin, I just wanted to thank you for getting the ball rolling.

I also want everyone to know about the DHEA web page I found
in case you didn't already hear about it. It rather interesting
for those of us who make too much DHEA (actually, that's all of
us reading this message). This is the web page tells about DHEA
and makes it sound as if it were a gift of the gods:

http://www.naples.net/~nfn03605/


I'd also like to remind people that we need one or two more
people in the group to to answer the poll for this newsgroup.
So far, three of us have taken it so we need one or two more
people to respond before I can take it down and put up the
next one. ALL the data I collect will be stored and used for
a study (if I can convince the powers that be).

TTFN,

Deb

Lastly, the news on the NIH front is this. One of my new doctors
is in touch with the doctor I've been talking about at NIH.
He's a very bright guy (I took a course from him after I knew
him as my doctor). There are also two major university teaching
hospitals where I live so somehow I'm going to give this my
all to see if we can get some testing for us. We're the rarest
form, so it probably wouldn't cost as much for them to test
us (at least this is one strategy I'll use when trying to
convince them to do it).



him as a doctor).





Tue Sep 28, 1999 7:48 am

saxfiend@xxxx.xxxx
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Quick Note from Deb: Erin, I just wanted to thank you for getting the ball rolling. I also want everyone to know about the DHEA web page I found in case you...
saxfiend
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Sep 28, 1999
7:48 am
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