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CAHsupport · This list is dedicated to the support of family members with Congenital Adrenal Hyperplasia and related disorders. We welcome
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Topics   (List as Individual Messages) Messages Latest Post

Hello, I am a new member of your group. I sent this email to the list owner but I'm not sure if it was posted before I joined so I'm posting it again. I am a ...
2 Apr 16, 2009
9:27 pm

roberta preston
bertiepreston
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i have a 21 month old son and a 6 week old son what are the chances of them having CAH and what are some early signs that i should look for in them?...
1 May 11, 2008
4:37 am

jenny77102003
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hello everyone i have a 21 month old daughter with swcah. she is the joy of my life and a dream come true! we have been through alot with her she goes to the...
1 May 9, 2008
7:29 am

mom2aka
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Hi, I am new to the list. I have a question. In my reading, it says that cortisol regulates energy level and sugar level. Does this mean that the child, before...
2 May 8, 2008
8:35 pm

Joe T
nuttydad52
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Hi All, My name is Doug. My wife and I have been married for 10 years. In 2002 our 1st son Andrew was born at 28 weeks. The NICU doctors tested and...
2 Apr 17, 2007
5:25 pm

jennifer dodge
jenny77102003
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My name is Trisha and my 1yr old daughter Maya has salt wasting CAH. It's so nice to find others to talk to, most people don't have a clue what I'm talking...
5 Mar 19, 2007
4:24 am

Mraine
trinitee_child
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Just saying hi from snowy Ohio. My daughter is now 13 months, is walking, weighs 17 lbs, and is sick all the time. Currently she has a virus in the form of a...
1 Feb 18, 2007
3:39 am

monidevone
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This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
1 Jan 23, 2006
6:49 pm

FriendsofTer2@...
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This is Mark and Teresa again and we have some new information for parents and those with this sometimes cruel condition. Me and Teresa have found out that on...
1 Jan 4, 2006
7:57 am

Mark and Teresa Smith
markandtcsmith
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hello everyone. me and my wife are trying to find anyone that have had to use dilators and find out about their experiances. My wife has CAH salt-wasting type....
1 Jul 11, 2005
2:09 am

Mark and Teresa Smith
markandtcsmith
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Hi: Anyone know where can I find doctors with expertise in complex adrenal problems like CAH? Thanks, Roberto...
3 Jun 25, 2005
6:03 pm

robertillo75
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For those of you who have been here a while, you know about the genital development web page at HSC. 3 weeks ago we had an additional section for CAH go up,...
1 Mar 14, 2005
4:51 pm

bneilbel
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Just a quick note to let the Canadian subscribers know, that I will be interviewed on the CBC radio show, "The Current" this week. (It is on radio 1 from 8:30...
1 Jul 26, 2004
5:07 pm

bneilbel
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thank you thank you thank you ...ill keep u posted There are 2 messages in this issue. Topics in this digest: 1. Mark and Teresa...!!!! PLease respond From:...
1 Jul 25, 2004
2:22 am

Lauren C.
trinitee_child
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my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i...
3 Jul 16, 2004
8:03 pm

Angela Strong
gyswife
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kelly leight to the main office kelly leight please dial 914 476 6696 ariel There is 1 message in this issue. Topics in this digest: 1. Oklahoma doctors ...
1 Jul 16, 2004
12:35 am

Lauren C.
trinitee_child
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hey gang i am needing to find a female that is an adult that has cah i need some insight into some thing if there are any that can help i'd greatly appreciate...
1 May 23, 2004
10:53 am

Mark and Teresa Smith
markandtcsmith
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Hi! I am looking for information/support. I recently adopted a daughter with SWCAH. She is two years old. I took her to the ped endrocrinologist last...
2 Apr 21, 2004
7:53 pm

Angela Strong
gyswife
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I don't know of any adult doctors, but I would suggest that you contact Department of Urology University of Oklahoma Health Sciences Center and contact Dr....
1 Mar 5, 2004
4:59 pm

Barbara Neilson
bneilbel
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Hello, we are so glad to have others in the same boat as us and we were wanting to shed a little light on the problems now that we know that this is a site to...
2 Mar 4, 2004
10:52 am

Angela Strong
gyswife
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Hi Mark and Theresa, I am Barbara Neilson, a paediatric urology social worker at Sick Kids in Toronto. I can't remember when I signed onto this group, but I...
1 Feb 26, 2004
12:08 am

Barbara Neilson
bneilbel
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Hello, we are Mark and Teresa Smith. Teresa is a 26 year old CAH patient (salt wasting type) and we are actually looking for someone that is having the same...
2 Feb 25, 2004
10:52 am

Angela Strong
gyswife
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Hi All, I'm new to this group and I have been on cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories. These are all CAH web sites. Anyway...
5 Jun 24, 2002
10:17 pm

Angela Strong
gyswife
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Hi all! Well we've all been relatively quiet lately, but I have a question for the more experienced folks here. The twins (I never call them that anywhere...
1 May 3, 2002
10:05 am

Angi Strong
gyswife
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Dear Friends, As discussed in an article on front page of today's NYTimes, http://www.nytimes.com/2002/04/11/technology/ebusiness/11PRIV.html Yahoo has decided...
1 Apr 12, 2002
1:34 am

CARES Foundation, Inc.
kleight1959
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Family Workshop on Congenital Adrenal Hyperplasia Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We give special thanks to the Texas...
1 Mar 11, 2002
1:42 am

preston
bertie7_98
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Well folks, I don't know who this Val is except that she posts on the CAH MB and has chosen to deluge folks who have posted on the MB (and put their email ...
1 Mar 2, 2002
7:56 pm

CARES Foundation, Inc.
kleight1959
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Deb - your question below - I don't think that this is part of Val new email list or we would be "banned". Apparently she is mad a whole group of people and...
2 Mar 2, 2002
5:58 pm

preston
preston@...
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Oh ... I do not disagree with Kelly about the inaccuracies of the article (mistakes)...she is very correct about that... just the title of the title is so...
4 Mar 2, 2002
5:30 pm

jrwatson@...
cah_mom
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Kelly is right. But I do think that the author was right... CAH is not black and white (zebra). CAH can range from mild or very severe (and places in...
1 Feb 28, 2002
2:19 am

preston
preston@...
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