Hello, we are Mark and Teresa Smith. Teresa is a 26 year old CAH patient (salt wasting type) and we are actually looking for someone that is having the same...
Dear Mark and Teresa, Welcome to the group. We're usually pretty quiet here unless someone has a specific question and then I find they are quite informative!...
Hi Mark and Theresa, I am Barbara Neilson, a paediatric urology social worker at Sick Kids in Toronto. I can't remember when I signed onto this group, but I...
Hello, we are so glad to have others in the same boat as us and we were wanting to shed a little light on the problems now that we know that this is a site to...
When Amanda and Elizabeth had their surgeries we were in Texas and then Salt Lake City Utah. The doctors we had were great, but they specialized in children....
I don't know of any adult doctors, but I would suggest that you contact Department of Urology University of Oklahoma Health Sciences Center and contact Dr....
Hi! I am looking for information/support. I recently adopted a daughter with SWCAH. She is two years old. I took her to the ped endrocrinologist last...
My girls didn't go through the early puberty. Right now we're at the point of trying to "start" things. At 15, only one has started her cycle. The other is...
hey gang i am needing to find a female that is an adult that has cah i need some insight into some thing if there are any that can help i'd greatly appreciate...
my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i...
kelly leight to the main office kelly leight please dial 914 476 6696 ariel There is 1 message in this issue. Topics in this digest: 1. Oklahoma doctors ...
Ariel, I have not heard of this technique. I would ask your surgeon the following questions. 1. What is the technique called? 2. How many of these surgeries...
Excellent questions. I would definitely start there. When we had "our" surgery, there was noone but the doctor to ask questions to...no support group to...
thank you thank you thank you ...ill keep u posted There are 2 messages in this issue. Topics in this digest: 1. Mark and Teresa...!!!! PLease respond From:...
Just a quick note to let the Canadian subscribers know, that I will be interviewed on the CBC radio show, "The Current" this week. (It is on radio 1 from 8:30...
For those of you who have been here a while, you know about the genital development web page at HSC. 3 weeks ago we had an additional section for CAH go up,...
Hi Robrto, My daughter has CAH and we have a wonderful doctor here in Pittsburgh. I suggest you go the C.A.R.E.S. foundation website. It is a wonderful...
Hi Joe: My name is Roberto from Mexico and I really don't know if I suffer from CAH, but I really need an expert in complex adrenal problems, as no one has...
hello everyone. me and my wife are trying to find anyone that have had to use dilators and find out about their experiances. My wife has CAH salt-wasting type....
This is Mark and Teresa again and we have some new information for parents and those with this sometimes cruel condition. Me and Teresa have found out that on...
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
FriendsofTer2@...
Jan 23, 2006 6:49 pm
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My name is Trisha and my 1yr old daughter Maya has salt wasting CAH. It's so nice to find others to talk to, most people don't have a clue what I'm talking...
Hi monique nice to meet you. Rather than trying to explain salt wasters, if you go to the CARES Foundation website it explains it, but basically she looses too...
I would suggest getting with your endocrinologist asap to make sure that she is on the proper dosage and also make sure that he has had at least one case in...
Just saying hi from snowy Ohio. My daughter is now 13 months, is walking, weighs 17 lbs, and is sick all the time. Currently she has a virus in the form of a...
... group, ... i went through that and the best feeling is kowing that youre not alone, this is a crazy trip that u will not wake up from and u learn to deal...
I hope that your daughter and your family will continue to remain strong and support each other I know that it very hard to stay strong knowing all of the...
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