CAHsupport : Messages : 177-206 of 242

Hello, we are Mark and Teresa Smith. Teresa is a 26 year old CAH
patient (salt wasting type) and we are actually looking for someone
that is having the same kinds of problems that we are and that could
hopefully direct us to where we can go to get some help. We have been
married for almost three years now and have never been able to
consumate our relationship and that is all I will say on that unless
I am asked for more info. We are looking to find someone who is in
the same situation to talk to and find some info about doctors and
other things as well. If you would like to know more feel free to
write us at markandtcsmith@.... We also have IM under the same
name.

                                                 Thanks,
                                           Mark and Teresa Smith

#205

From: "Angela Strong" <jaade1@...>
Date: Mon Jun 24, 2002 10:13 pm
Subject: Re: Re: Looking for help

gyswife

Offline

First, let me say I did not mean to offend, but this is the internet and
there are all kinds of people out there.  I set up this group as a support
for family members because that is what I am...a mother of twin girls with
CAH.  I had questions and hoped someone out there could help.  All sorts of
questions.  I'm game for anything.  But as open-minded as I think I am, this
is a family oriented page (as I made blatently obvious in the group
description) and I have a responsibility to the group more than for one
individual.

The following is the list description:
This list is dedicated to the support of family members with Congenital
Adrenal Hyperplasia and related disorders.   We welcome all questions and
discussions relating to this subject.   It is rare that we ever get to meet
someone else dealing with the same difficulties and we'd like to use this as
an opportunity to get to know each other, as well as inform new parents.
Please note that this is a family-oriented page and appropriate language is
required.

I do believe that Debbi gave you some options where you might find your
answers.  Just in case you missed it, here it is again:

At congenitaladrenalhyperplasia.org , there is a alternate forum where some
of
the your needs might be addressed. I think it is called controversies forum
or
something. There is also a LOCAH site and I think that forum is mostly adult
women.
-Debbi

So, before you go being "saddened and hurt" by my response, I want you to
realize that we were indeed trying to help you.  But this is not the site
for that discussion.  I could have just as easily deleted you from the
group.

Angi

----- Original Message -----
From: "kmlange27" <kmlange27@...>
To: <CAHsupport@yahoogroups.com>
Sent: Monday, June 24, 2002 12:51 AM
Subject: [CAHsupport] Re: Looking for help

> -Yes I thought it was a legitimate question that I could get answered,
> but I guess not. I was only asking for help and see that I may not get
> it here. If this site is only for parents where then will the kids go
> when they get to be legal age and start asking things like this?
>
> Angela I'm sadened and hurt by your response that you want this taken
> off the loop. You tell me where I should go then. Since I have been to
> all the other boards?
>
> Sincerely, Karen
>
>
>
>
> - In CAHsupport@y..., "Angela Strong" <jaade1@e...> wrote:
> > I certainly hope this is a legitimate question.  If that discussion
> could
> > take place off the loop, I would truly appreciate it.
> >
> > Angi
> >
> > ----- Original Message -----
> > From: "kmlange27" <kmlange27@y...>
> > To: <CAHsupport@y...>
> > Sent: Saturday, June 22, 2002 1:38 PM
> > Subject: [CAHsupport] Looking for help
> >
> >
> > > Hi All,
> > >
> > > I'm new to this group and I have been on
> > >
> cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories.
> > > These are all CAH web sites. Anyway I have tryed to find some adult
> > > female that I could talk to. I was born with SWCAH and I'm also a
> > > lesbian. I would like veery much if someone could please answer some
> > > questions having to do with being with other girls that do or don't
> > > have CAH.
> > >
> > > Karen
> > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
>
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#204

From: "kmlange27" <kmlange27@...>
Date: Mon Jun 24, 2002 4:51 am
Subject: Re: Looking for help

kmlange27

Offline

-Yes I thought it was a legitimate question that I could get answered,
but I guess not. I was only asking for help and see that I may not get
it here. If this site is only for parents where then will the kids go
when they get to be legal age and start asking things like this?

Angela I'm sadened and hurt by your response that you want this taken
off the loop. You tell me where I should go then. Since I have been to
all the other boards?

Sincerely, Karen




- In CAHsupport@y..., "Angela Strong" <jaade1@e...> wrote:
> I certainly hope this is a legitimate question.  If that discussion
could
> take place off the loop, I would truly appreciate it.
>
> Angi
>
> ----- Original Message -----
> From: "kmlange27" <kmlange27@y...>
> To: <CAHsupport@y...>
> Sent: Saturday, June 22, 2002 1:38 PM
> Subject: [CAHsupport] Looking for help
>
>
> > Hi All,
> >
> > I'm new to this group and I have been on
> >
cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories.
> > These are all CAH web sites. Anyway I have tryed to find some adult
> > female that I could talk to. I was born with SWCAH and I'm also a
> > lesbian. I would like veery much if someone could please answer some
> > questions having to do with being with other girls that do or don't
> > have CAH.
> >
> > Karen
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >

#203

From: jrwatson@...
Date: Sun Jun 23, 2002 2:00 pm
Subject: Re: Looking for help

cah_mom

Offline

At congenitaladrenalhyperplasia.org , there is a alternate forum where some of
the your needs might be addressed.  I think it is called controversies forum or
something.  There is also a LOCAH site and I think that forum is mostly adult
women.
-Debbi


Quoting Angela Strong <jaade1@...>:

> I certainly hope this is a legitimate question.  If that discussion
> could
> take place off the loop, I would truly appreciate it.
>
> Angi
>
> ----- Original Message -----
> From: "kmlange27" <kmlange27@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, June 22, 2002 1:38 PM
> Subject: [CAHsupport] Looking for help
>
>
> > Hi All,
> >
> > I'm new to this group and I have been on
> >
> cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories.
> > These are all CAH web sites. Anyway I have tryed to find some adult
> > female that I could talk to. I was born with SWCAH and I'm also a
> > lesbian. I would like veery much if someone could please answer some
> > questions having to do with being with other girls that do or don't
> > have CAH.
> >
> > Karen
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ------------------------ Yahoo! Groups Sponsor
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

#202

From: "Angela Strong" <jaade1@...>
Date: Sun Jun 23, 2002 4:13 am
Subject: Re: Looking for help

gyswife

Offline

I certainly hope this is a legitimate question.  If that discussion could
take place off the loop, I would truly appreciate it.

Angi

----- Original Message -----
From: "kmlange27" <kmlange27@...>
To: <CAHsupport@yahoogroups.com>
Sent: Saturday, June 22, 2002 1:38 PM
Subject: [CAHsupport] Looking for help


> Hi All,
>
> I'm new to this group and I have been on
> cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories.
> These are all CAH web sites. Anyway I have tryed to find some adult
> female that I could talk to. I was born with SWCAH and I'm also a
> lesbian. I would like veery much if someone could please answer some
> questions having to do with being with other girls that do or don't
> have CAH.
>
> Karen
>
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#201

From: "kmlange27" <kmlange27@...>
Date: Sat Jun 22, 2002 5:38 pm
Subject: Looking for help

kmlange27

Offline

Hi All,

I'm new to this group and I have been on
cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories.
These are all CAH web sites. Anyway I have tryed to find some adult
female that I could talk to. I was born with SWCAH and I'm also a
lesbian. I would like veery much if someone could please answer some
questions having to do with being with other girls that do or don't
have CAH.

Karen

#200

From: "Angi Strong" <jaade1@...>
Date: Fri May 3, 2002 10:01 am
Subject: (No subject)

gyswife

Offline

Hi all!

Well we've all been relatively quiet lately, but I have a question for the more experienced folks here. The twins (I never call them that anywhere else, but somehow here I always do...LOL!!) had their regular check-up Monday with yet again, another new doctor. Ahhhh, the joys of being in the military and moving around constantly! LOL! Anyway, he seemed nice enough and requested all of the same tests, gave me some more information that of course, we've all heard over and over. But then surprise! He wants to change their meds from cortef to prednisone suddenly. We've been on 3 daily doses of cortef for 13 years and have grown pretty comfortable with it. And I've never heard anything positive about prednisone...there's the weight gain, and so many other side effects I've recently heard about. He said we could wait until their next appointment to do it so I could do some research and feel more comfortable with this decision. So, anybody......HELP! Positive experiences, negative, etc. I'm willing to listen to everything!

Thanks in advance,

Angi

#199

From: "CARES Foundation, Inc." <Kelly@...>
Date: Fri Apr 12, 2002 1:42 am
Subject: Yahoo changes

kleight1959

Offline

Dear Friends,

As discussed in an article on front page of today's NYTimes,
http://www.nytimes.com/2002/04/11/technology/ebusiness/11PRIV.html
Yahoo has decided to sell contact info for all its groups subscribers
(including you!)
to marketers.

Thanks to Jillaine Smith for the following info on how to avoid YahooGroup
spam:

Yahoo has just made a sneaky change to everybody's 'Marketing Preferences',
the result of which will be a load of spam. To change them back here's what
you need to do to avoid all the ads: Go to http://www.yahoogroups.com and
login to your account. Choose "My Groups" (right side of screen) after
logged in. Then choose "Account Info" at the top right of your screen.
Input your password to get into your Account Info page. Your Yahoo ID card
comes up. Click on 'Edit your Marketing Preferences' about halfway down the
page. Notice that all your boxes now say "yes" instead of "no"??? If so,
change them all back to "no" and BE SURE TO READ ALL THE WAY TO THE END OF
THE PAGE as there are more below! Input the e-mail address to send any mail
to (gee, mine was set to a Yahoo acct I never check anyway.) Say "no" if
you don't want to get "deals" by snail mail or phone either (no, thanks.)
CLICK TO SAVE CHANGES.

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
973-912-3895
866-227-3737 (toll free)
email: kelly@...
URL: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only. CARES Foundation, Inc. does not specifically endorse or recommend these physicians.

#198

From: "preston" <preston@...>
Date: Mon Mar 11, 2002 1:41 am
Subject: Re: Digest Number 86

bertie7_98

Offline

Family Workshop on

Congenital Adrenal Hyperplasia


Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We
give special thanks to the Texas Department of Health, Newborn Screening
Department and to Texas Children's Hospital for their support of this event.

When: Saturday, April 27th

Time: 1:00pm to 5:00pm

Where: Meyer Building @ 1919 S. Braeswood, Houston, TX (Major cross street
is Greenbriar)

Guest Speakers:

Maria I. New, M.D.

Professor and Chairman, Department of Pediatrics
Chief, Division of Pediatric Endocrinology

Dr. New is world renown for her work in the area of CAH.

Sheila Gunn, M.D.

Assistant Professor, Diabetes and Endocrine Center at Texas Children's
Hospital



Sheri Berenbaum, Ph.D., Professor of Psychology at Penn State University,
CAH researcher, editor of the journal Behavioral Genetics and member of the
North American Task Force on Intersexuality.

Topics:

Prenatal therapy

New advancements in CAH treatment

Research for a cure

General treatment of CAH

The Psychological Aspects of CAH

Parent Question and Answer

Parent discussion (Networking)

(Topics may vary)

It will be held in the conference rooms on the 1st floor of the Meyer
Building. Parking is available in the security garage across from the street
from the Meyer Building. You only need to notify the guard that you are
there for the CAH Conference and sign in. There is NO cost for the
conference or the parking.

We would love to have your support. The doctors have been gracious to
provide their time at no cost to us so that we can bring you information,
education and support. Our goal is to form a network of Texas families that
we can draw support from as our children grow and we are presented with
question and problems. We hope you can attend. Light refreshments will be
served.


Babysitting will not be available, so please make arrangement. For out of
town families that would like information on where to stay, please contact
Sandra Billings at the phone number below.




RSVP to Sandra Billings either by returning this form to Sandra Billings
17410 Crosscove Ct. Houston, TX 77095, by email to billprop@... or by
phone at (281) 861-6043.

(Please, send back this RSVP even if you're not coming as we are trying to
keep our database updated and like to confirm that we have the correct
addresses. We are also starting to collect everyone's emails so that we can
add you to our email list for more events and our quarterly newsletters-
Thanks!)

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Sunday, March 03, 2002 4:48 PM
Subject: [CAHsupport] Digest Number 86


> There are 4 messages in this issue.
>
> Topics in this digest:
>
>       1. Re: Digest Number 85
>            From: "preston" <preston@...>
>       2. Re: Digest Number 84
>            From: jrwatson@...
>       3. Re: Digest Number 85
>            From: "preston" <preston@...>
>       4. Who is Val
>            From: "CARES Foundation, Inc." <Kelly@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Sat, 2 Mar 2002 12:27:41 -0500
>    From: "preston" <preston@...>
> Subject: Re: Digest Number 85
>
> Deb - your question below - I don't think that this is part of Val new
email
> list or we would be "banned". Apparently she is mad a whole group of
people
> and Kelly, you and I are part of that list. Val's new group is on MSN and
> this is yahoo (I don't remember who started it - I'll need to look) No one
> seem to post on this site such anyway.
>
> quote from deb:
> Is it from this list that Val Jefferies has been mailing in bulk?  I have
no
> idea what transpired on the CAH board, but wondered why I was part of her
> list
> since I have not commented one way or the other about ANY topic recently.
> -Debbi W
>
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, March 02, 2002 12:05 PM
> Subject: [CAHsupport] Digest Number 85
>
>
> > There are 3 messages in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: Digest Number 84
> >            From: "preston" <preston@...>
> >       2. Re: Digest Number 84
> >            From: jrwatson@...
> >       3. Re: Digest Number 84
> >            From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Fri, 1 Mar 2002 23:49:09 -0500
> >    From: "preston" <preston@...>
> > Subject: Re: Digest Number 84
> >
> > Oh ... I do not disagree with Kelly about the inaccuracies of the
article
> > (mistakes)...she is very correct about that... just the title of the
title
> > is so striking!!
> >
> > Roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Thursday, February 28, 2002 8:18 AM
> > Subject: [CAHsupport] Digest Number 84
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: Digest Number 83
> > >            From: "preston" <preston@...>
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > >    From: "preston" <preston@...>
> > > Subject: Re: Digest Number 83
> > >
> > > Kelly is right.  But I do think that the author was right... CAH is
not
> > > black and white (zebra). CAH can range from mild or very severe (and
> > places
> > > in between).
> > >
> > > roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Saturday, February 23, 2002 6:45 AM
> > > Subject: [CAHsupport] Digest Number 83
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: PCOS and LOCAH
> > > >            From: "CARES Foundation, Inc."
<Kelly@...>
> > > >
> > > >
> > > >
> ________________________________________________________________________
> > > >
> ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > Subject: Re: PCOS and LOCAH
> > > >
> > > > The "Zebra" article has some inaccuracies. I don't encourage folks
to
> > > refer to it.
> > > >
> > > > While this article is long, it explains the link between PCOS and
> LOCAH
> > > extremely well and in depth:
> > > >
> > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > Hope this helps.
> > > > Kelly
> > > >
> > > >
> > > > Kelly R. Leight, Executive Director
> > > > CARES Foundation, Inc.
> > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > 973-912-3895
> > > > 866-227-3737 (toll free)
> > > > email: kelly@...
> > > > URL: www.caresfoundation.org
> > > > Disclaimer:
> > > > Any communication from CARES Foundation, Inc. is intended for
> > > informational and educational purposes only and in no way should be
> taken
> > to
> > > be the provision or practice of medical, nursing or professional
> > health-care
> > > advice or services.  The information should not be considered complete
> or
> > > exhaustive and should not be used in place of the visit, call,
> > consultation
> > > or advice of your physician or other health-care provider.  You should
> not
> > > use the information in this or any CARES Foundation, Inc.
communication
> to
> > > diagnose or treat CAH or any other disorder without first consulting
> with
> > > your physician or healthcare provider. Any referral to physicians is
> > > provided as a courtesy only.  CARES Foundation, Inc. does not
> specifically
> > > endorse or recommend these physicians.
> > > >
> > > >
> > > >
> > > > [This message contained attachments]
> > > >
> > > >
> > > >
> > > >
> ________________________________________________________________________
> > > >
> ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> >    Date: Sat, 02 Mar 2002 10:03:39 -0600 (CST)
> >    From: jrwatson@...
> > Subject: Re: Digest Number 84
> >
> > Is it from this list that Val Jefferies has been mailing in bulk?  I
have
> no
> > idea what transpired on the CAH board, but wondered why I was part of
her
> list
> > since I have not commented one way or the other about ANY topic
recently.
> > -Debbi W
> >
> > Quoting preston <preston@...>:
> >
> > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > article
> > > (mistakes)...she is very correct about that... just the title of the
> > > title
> > > is so striking!!
> > >
> > > Roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Thursday, February 28, 2002 8:18 AM
> > > Subject: [CAHsupport] Digest Number 84
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: Digest Number 83
> > > >            From: "preston" <preston@...>
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > >    From: "preston" <preston@...>
> > > > Subject: Re: Digest Number 83
> > > >
> > > > Kelly is right.  But I do think that the author was right... CAH is
> > > not
> > > > black and white (zebra). CAH can range from mild or very severe (and
> > > places
> > > > in between).
> > > >
> > > > roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > Subject: [CAHsupport] Digest Number 83
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: PCOS and LOCAH
> > > > >            From: "CARES Foundation, Inc."
> > > <Kelly@...>
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > Subject: Re: PCOS and LOCAH
> > > > >
> > > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > > to
> > > > refer to it.
> > > > >
> > > > > While this article is long, it explains the link between PCOS and
> > > LOCAH
> > > > extremely well and in depth:
> > > > >
> > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > Hope this helps.
> > > > > Kelly
> > > > >
> > > > >
> > > > > Kelly R. Leight, Executive Director
> > > > > CARES Foundation, Inc.
> > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > 973-912-3895
> > > > > 866-227-3737 (toll free)
> > > > > email: kelly@...
> > > > > URL: www.caresfoundation.org
> > > > > Disclaimer:
> > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > informational and educational purposes only and in no way should be
> > > taken
> > > to
> > > > be the provision or practice of medical, nursing or professional
> > > health-care
> > > > advice or services.  The information should not be considered
complete
> > > or
> > > > exhaustive and should not be used in place of the visit, call,
> > > consultation
> > > > or advice of your physician or other health-care provider.  You
should
> > > not
> > > > use the information in this or any CARES Foundation, Inc.
> > > communication to
> > > > diagnose or treat CAH or any other disorder without first consulting
> > > with
> > > > your physician or healthcare provider. Any referral to physicians is
> > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > specifically
> > > > endorse or recommend these physicians.
> > > > >
> > > > >
> > > > >
> > > > > [This message contained attachments]
> > > > >
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 3
> >    Date: Sat, 2 Mar 2002 11:07:34 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Re: Digest Number 84
> >
> > Who is Val Jefferies?
> >
> > Angi
> >
> >
> > ----- Original Message -----
> > From: <jrwatson@...>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, March 02, 2002 11:03 AM
> > Subject: Re: [CAHsupport] Digest Number 84
> >
> >
> > > Is it from this list that Val Jefferies has been mailing in bulk?  I
> have
> > no
> > > idea what transpired on the CAH board, but wondered why I was part of
> her
> > list
> > > since I have not commented one way or the other about ANY topic
> recently.
> > > -Debbi W
> > >
> > > Quoting preston <preston@...>:
> > >
> > > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > > article
> > > > (mistakes)...she is very correct about that... just the title of the
> > > > title
> > > > is so striking!!
> > > >
> > > > Roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Thursday, February 28, 2002 8:18 AM
> > > > Subject: [CAHsupport] Digest Number 84
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: Digest Number 83
> > > > >            From: "preston" <preston@...>
> > > > >
> > > > >
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > > >    From: "preston" <preston@...>
> > > > > Subject: Re: Digest Number 83
> > > > >
> > > > > Kelly is right.  But I do think that the author was right... CAH
is
> > > > not
> > > > > black and white (zebra). CAH can range from mild or very severe
(and
> > > > places
> > > > > in between).
> > > > >
> > > > > roberta
> > > > > ----- Original Message -----
> > > > > From: <CAHsupport@yahoogroups.com>
> > > > > To: <CAHsupport@yahoogroups.com>
> > > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > > Subject: [CAHsupport] Digest Number 83
> > > > >
> > > > >
> > > > > > There is 1 message in this issue.
> > > > > >
> > > > > > Topics in this digest:
> > > > > >
> > > > > >       1. Re: PCOS and LOCAH
> > > > > >            From: "CARES Foundation, Inc."
> > > > <Kelly@...>
> > > > > >
> > > > > >
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > > > > Message: 1
> > > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > > Subject: Re: PCOS and LOCAH
> > > > > >
> > > > > > The "Zebra" article has some inaccuracies. I don't encourage
folks
> > > > to
> > > > > refer to it.
> > > > > >
> > > > > > While this article is long, it explains the link between PCOS
and
> > > > LOCAH
> > > > > extremely well and in depth:
> > > > > >
> > > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > > Hope this helps.
> > > > > > Kelly
> > > > > >
> > > > > >
> > > > > > Kelly R. Leight, Executive Director
> > > > > > CARES Foundation, Inc.
> > > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > > 973-912-3895
> > > > > > 866-227-3737 (toll free)
> > > > > > email: kelly@...
> > > > > > URL: www.caresfoundation.org
> > > > > > Disclaimer:
> > > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > > informational and educational purposes only and in no way should
be
> > > > taken
> > > > to
> > > > > be the provision or practice of medical, nursing or professional
> > > > health-care
> > > > > advice or services.  The information should not be considered
> complete
> > > > or
> > > > > exhaustive and should not be used in place of the visit, call,
> > > > consultation
> > > > > or advice of your physician or other health-care provider.  You
> should
> > > > not
> > > > > use the information in this or any CARES Foundation, Inc.
> > > > communication to
> > > > > diagnose or treat CAH or any other disorder without first
consulting
> > > > with
> > > > > your physician or healthcare provider. Any referral to physicians
is
> > > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > > specifically
> > > > > endorse or recommend these physicians.
> > > > > >
> > > > > >
> > > > > >
> > > > > > [This message contained attachments]
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > > > >
> > > > > >
> > > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > > >
> > > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > > ------------------------ Yahoo! Groups Sponsor
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Sat, 02 Mar 2002 11:30:39 -0600 (CST)
>    From: jrwatson@...
> Subject: Re: Digest Number 84
>
> Nevermind.....I was just wondering what list I was on that I was recieving
e-
> mail and thought this group might have been the source.  Since I don't
know the
> source, I'd rather not gossip as it would only be guessing.  She is
another CAH
> mother who corresponds via the net.DebbiW
>
>
> Quoting Angi Strong <jaade1@...>:
>
> > Who is Val Jefferies?
> >
> > Angi
> >
> >
> > ----- Original Message -----
> > From: <jrwatson@...>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, March 02, 2002 11:03 AM
> > Subject: Re: [CAHsupport] Digest Number 84
> >
> >
> > > Is it from this list that Val Jefferies has been mailing in bulk?  I
> > have
> > no
> > > idea what transpired on the CAH board, but wondered why I was part of
> > her
> > list
> > > since I have not commented one way or the other about ANY topic
> > recently.
> > > -Debbi W
> > >
> > > Quoting preston <preston@...>:
> > >
> > > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > > article
> > > > (mistakes)...she is very correct about that... just the title of
> > the
> > > > title
> > > > is so striking!!
> > > >
> > > > Roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Thursday, February 28, 2002 8:18 AM
> > > > Subject: [CAHsupport] Digest Number 84
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: Digest Number 83
> > > > >            From: "preston" <preston@...>
> > > > >
> > > > >
> > > > >
> > > >
> > ________________________________________________________________________
> > > > >
> > > >
> > ________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > > >    From: "preston" <preston@...>
> > > > > Subject: Re: Digest Number 83
> > > > >
> > > > > Kelly is right.  But I do think that the author was right... CAH
> > is
> > > > not
> > > > > black and white (zebra). CAH can range from mild or very severe
> > (and
> > > > places
> > > > > in between).
> > > > >
> > > > > roberta
> > > > > ----- Original Message -----
> > > > > From: <CAHsupport@yahoogroups.com>
> > > > > To: <CAHsupport@yahoogroups.com>
> > > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > > Subject: [CAHsupport] Digest Number 83
> > > > >
> > > > >
> > > > > > There is 1 message in this issue.
> > > > > >
> > > > > > Topics in this digest:
> > > > > >
> > > > > >       1. Re: PCOS and LOCAH
> > > > > >            From: "CARES Foundation, Inc."
> > > > <Kelly@...>
> > > > > >
> > > > > >
> > > > > >
> > > >
> > ________________________________________________________________________
> > > > > >
> > > >
> > ________________________________________________________________________
> > > > > >
> > > > > > Message: 1
> > > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > > Subject: Re: PCOS and LOCAH
> > > > > >
> > > > > > The "Zebra" article has some inaccuracies. I don't encourage
> > folks
> > > > to
> > > > > refer to it.
> > > > > >
> > > > > > While this article is long, it explains the link between PCOS
> > and
> > > > LOCAH
> > > > > extremely well and in depth:
> > > > > >
> > > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > > Hope this helps.
> > > > > > Kelly
> > > > > >
> > > > > >
> > > > > > Kelly R. Leight, Executive Director
> > > > > > CARES Foundation, Inc.
> > > > > > (Congenital Adrenal hyperplasia Research, Education and
> > Support)
> > > > > > 973-912-3895
> > > > > > 866-227-3737 (toll free)
> > > > > > email: kelly@...
> > > > > > URL: www.caresfoundation.org
> > > > > > Disclaimer:
> > > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > > informational and educational purposes only and in no way should
> > be
> > > > taken
> > > > to
> > > > > be the provision or practice of medical, nursing or professional
> > > > health-care
> > > > > advice or services.  The information should not be considered
> > complete
> > > > or
> > > > > exhaustive and should not be used in place of the visit, call,
> > > > consultation
> > > > > or advice of your physician or other health-care provider.  You
> > should
> > > > not
> > > > > use the information in this or any CARES Foundation, Inc.
> > > > communication to
> > > > > diagnose or treat CAH or any other disorder without first
> > consulting
> > > > with
> > > > > your physician or healthcare provider. Any referral to physicians
> > is
> > > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > > specifically
> > > > > endorse or recommend these physicians.
> > > > > >
> > > > > >
> > > > > >
> > > > > > [This message contained attachments]
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > >
> > ________________________________________________________________________
> > > > > >
> > > >
> > ________________________________________________________________________
> > > > > >
> > > > > >
> > > > > >
> > > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > > >
> > > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
> > ________________________________________________________________________
> > > > >
> > > >
> > ________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > > ------------------------ Yahoo! Groups Sponsor
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
>    Date: Sat, 2 Mar 2002 12:58:22 -0500
>    From: "preston" <preston@...>
> Subject: Re: Digest Number 85
>
> Sorry for any confusion (the zebra article has nothing to do with Val and
> all her emails to everyone about Danny Carlton). She wanted Danny to let
her
> back into the group. Danny banned her from the group for bashing. All
email
> loops have bashing rules and the owners can decide who they want in the
> group. It looks really firm at this point that Danny is not going to
change
> his mind about Val (she is banned from his group). He said that he had
given
> too many chances already.
>
> Why did Val email us (or a certain number of people) - I don't know. She
was
> upset about the Danny obviously.
>
> Go to this web site to see who is a member  or whatever -
> http://groups.yahoo.com/group/CAHsupport/ of this email loop  started by
> "Angi Strong" <jaade1@...> in 1999 or so,
>
> Again - Val is upset about the message board that Danny Carlton runs  --
> http://www.congenitaladrenalhyperplasia.org/mb/ and has her own group now
on
> MSN  now on this web site below ( a member or guest  thing like this yahoo
> one that Angi is doing) - http://communities
> .msn.co.nz/congenitaladrenalhyperplasia/chat
>
>
>
>
>
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, March 02, 2002 12:05 PM
> Subject: [CAHsupport] Digest Number 85
>
>
> > There are 3 messages in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: Digest Number 84
> >            From: "preston" <preston@...>
> >       2. Re: Digest Number 84
> >            From: jrwatson@...
> >       3. Re: Digest Number 84
> >            From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Fri, 1 Mar 2002 23:49:09 -0500
> >    From: "preston" <preston@...>
> > Subject: Re: Digest Number 84
> >
> > Oh ... I do not disagree with Kelly about the inaccuracies of the
article
> > (mistakes)...she is very correct about that... just the title of the
title
> > is so striking!!
> >
> > Roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Thursday, February 28, 2002 8:18 AM
> > Subject: [CAHsupport] Digest Number 84
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: Digest Number 83
> > >            From: "preston" <preston@...>
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > >    From: "preston" <preston@...>
> > > Subject: Re: Digest Number 83
> > >
> > > Kelly is right.  But I do think that the author was right... CAH is
not
> > > black and white (zebra). CAH can range from mild or very severe (and
> > places
> > > in between).
> > >
> > > roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Saturday, February 23, 2002 6:45 AM
> > > Subject: [CAHsupport] Digest Number 83
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: PCOS and LOCAH
> > > >            From: "CARES Foundation, Inc."
<Kelly@...>
> > > >
> > > >
> > > >
> ________________________________________________________________________
> > > >
> ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > Subject: Re: PCOS and LOCAH
> > > >
> > > > The "Zebra" article has some inaccuracies. I don't encourage folks
to
> > > refer to it.
> > > >
> > > > While this article is long, it explains the link between PCOS and
> LOCAH
> > > extremely well and in depth:
> > > >
> > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > Hope this helps.
> > > > Kelly
> > > >
> > > >
> > > > Kelly R. Leight, Executive Director
> > > > CARES Foundation, Inc.
> > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > 973-912-3895
> > > > 866-227-3737 (toll free)
> > > > email: kelly@...
> > > > URL: www.caresfoundation.org
> > > > Disclaimer:
> > > > Any communication from CARES Foundation, Inc. is intended for
> > > informational and educational purposes only and in no way should be
> taken
> > to
> > > be the provision or practice of medical, nursing or professional
> > health-care
> > > advice or services.  The information should not be considered complete
> or
> > > exhaustive and should not be used in place of the visit, call,
> > consultation
> > > or advice of your physician or other health-care provider.  You should
> not
> > > use the information in this or any CARES Foundation, Inc.
communication
> to
> > > diagnose or treat CAH or any other disorder without first consulting
> with
> > > your physician or healthcare provider. Any referral to physicians is
> > > provided as a courtesy only.  CARES Foundation, Inc. does not
> specifically
> > > endorse or recommend these physicians.
> > > >
> > > >
> > > >
> > > > [This message contained attachments]
> > > >
> > > >
> > > >
> > > >
> ________________________________________________________________________
> > > >
> ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> >    Date: Sat, 02 Mar 2002 10:03:39 -0600 (CST)
> >    From: jrwatson@...
> > Subject: Re: Digest Number 84
> >
> > Is it from this list that Val Jefferies has been mailing in bulk?  I
have
> no
> > idea what transpired on the CAH board, but wondered why I was part of
her
> list
> > since I have not commented one way or the other about ANY topic recently
.
> > -Debbi W
> >
> > Quoting preston <preston@...>:
> >
> > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > article
> > > (mistakes)...she is very correct about that... just the title of the
> > > title
> > > is so striking!!
> > >
> > > Roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Thursday, February 28, 2002 8:18 AM
> > > Subject: [CAHsupport] Digest Number 84
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: Digest Number 83
> > > >            From: "preston" <preston@...>
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > >    From: "preston" <preston@...>
> > > > Subject: Re: Digest Number 83
> > > >
> > > > Kelly is right.  But I do think that the author was right... CAH is
> > > not
> > > > black and white (zebra). CAH can range from mild or very severe (and
> > > places
> > > > in between).
> > > >
> > > > roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > Subject: [CAHsupport] Digest Number 83
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: PCOS and LOCAH
> > > > >            From: "CARES Foundation, Inc."
> > > <Kelly@...>
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > Subject: Re: PCOS and LOCAH
> > > > >
> > > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > > to
> > > > refer to it.
> > > > >
> > > > > While this article is long, it explains the link between PCOS and
> > > LOCAH
> > > > extremely well and in depth:
> > > > >
> > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > Hope this helps.
> > > > > Kelly
> > > > >
> > > > >
> > > > > Kelly R. Leight, Executive Director
> > > > > CARES Foundation, Inc.
> > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > 973-912-3895
> > > > > 866-227-3737 (toll free)
> > > > > email: kelly@...
> > > > > URL: www.caresfoundation.org
> > > > > Disclaimer:
> > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > informational and educational purposes only and in no way should be
> > > taken
> > > to
> > > > be the provision or practice of medical, nursing or professional
> > > health-care
> > > > advice or services.  The information should not be considered
complete
> > > or
> > > > exhaustive and should not be used in place of the visit, call,
> > > consultation
> > > > or advice of your physician or other health-care provider.  You
should
> > > not
> > > > use the information in this or any CARES Foundation, Inc.
> > > communication to
> > > > diagnose or treat CAH or any other disorder without first consulting
> > > with
> > > > your physician or healthcare provider. Any referral to physicians is
> > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > specifically
> > > > endorse or recommend these physicians.
> > > > >
> > > > >
> > > > >
> > > > > [This message contained attachments]
> > > > >
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 3
> >    Date: Sat, 2 Mar 2002 11:07:34 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Re: Digest Number 84
> >
> > Who is Val Jefferies?
> >
> > Angi
> >
> >
> > ----- Original Message -----
> > From: <jrwatson@...>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, March 02, 2002 11:03 AM
> > Subject: Re: [CAHsupport] Digest Number 84
> >
> >
> > > Is it from this list that Val Jefferies has been mailing in bulk?  I
> have
> > no
> > > idea what transpired on the CAH board, but wondered why I was part of
> her
> > list
> > > since I have not commented one way or the other about ANY topic
> recently.
> > > -Debbi W
> > >
> > > Quoting preston <preston@...>:
> > >
> > > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > > article
> > > > (mistakes)...she is very correct about that... just the title of the
> > > > title
> > > > is so striking!!
> > > >
> > > > Roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Thursday, February 28, 2002 8:18 AM
> > > > Subject: [CAHsupport] Digest Number 84
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: Digest Number 83
> > > > >            From: "preston" <preston@...>
> > > > >
> > > > >
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > > >    From: "preston" <preston@...>
> > > > > Subject: Re: Digest Number 83
> > > > >
> > > > > Kelly is right.  But I do think that the author was right... CAH
is
> > > > not
> > > > > black and white (zebra). CAH can range from mild or very severe
(and
> > > > places
> > > > > in between).
> > > > >
> > > > > roberta
> > > > > ----- Original Message -----
> > > > > From: <CAHsupport@yahoogroups.com>
> > > > > To: <CAHsupport@yahoogroups.com>
> > > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > > Subject: [CAHsupport] Digest Number 83
> > > > >
> > > > >
> > > > > > There is 1 message in this issue.
> > > > > >
> > > > > > Topics in this digest:
> > > > > >
> > > > > >       1. Re: PCOS and LOCAH
> > > > > >            From: "CARES Foundation, Inc."
> > > > <Kelly@...>
> > > > > >
> > > > > >
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > > > > Message: 1
> > > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > > Subject: Re: PCOS and LOCAH
> > > > > >
> > > > > > The "Zebra" article has some inaccuracies. I don't encourage
folks
> > > > to
> > > > > refer to it.
> > > > > >
> > > > > > While this article is long, it explains the link between PCOS
and
> > > > LOCAH
> > > > > extremely well and in depth:
> > > > > >
> > > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > > Hope this helps.
> > > > > > Kelly
> > > > > >
> > > > > >
> > > > > > Kelly R. Leight, Executive Director
> > > > > > CARES Foundation, Inc.
> > > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > > 973-912-3895
> > > > > > 866-227-3737 (toll free)
> > > > > > email: kelly@...
> > > > > > URL: www.caresfoundation.org
> > > > > > Disclaimer:
> > > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > > informational and educational purposes only and in no way should
be
> > > > taken
> > > > to
> > > > > be the provision or practice of medical, nursing or professional
> > > > health-care
> > > > > advice or services.  The information should not be considered
> complete
> > > > or
> > > > > exhaustive and should not be used in place of the visit, call,
> > > > consultation
> > > > > or advice of your physician or other health-care provider.  You
> should
> > > > not
> > > > > use the information in this or any CARES Foundation, Inc.
> > > > communication to
> > > > > diagnose or treat CAH or any other disorder without first
consulting
> > > > with
> > > > > your physician or healthcare provider. Any referral to physicians
is
> > > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > > specifically
> > > > > endorse or recommend these physicians.
> > > > > >
> > > > > >
> > > > > >
> > > > > > [This message contained attachments]
> > > > > >
> > > > > >
> > > > > >
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > >
> ________________________________________________________________________
> > > > > >
> > > > > >
> > > > > >
> > > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > > >
> > > > > >
> > > > >
> > > > >
> > > > >
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > >
> ________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > > ------------------------ Yahoo! Groups Sponsor
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
>    Date: Sat, 2 Mar 2002 15:03:54 -0500
>    From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Who is Val
>
> Well folks,
> I don't know who this Val is except that she posts on the CAH MB and has
> chosen to deluge folks who have posted on the MB (and put their email
> address on their posts) with these emails because she has been banned (or
so
> I gather from her emails). She has also chosen to target my organization
for
> some reason, which I really don't understand. I am bewildered. I think it
> was because her last post in response to one of my posts caused the
> moderator to ban finally her. So, she blames me and my organization. But,
I
> am only guessing.
> I don't know what to say except that I am saddened that CARES and I became
> the target of her incomprehensible emails.
> Kelly
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#197

From: "CARES Foundation, Inc." <Kelly@...>
Date: Sat Mar 2, 2002 8:03 pm
Subject: Who is Val

kleight1959

Offline

Well folks,
I don't know who this Val is except that she posts on the CAH MB and has
chosen to deluge folks who have posted on the MB (and put their email
address on their posts) with these emails because she has been banned (or so
I gather from her emails). She has also chosen to target my organization for
some reason, which I really don't understand. I am bewildered. I think it
was because her last post in response to one of my posts caused the
moderator to ban finally her. So, she blames me and my organization. But, I
am only guessing.
I don't know what to say except that I am saddened that CARES and I became
the target of her incomprehensible emails.
Kelly

#196

From: "preston" <preston@...>
Date: Sat Mar 2, 2002 5:58 pm
Subject: Re: Digest Number 85

preston@...

Sorry for any confusion (the zebra article has nothing to do with Val and
all her emails to everyone about Danny Carlton). She wanted Danny to let her
back into the group. Danny banned her from the group for bashing. All email
loops have bashing rules and the owners can decide who they want in the
group. It looks really firm at this point that Danny is not going to change
his mind about Val (she is banned from his group). He said that he had given
too many chances already.

Why did Val email us (or a certain number of people) - I don't know. She was
upset about the Danny obviously.

Go to this web site to see who is a member  or whatever -
http://groups.yahoo.com/group/CAHsupport/ of this email loop  started by
"Angi Strong" <jaade1@...> in 1999 or so,

Again - Val is upset about the message board that Danny Carlton runs  --
http://www.congenitaladrenalhyperplasia.org/mb/ and has her own group now on
MSN  now on this web site below ( a member or guest  thing like this yahoo
one that Angi is doing) - http://communities
.msn.co.nz/congenitaladrenalhyperplasia/chat






----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Saturday, March 02, 2002 12:05 PM
Subject: [CAHsupport] Digest Number 85


> There are 3 messages in this issue.
>
> Topics in this digest:
>
>       1. Re: Digest Number 84
>            From: "preston" <preston@...>
>       2. Re: Digest Number 84
>            From: jrwatson@...
>       3. Re: Digest Number 84
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Fri, 1 Mar 2002 23:49:09 -0500
>    From: "preston" <preston@...>
> Subject: Re: Digest Number 84
>
> Oh ... I do not disagree with Kelly about the inaccuracies of the article
> (mistakes)...she is very correct about that... just the title of the title
> is so striking!!
>
> Roberta
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Thursday, February 28, 2002 8:18 AM
> Subject: [CAHsupport] Digest Number 84
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: Digest Number 83
> >            From: "preston" <preston@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> >    From: "preston" <preston@...>
> > Subject: Re: Digest Number 83
> >
> > Kelly is right.  But I do think that the author was right... CAH is not
> > black and white (zebra). CAH can range from mild or very severe (and
> places
> > in between).
> >
> > roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, February 23, 2002 6:45 AM
> > Subject: [CAHsupport] Digest Number 83
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: PCOS and LOCAH
> > >            From: "CARES Foundation, Inc." <Kelly@...>
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > Subject: Re: PCOS and LOCAH
> > >
> > > The "Zebra" article has some inaccuracies. I don't encourage folks to
> > refer to it.
> > >
> > > While this article is long, it explains the link between PCOS and
LOCAH
> > extremely well and in depth:
> > >
> > > http://www.infertilityphysician.com/androgen/intro.html
> > > Hope this helps.
> > > Kelly
> > >
> > >
> > > Kelly R. Leight, Executive Director
> > > CARES Foundation, Inc.
> > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > 973-912-3895
> > > 866-227-3737 (toll free)
> > > email: kelly@...
> > > URL: www.caresfoundation.org
> > > Disclaimer:
> > > Any communication from CARES Foundation, Inc. is intended for
> > informational and educational purposes only and in no way should be
taken
> to
> > be the provision or practice of medical, nursing or professional
> health-care
> > advice or services.  The information should not be considered complete
or
> > exhaustive and should not be used in place of the visit, call,
> consultation
> > or advice of your physician or other health-care provider.  You should
not
> > use the information in this or any CARES Foundation, Inc. communication
to
> > diagnose or treat CAH or any other disorder without first consulting
with
> > your physician or healthcare provider. Any referral to physicians is
> > provided as a courtesy only.  CARES Foundation, Inc. does not
specifically
> > endorse or recommend these physicians.
> > >
> > >
> > >
> > > [This message contained attachments]
> > >
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Sat, 02 Mar 2002 10:03:39 -0600 (CST)
>    From: jrwatson@...
> Subject: Re: Digest Number 84
>
> Is it from this list that Val Jefferies has been mailing in bulk?  I have
no
> idea what transpired on the CAH board, but wondered why I was part of her
list
> since I have not commented one way or the other about ANY topic recently.
> -Debbi W
>
> Quoting preston <preston@...>:
>
> > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > article
> > (mistakes)...she is very correct about that... just the title of the
> > title
> > is so striking!!
> >
> > Roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Thursday, February 28, 2002 8:18 AM
> > Subject: [CAHsupport] Digest Number 84
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: Digest Number 83
> > >            From: "preston" <preston@...>
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > >    From: "preston" <preston@...>
> > > Subject: Re: Digest Number 83
> > >
> > > Kelly is right.  But I do think that the author was right... CAH is
> > not
> > > black and white (zebra). CAH can range from mild or very severe (and
> > places
> > > in between).
> > >
> > > roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Saturday, February 23, 2002 6:45 AM
> > > Subject: [CAHsupport] Digest Number 83
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: PCOS and LOCAH
> > > >            From: "CARES Foundation, Inc."
> > <Kelly@...>
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > Subject: Re: PCOS and LOCAH
> > > >
> > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > to
> > > refer to it.
> > > >
> > > > While this article is long, it explains the link between PCOS and
> > LOCAH
> > > extremely well and in depth:
> > > >
> > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > Hope this helps.
> > > > Kelly
> > > >
> > > >
> > > > Kelly R. Leight, Executive Director
> > > > CARES Foundation, Inc.
> > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > 973-912-3895
> > > > 866-227-3737 (toll free)
> > > > email: kelly@...
> > > > URL: www.caresfoundation.org
> > > > Disclaimer:
> > > > Any communication from CARES Foundation, Inc. is intended for
> > > informational and educational purposes only and in no way should be
> > taken
> > to
> > > be the provision or practice of medical, nursing or professional
> > health-care
> > > advice or services.  The information should not be considered complete
> > or
> > > exhaustive and should not be used in place of the visit, call,
> > consultation
> > > or advice of your physician or other health-care provider.  You should
> > not
> > > use the information in this or any CARES Foundation, Inc.
> > communication to
> > > diagnose or treat CAH or any other disorder without first consulting
> > with
> > > your physician or healthcare provider. Any referral to physicians is
> > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > specifically
> > > endorse or recommend these physicians.
> > > >
> > > >
> > > >
> > > > [This message contained attachments]
> > > >
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
>    Date: Sat, 2 Mar 2002 11:07:34 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Re: Digest Number 84
>
> Who is Val Jefferies?
>
> Angi
>
>
> ----- Original Message -----
> From: <jrwatson@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, March 02, 2002 11:03 AM
> Subject: Re: [CAHsupport] Digest Number 84
>
>
> > Is it from this list that Val Jefferies has been mailing in bulk?  I
have
> no
> > idea what transpired on the CAH board, but wondered why I was part of
her
> list
> > since I have not commented one way or the other about ANY topic
recently.
> > -Debbi W
> >
> > Quoting preston <preston@...>:
> >
> > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > article
> > > (mistakes)...she is very correct about that... just the title of the
> > > title
> > > is so striking!!
> > >
> > > Roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Thursday, February 28, 2002 8:18 AM
> > > Subject: [CAHsupport] Digest Number 84
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: Digest Number 83
> > > >            From: "preston" <preston@...>
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > >    From: "preston" <preston@...>
> > > > Subject: Re: Digest Number 83
> > > >
> > > > Kelly is right.  But I do think that the author was right... CAH is
> > > not
> > > > black and white (zebra). CAH can range from mild or very severe (and
> > > places
> > > > in between).
> > > >
> > > > roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > Subject: [CAHsupport] Digest Number 83
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: PCOS and LOCAH
> > > > >            From: "CARES Foundation, Inc."
> > > <Kelly@...>
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > Subject: Re: PCOS and LOCAH
> > > > >
> > > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > > to
> > > > refer to it.
> > > > >
> > > > > While this article is long, it explains the link between PCOS and
> > > LOCAH
> > > > extremely well and in depth:
> > > > >
> > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > Hope this helps.
> > > > > Kelly
> > > > >
> > > > >
> > > > > Kelly R. Leight, Executive Director
> > > > > CARES Foundation, Inc.
> > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > 973-912-3895
> > > > > 866-227-3737 (toll free)
> > > > > email: kelly@...
> > > > > URL: www.caresfoundation.org
> > > > > Disclaimer:
> > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > informational and educational purposes only and in no way should be
> > > taken
> > > to
> > > > be the provision or practice of medical, nursing or professional
> > > health-care
> > > > advice or services.  The information should not be considered
complete
> > > or
> > > > exhaustive and should not be used in place of the visit, call,
> > > consultation
> > > > or advice of your physician or other health-care provider.  You
should
> > > not
> > > > use the information in this or any CARES Foundation, Inc.
> > > communication to
> > > > diagnose or treat CAH or any other disorder without first consulting
> > > with
> > > > your physician or healthcare provider. Any referral to physicians is
> > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > specifically
> > > > endorse or recommend these physicians.
> > > > >
> > > > >
> > > > >
> > > > > [This message contained attachments]
> > > > >
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#195

From: jrwatson@...
Date: Sat Mar 2, 2002 5:30 pm
Subject: Re: Digest Number 84

cah_mom

Offline

Nevermind.....I was just wondering what list I was on that I was recieving e-
mail and thought this group might have been the source.  Since I don't know the
source, I'd rather not gossip as it would only be guessing.  She is another CAH
mother who corresponds via the net.DebbiW


Quoting Angi Strong <jaade1@...>:

> Who is Val Jefferies?
>
> Angi
>
>
> ----- Original Message -----
> From: <jrwatson@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, March 02, 2002 11:03 AM
> Subject: Re: [CAHsupport] Digest Number 84
>
>
> > Is it from this list that Val Jefferies has been mailing in bulk?  I
> have
> no
> > idea what transpired on the CAH board, but wondered why I was part of
> her
> list
> > since I have not commented one way or the other about ANY topic
> recently.
> > -Debbi W
> >
> > Quoting preston <preston@...>:
> >
> > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > article
> > > (mistakes)...she is very correct about that... just the title of
> the
> > > title
> > > is so striking!!
> > >
> > > Roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Thursday, February 28, 2002 8:18 AM
> > > Subject: [CAHsupport] Digest Number 84
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: Digest Number 83
> > > >            From: "preston" <preston@...>
> > > >
> > > >
> > > >
> > >
> ________________________________________________________________________
> > > >
> > >
> ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > >    From: "preston" <preston@...>
> > > > Subject: Re: Digest Number 83
> > > >
> > > > Kelly is right.  But I do think that the author was right... CAH
> is
> > > not
> > > > black and white (zebra). CAH can range from mild or very severe
> (and
> > > places
> > > > in between).
> > > >
> > > > roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > Subject: [CAHsupport] Digest Number 83
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: PCOS and LOCAH
> > > > >            From: "CARES Foundation, Inc."
> > > <Kelly@...>
> > > > >
> > > > >
> > > > >
> > >
> ________________________________________________________________________
> > > > >
> > >
> ________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > Subject: Re: PCOS and LOCAH
> > > > >
> > > > > The "Zebra" article has some inaccuracies. I don't encourage
> folks
> > > to
> > > > refer to it.
> > > > >
> > > > > While this article is long, it explains the link between PCOS
> and
> > > LOCAH
> > > > extremely well and in depth:
> > > > >
> > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > Hope this helps.
> > > > > Kelly
> > > > >
> > > > >
> > > > > Kelly R. Leight, Executive Director
> > > > > CARES Foundation, Inc.
> > > > > (Congenital Adrenal hyperplasia Research, Education and
> Support)
> > > > > 973-912-3895
> > > > > 866-227-3737 (toll free)
> > > > > email: kelly@...
> > > > > URL: www.caresfoundation.org
> > > > > Disclaimer:
> > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > informational and educational purposes only and in no way should
> be
> > > taken
> > > to
> > > > be the provision or practice of medical, nursing or professional
> > > health-care
> > > > advice or services.  The information should not be considered
> complete
> > > or
> > > > exhaustive and should not be used in place of the visit, call,
> > > consultation
> > > > or advice of your physician or other health-care provider.  You
> should
> > > not
> > > > use the information in this or any CARES Foundation, Inc.
> > > communication to
> > > > diagnose or treat CAH or any other disorder without first
> consulting
> > > with
> > > > your physician or healthcare provider. Any referral to physicians
> is
> > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > specifically
> > > > endorse or recommend these physicians.
> > > > >
> > > > >
> > > > >
> > > > > [This message contained attachments]
> > > > >
> > > > >
> > > > >
> > > > >
> > >
> ________________________________________________________________________
> > > > >
> > >
> ________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > >
> ________________________________________________________________________
> > > >
> > >
> ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ------------------------ Yahoo! Groups Sponsor
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

#194

From: "preston" <preston@...>
Date: Sat Mar 2, 2002 5:27 pm
Subject: Re: Digest Number 85

preston@...

Deb - your question below - I don't think that this is part of Val new email
list or we would be "banned". Apparently she is mad a whole group of people
and Kelly, you and I are part of that list. Val's new group is on MSN and
this is yahoo (I don't remember who started it - I'll need to look) No one
seem to post on this site such anyway.

quote from deb:
Is it from this list that Val Jefferies has been mailing in bulk?  I have no
idea what transpired on the CAH board, but wondered why I was part of her
list
since I have not commented one way or the other about ANY topic recently.
-Debbi W


----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Saturday, March 02, 2002 12:05 PM
Subject: [CAHsupport] Digest Number 85


> There are 3 messages in this issue.
>
> Topics in this digest:
>
>       1. Re: Digest Number 84
>            From: "preston" <preston@...>
>       2. Re: Digest Number 84
>            From: jrwatson@...
>       3. Re: Digest Number 84
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Fri, 1 Mar 2002 23:49:09 -0500
>    From: "preston" <preston@...>
> Subject: Re: Digest Number 84
>
> Oh ... I do not disagree with Kelly about the inaccuracies of the article
> (mistakes)...she is very correct about that... just the title of the title
> is so striking!!
>
> Roberta
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Thursday, February 28, 2002 8:18 AM
> Subject: [CAHsupport] Digest Number 84
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: Digest Number 83
> >            From: "preston" <preston@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> >    From: "preston" <preston@...>
> > Subject: Re: Digest Number 83
> >
> > Kelly is right.  But I do think that the author was right... CAH is not
> > black and white (zebra). CAH can range from mild or very severe (and
> places
> > in between).
> >
> > roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, February 23, 2002 6:45 AM
> > Subject: [CAHsupport] Digest Number 83
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: PCOS and LOCAH
> > >            From: "CARES Foundation, Inc." <Kelly@...>
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > Subject: Re: PCOS and LOCAH
> > >
> > > The "Zebra" article has some inaccuracies. I don't encourage folks to
> > refer to it.
> > >
> > > While this article is long, it explains the link between PCOS and
LOCAH
> > extremely well and in depth:
> > >
> > > http://www.infertilityphysician.com/androgen/intro.html
> > > Hope this helps.
> > > Kelly
> > >
> > >
> > > Kelly R. Leight, Executive Director
> > > CARES Foundation, Inc.
> > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > 973-912-3895
> > > 866-227-3737 (toll free)
> > > email: kelly@...
> > > URL: www.caresfoundation.org
> > > Disclaimer:
> > > Any communication from CARES Foundation, Inc. is intended for
> > informational and educational purposes only and in no way should be
taken
> to
> > be the provision or practice of medical, nursing or professional
> health-care
> > advice or services.  The information should not be considered complete
or
> > exhaustive and should not be used in place of the visit, call,
> consultation
> > or advice of your physician or other health-care provider.  You should
not
> > use the information in this or any CARES Foundation, Inc. communication
to
> > diagnose or treat CAH or any other disorder without first consulting
with
> > your physician or healthcare provider. Any referral to physicians is
> > provided as a courtesy only.  CARES Foundation, Inc. does not
specifically
> > endorse or recommend these physicians.
> > >
> > >
> > >
> > > [This message contained attachments]
> > >
> > >
> > >
> > >
________________________________________________________________________
> > >
________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Sat, 02 Mar 2002 10:03:39 -0600 (CST)
>    From: jrwatson@...
> Subject: Re: Digest Number 84
>
> Is it from this list that Val Jefferies has been mailing in bulk?  I have
no
> idea what transpired on the CAH board, but wondered why I was part of her
list
> since I have not commented one way or the other about ANY topic recently.
> -Debbi W
>
> Quoting preston <preston@...>:
>
> > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > article
> > (mistakes)...she is very correct about that... just the title of the
> > title
> > is so striking!!
> >
> > Roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Thursday, February 28, 2002 8:18 AM
> > Subject: [CAHsupport] Digest Number 84
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: Digest Number 83
> > >            From: "preston" <preston@...>
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > >    From: "preston" <preston@...>
> > > Subject: Re: Digest Number 83
> > >
> > > Kelly is right.  But I do think that the author was right... CAH is
> > not
> > > black and white (zebra). CAH can range from mild or very severe (and
> > places
> > > in between).
> > >
> > > roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Saturday, February 23, 2002 6:45 AM
> > > Subject: [CAHsupport] Digest Number 83
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: PCOS and LOCAH
> > > >            From: "CARES Foundation, Inc."
> > <Kelly@...>
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > Subject: Re: PCOS and LOCAH
> > > >
> > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > to
> > > refer to it.
> > > >
> > > > While this article is long, it explains the link between PCOS and
> > LOCAH
> > > extremely well and in depth:
> > > >
> > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > Hope this helps.
> > > > Kelly
> > > >
> > > >
> > > > Kelly R. Leight, Executive Director
> > > > CARES Foundation, Inc.
> > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > 973-912-3895
> > > > 866-227-3737 (toll free)
> > > > email: kelly@...
> > > > URL: www.caresfoundation.org
> > > > Disclaimer:
> > > > Any communication from CARES Foundation, Inc. is intended for
> > > informational and educational purposes only and in no way should be
> > taken
> > to
> > > be the provision or practice of medical, nursing or professional
> > health-care
> > > advice or services.  The information should not be considered complete
> > or
> > > exhaustive and should not be used in place of the visit, call,
> > consultation
> > > or advice of your physician or other health-care provider.  You should
> > not
> > > use the information in this or any CARES Foundation, Inc.
> > communication to
> > > diagnose or treat CAH or any other disorder without first consulting
> > with
> > > your physician or healthcare provider. Any referral to physicians is
> > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > specifically
> > > endorse or recommend these physicians.
> > > >
> > > >
> > > >
> > > > [This message contained attachments]
> > > >
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
>    Date: Sat, 2 Mar 2002 11:07:34 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Re: Digest Number 84
>
> Who is Val Jefferies?
>
> Angi
>
>
> ----- Original Message -----
> From: <jrwatson@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, March 02, 2002 11:03 AM
> Subject: Re: [CAHsupport] Digest Number 84
>
>
> > Is it from this list that Val Jefferies has been mailing in bulk?  I
have
> no
> > idea what transpired on the CAH board, but wondered why I was part of
her
> list
> > since I have not commented one way or the other about ANY topic
recently.
> > -Debbi W
> >
> > Quoting preston <preston@...>:
> >
> > > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > > article
> > > (mistakes)...she is very correct about that... just the title of the
> > > title
> > > is so striking!!
> > >
> > > Roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Thursday, February 28, 2002 8:18 AM
> > > Subject: [CAHsupport] Digest Number 84
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: Digest Number 83
> > > >            From: "preston" <preston@...>
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > > >    From: "preston" <preston@...>
> > > > Subject: Re: Digest Number 83
> > > >
> > > > Kelly is right.  But I do think that the author was right... CAH is
> > > not
> > > > black and white (zebra). CAH can range from mild or very severe (and
> > > places
> > > > in between).
> > > >
> > > > roberta
> > > > ----- Original Message -----
> > > > From: <CAHsupport@yahoogroups.com>
> > > > To: <CAHsupport@yahoogroups.com>
> > > > Sent: Saturday, February 23, 2002 6:45 AM
> > > > Subject: [CAHsupport] Digest Number 83
> > > >
> > > >
> > > > > There is 1 message in this issue.
> > > > >
> > > > > Topics in this digest:
> > > > >
> > > > >       1. Re: PCOS and LOCAH
> > > > >            From: "CARES Foundation, Inc."
> > > <Kelly@...>
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > > Message: 1
> > > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > > Subject: Re: PCOS and LOCAH
> > > > >
> > > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > > to
> > > > refer to it.
> > > > >
> > > > > While this article is long, it explains the link between PCOS and
> > > LOCAH
> > > > extremely well and in depth:
> > > > >
> > > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > > Hope this helps.
> > > > > Kelly
> > > > >
> > > > >
> > > > > Kelly R. Leight, Executive Director
> > > > > CARES Foundation, Inc.
> > > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > > 973-912-3895
> > > > > 866-227-3737 (toll free)
> > > > > email: kelly@...
> > > > > URL: www.caresfoundation.org
> > > > > Disclaimer:
> > > > > Any communication from CARES Foundation, Inc. is intended for
> > > > informational and educational purposes only and in no way should be
> > > taken
> > > to
> > > > be the provision or practice of medical, nursing or professional
> > > health-care
> > > > advice or services.  The information should not be considered
complete
> > > or
> > > > exhaustive and should not be used in place of the visit, call,
> > > consultation
> > > > or advice of your physician or other health-care provider.  You
should
> > > not
> > > > use the information in this or any CARES Foundation, Inc.
> > > communication to
> > > > diagnose or treat CAH or any other disorder without first consulting
> > > with
> > > > your physician or healthcare provider. Any referral to physicians is
> > > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > > specifically
> > > > endorse or recommend these physicians.
> > > > >
> > > > >
> > > > >
> > > > > [This message contained attachments]
> > > > >
> > > > >
> > > > >
> > > > >
> > >
________________________________________________________________________
> > > > >
> > >
________________________________________________________________________
> > > > >
> > > > >
> > > > >
> > > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > > >
> > > > >
> > > >
> > > >
> > > >
> > > >
> > >
________________________________________________________________________
> > > >
> > >
________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#193

From: "Angi Strong" <jaade1@...>
Date: Sat Mar 2, 2002 4:07 pm
Subject: Re: Digest Number 84

gyswife

Offline

Who is Val Jefferies?

Angi


----- Original Message -----
From: <jrwatson@...>
To: <CAHsupport@yahoogroups.com>
Sent: Saturday, March 02, 2002 11:03 AM
Subject: Re: [CAHsupport] Digest Number 84


> Is it from this list that Val Jefferies has been mailing in bulk?  I have
no
> idea what transpired on the CAH board, but wondered why I was part of her
list
> since I have not commented one way or the other about ANY topic recently.
> -Debbi W
>
> Quoting preston <preston@...>:
>
> > Oh ... I do not disagree with Kelly about the inaccuracies of the
> > article
> > (mistakes)...she is very correct about that... just the title of the
> > title
> > is so striking!!
> >
> > Roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Thursday, February 28, 2002 8:18 AM
> > Subject: [CAHsupport] Digest Number 84
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: Digest Number 83
> > >            From: "preston" <preston@...>
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> > >    From: "preston" <preston@...>
> > > Subject: Re: Digest Number 83
> > >
> > > Kelly is right.  But I do think that the author was right... CAH is
> > not
> > > black and white (zebra). CAH can range from mild or very severe (and
> > places
> > > in between).
> > >
> > > roberta
> > > ----- Original Message -----
> > > From: <CAHsupport@yahoogroups.com>
> > > To: <CAHsupport@yahoogroups.com>
> > > Sent: Saturday, February 23, 2002 6:45 AM
> > > Subject: [CAHsupport] Digest Number 83
> > >
> > >
> > > > There is 1 message in this issue.
> > > >
> > > > Topics in this digest:
> > > >
> > > >       1. Re: PCOS and LOCAH
> > > >            From: "CARES Foundation, Inc."
> > <Kelly@...>
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > > Message: 1
> > > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > > Subject: Re: PCOS and LOCAH
> > > >
> > > > The "Zebra" article has some inaccuracies. I don't encourage folks
> > to
> > > refer to it.
> > > >
> > > > While this article is long, it explains the link between PCOS and
> > LOCAH
> > > extremely well and in depth:
> > > >
> > > > http://www.infertilityphysician.com/androgen/intro.html
> > > > Hope this helps.
> > > > Kelly
> > > >
> > > >
> > > > Kelly R. Leight, Executive Director
> > > > CARES Foundation, Inc.
> > > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > > 973-912-3895
> > > > 866-227-3737 (toll free)
> > > > email: kelly@...
> > > > URL: www.caresfoundation.org
> > > > Disclaimer:
> > > > Any communication from CARES Foundation, Inc. is intended for
> > > informational and educational purposes only and in no way should be
> > taken
> > to
> > > be the provision or practice of medical, nursing or professional
> > health-care
> > > advice or services.  The information should not be considered complete
> > or
> > > exhaustive and should not be used in place of the visit, call,
> > consultation
> > > or advice of your physician or other health-care provider.  You should
> > not
> > > use the information in this or any CARES Foundation, Inc.
> > communication to
> > > diagnose or treat CAH or any other disorder without first consulting
> > with
> > > your physician or healthcare provider. Any referral to physicians is
> > > provided as a courtesy only.  CARES Foundation, Inc. does not
> > specifically
> > > endorse or recommend these physicians.
> > > >
> > > >
> > > >
> > > > [This message contained attachments]
> > > >
> > > >
> > > >
> > > >
> > ________________________________________________________________________
> > > >
> > ________________________________________________________________________
> > > >
> > > >
> > > >
> > > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > > >
> > > >
> > >
> > >
> > >
> > >
> > ________________________________________________________________________
> > >
> > ________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#192

From: jrwatson@...
Date: Sat Mar 2, 2002 4:03 pm
Subject: Re: Digest Number 84

cah_mom

Offline

Is it from this list that Val Jefferies has been mailing in bulk?  I have no
idea what transpired on the CAH board, but wondered why I was part of her list
since I have not commented one way or the other about ANY topic recently.
-Debbi W

Quoting preston <preston@...>:

> Oh ... I do not disagree with Kelly about the inaccuracies of the
> article
> (mistakes)...she is very correct about that... just the title of the
> title
> is so striking!!
>
> Roberta
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Thursday, February 28, 2002 8:18 AM
> Subject: [CAHsupport] Digest Number 84
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: Digest Number 83
> >            From: "preston" <preston@...>
> >
> >
> >
> ________________________________________________________________________
> >
> ________________________________________________________________________
> >
> > Message: 1
> >    Date: Wed, 27 Feb 2002 21:19:40 -0500
> >    From: "preston" <preston@...>
> > Subject: Re: Digest Number 83
> >
> > Kelly is right.  But I do think that the author was right... CAH is
> not
> > black and white (zebra). CAH can range from mild or very severe (and
> places
> > in between).
> >
> > roberta
> > ----- Original Message -----
> > From: <CAHsupport@yahoogroups.com>
> > To: <CAHsupport@yahoogroups.com>
> > Sent: Saturday, February 23, 2002 6:45 AM
> > Subject: [CAHsupport] Digest Number 83
> >
> >
> > > There is 1 message in this issue.
> > >
> > > Topics in this digest:
> > >
> > >       1. Re: PCOS and LOCAH
> > >            From: "CARES Foundation, Inc."
> <Kelly@...>
> > >
> > >
> > >
> ________________________________________________________________________
> > >
> ________________________________________________________________________
> > >
> > > Message: 1
> > >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> > >    From: "CARES Foundation, Inc." <Kelly@...>
> > > Subject: Re: PCOS and LOCAH
> > >
> > > The "Zebra" article has some inaccuracies. I don't encourage folks
> to
> > refer to it.
> > >
> > > While this article is long, it explains the link between PCOS and
> LOCAH
> > extremely well and in depth:
> > >
> > > http://www.infertilityphysician.com/androgen/intro.html
> > > Hope this helps.
> > > Kelly
> > >
> > >
> > > Kelly R. Leight, Executive Director
> > > CARES Foundation, Inc.
> > > (Congenital Adrenal hyperplasia Research, Education and Support)
> > > 973-912-3895
> > > 866-227-3737 (toll free)
> > > email: kelly@...
> > > URL: www.caresfoundation.org
> > > Disclaimer:
> > > Any communication from CARES Foundation, Inc. is intended for
> > informational and educational purposes only and in no way should be
> taken
> to
> > be the provision or practice of medical, nursing or professional
> health-care
> > advice or services.  The information should not be considered complete
> or
> > exhaustive and should not be used in place of the visit, call,
> consultation
> > or advice of your physician or other health-care provider.  You should
> not
> > use the information in this or any CARES Foundation, Inc.
> communication to
> > diagnose or treat CAH or any other disorder without first consulting
> with
> > your physician or healthcare provider. Any referral to physicians is
> > provided as a courtesy only.  CARES Foundation, Inc. does not
> specifically
> > endorse or recommend these physicians.
> > >
> > >
> > >
> > > [This message contained attachments]
> > >
> > >
> > >
> > >
> ________________________________________________________________________
> > >
> ________________________________________________________________________
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> >
> ________________________________________________________________________
> >
> ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> >
> >
>
>
> ------------------------ Yahoo! Groups Sponsor
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

#191

From: "preston" <preston@...>
Date: Sat Mar 2, 2002 4:49 am
Subject: Re: Digest Number 84

preston@...

Oh ... I do not disagree with Kelly about the inaccuracies of the article
(mistakes)...she is very correct about that... just the title of the title
is so striking!!

Roberta
----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Thursday, February 28, 2002 8:18 AM
Subject: [CAHsupport] Digest Number 84


> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. Re: Digest Number 83
>            From: "preston" <preston@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Wed, 27 Feb 2002 21:19:40 -0500
>    From: "preston" <preston@...>
> Subject: Re: Digest Number 83
>
> Kelly is right.  But I do think that the author was right... CAH is not
> black and white (zebra). CAH can range from mild or very severe (and
places
> in between).
>
> roberta
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Saturday, February 23, 2002 6:45 AM
> Subject: [CAHsupport] Digest Number 83
>
>
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >       1. Re: PCOS and LOCAH
> >            From: "CARES Foundation, Inc." <Kelly@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Fri, 22 Feb 2002 09:16:41 -0500
> >    From: "CARES Foundation, Inc." <Kelly@...>
> > Subject: Re: PCOS and LOCAH
> >
> > The "Zebra" article has some inaccuracies. I don't encourage folks to
> refer to it.
> >
> > While this article is long, it explains the link between PCOS and LOCAH
> extremely well and in depth:
> >
> > http://www.infertilityphysician.com/androgen/intro.html
> > Hope this helps.
> > Kelly
> >
> >
> > Kelly R. Leight, Executive Director
> > CARES Foundation, Inc.
> > (Congenital Adrenal hyperplasia Research, Education and Support)
> > 973-912-3895
> > 866-227-3737 (toll free)
> > email: kelly@...
> > URL: www.caresfoundation.org
> > Disclaimer:
> > Any communication from CARES Foundation, Inc. is intended for
> informational and educational purposes only and in no way should be taken
to
> be the provision or practice of medical, nursing or professional
health-care
> advice or services.  The information should not be considered complete or
> exhaustive and should not be used in place of the visit, call,
consultation
> or advice of your physician or other health-care provider.  You should not
> use the information in this or any CARES Foundation, Inc. communication to
> diagnose or treat CAH or any other disorder without first consulting with
> your physician or healthcare provider. Any referral to physicians is
> provided as a courtesy only.  CARES Foundation, Inc. does not specifically
> endorse or recommend these physicians.
> >
> >
> >
> > [This message contained attachments]
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#190

From: "preston" <preston@...>
Date: Thu Feb 28, 2002 2:19 am
Subject: Re: Digest Number 83

preston@...

Kelly is right.  But I do think that the author was right... CAH is not
black and white (zebra). CAH can range from mild or very severe (and places
in between).

roberta
----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Saturday, February 23, 2002 6:45 AM
Subject: [CAHsupport] Digest Number 83


> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. Re: PCOS and LOCAH
>            From: "CARES Foundation, Inc." <Kelly@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Fri, 22 Feb 2002 09:16:41 -0500
>    From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Re: PCOS and LOCAH
>
> The "Zebra" article has some inaccuracies. I don't encourage folks to
refer to it.
>
> While this article is long, it explains the link between PCOS and LOCAH
extremely well and in depth:
>
> http://www.infertilityphysician.com/androgen/intro.html
> Hope this helps.
> Kelly
>
>
> Kelly R. Leight, Executive Director
> CARES Foundation, Inc.
> (Congenital Adrenal hyperplasia Research, Education and Support)
> 973-912-3895
> 866-227-3737 (toll free)
> email: kelly@...
> URL: www.caresfoundation.org
> Disclaimer:
> Any communication from CARES Foundation, Inc. is intended for
informational and educational purposes only and in no way should be taken to
be the provision or practice of medical, nursing or professional health-care
advice or services.  The information should not be considered complete or
exhaustive and should not be used in place of the visit, call, consultation
or advice of your physician or other health-care provider.  You should not
use the information in this or any CARES Foundation, Inc. communication to
diagnose or treat CAH or any other disorder without first consulting with
your physician or healthcare provider. Any referral to physicians is
provided as a courtesy only.  CARES Foundation, Inc. does not specifically
endorse or recommend these physicians.
>
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#189

From: "CARES Foundation, Inc." <Kelly@...>
Date: Fri Feb 22, 2002 2:16 pm
Subject: Re: PCOS and LOCAH

kleight1959

Offline

http://www.infertilityphysician.com/androgen/intro.html

The "Zebra" article has some inaccuracies. I don't encourage folks to refer to it.

While this article is long, it explains the link between PCOS and LOCAH extremely well and in depth:

Hope this helps.

Kelly

#188

From: "preston" <preston@...>
Date: Wed Jan 16, 2002 4:01 am
Subject: Re: Digest Number 81

preston@...

Please do not use hermaphrodite and CAH in the same story... unless you
really define CAH!!! I would hate for people to be confused over what is CAH
and think that it is related the hermaphrodite in any way.  CAH girls do not
have both sexual organs.  NO WAY!! They are 100% female with no male organs
what so ever.  They do not have male testes or a penis.  They produce too
much androgens (male hormones) but they are produced from the ovaries
(ovaries do produce male and female hormones) and not from testes.  They
have breasts, ovaries and uterus.  The only problem may be enlarged clitoris
and narrow vaginal opening (some salt wasting CAH baby females may have
fused vaginal and clitoris that looks like a baby penis - but it will not
develop into a man's sized penis... the fused vaginal may look as if they do
not have a vaginal - and undecented testes).

You could do a story about non-salt wasting CAH females and the problem with
non-treatment and viralization. One parent told me that her three year said,
Mommy, I am turning into a boy (enlarged clitoris).  Strange words to come
out of a three year old girl's mouth.  Newborn testing for CAH is a must!!

Women do suffer from non-treatment. Suffering includes: infertility or
irregular menstrual periods, enlarged clitoris, too much male hormones,
facial hair, premature sexual hair growth and puberty, acne, height spurt in
young children but then short statue as adults.

Some non-salt wasting CAH people have it so mildly that they do not need to
take medication.  The medication would help them feel better but they will
not die without the medication. If they are extremely ill or surgery ...
without extra cortisol (medication) they will die.

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Tuesday, January 15, 2002 6:45 AM
Subject: [CAHsupport] Digest Number 81


> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. Fw: Research on CAH for fictional story
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Mon, 14 Jan 2002 06:06:53 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Fw: Research on CAH for fictional story
>
> Here is the response I received from the author.  I thought you might all
> like to see what he/she had to say!
>
> Angi
>
>
>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: "Angi Strong" <jaade1@...>
> Sent: Sunday, January 13, 2002 10:27 PM
> Subject: Re: Research on CAH for fictional story
>
>
> > Thank you very much for your response, and the
> > responses of the list members that you forwarded to
> > me. I'm sorry it has taken so long to get back to you;
> > no sooner had I sent off my request than I was swamped
> > on another project.
> >
> > It looks like I won't be able to do the story as
> > planned; it doesn't sound possible for an infant with
> > CAH to survive to adulthood without diagnoses and
> > treatment. Even assuming that salt wasting was not an
> > issue, adrenal crisis would be fatal for an untreated
> > child.
> >
> > I'm still investigating, and may end up reconfiguring
> > the story for a hermaphrodite, or some other medical
> > condition that causes confusion regarding gender.  If
> > so, I will still be mentioning CAH (as part of the
> > research the main character does when finally
> > diagnosed), but it will not be a central part of the
> > story.
> >
> > Again, thank you so much for your time and effort. The
> > information you and your list members provided me was
> > able to clear up a great deal of the confusion I had
> > from contradictory information on different web sites.
> >
> > kdorian
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#187

From: "Angi Strong" <jaade1@...>
Date: Mon Jan 14, 2002 11:06 am
Subject: Fw: Research on CAH for fictional story

gyswife

Offline

Here is the response I received from the author.  I thought you might all
like to see what he/she had to say!

Angi



----- Original Message -----
From: "K Dorian" <kdorian@...>
To: "Angi Strong" <jaade1@...>
Sent: Sunday, January 13, 2002 10:27 PM
Subject: Re: Research on CAH for fictional story


> Thank you very much for your response, and the
> responses of the list members that you forwarded to
> me. I'm sorry it has taken so long to get back to you;
> no sooner had I sent off my request than I was swamped
> on another project.
>
> It looks like I won't be able to do the story as
> planned; it doesn't sound possible for an infant with
> CAH to survive to adulthood without diagnoses and
> treatment. Even assuming that salt wasting was not an
> issue, adrenal crisis would be fatal for an untreated
> child.
>
> I'm still investigating, and may end up reconfiguring
> the story for a hermaphrodite, or some other medical
> condition that causes confusion regarding gender.  If
> so, I will still be mentioning CAH (as part of the
> research the main character does when finally
> diagnosed), but it will not be a central part of the
> story.
>
> Again, thank you so much for your time and effort. The
> information you and your list members provided me was
> able to clear up a great deal of the confusion I had
> from contradictory information on different web sites.
>
> kdorian
>
> __________________________________________________
> Do You Yahoo!?
> Send FREE video emails in Yahoo! Mail!
> http://promo.yahoo.com/videomail/

#186

From: "preston" <preston@...>
Date: Sat Jan 12, 2002 5:24 am
Subject: Re: Digest Number 79

preston@...

where do you live... some states have programs... check out these sites..

----------------------------------------------------------------------------
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Find-Health-Insurance.com  - request small group and individual health
insurance quotes.
http://www.find-health-insurance.com
More sites about:  Small Business Health Insurance Brokerages

Children's Health Insurance Program  - official information from the Health
Care Financing Administration.
http://www.hcfa.gov/init/children.htm
More sites about:  U.S. Department of Health and Human Services > State
Children's Health Insurance Program (SCHIP)

Health Insurance Quotes & Plans  - provides information and quotes for
individual, family, and small business health plans.
http://www.health-insurance-quotes-plans.com/
More sites about:  B2B > Health Insurance

Ask Mr. Health Insurance  - covers topics such as COBRA, student plans, self
employed advice, and more.
http://www.askmrhealthinsurance.com/
More sites about:  Insurance > Health


Health Insurance Association of America  - news and information related to
the health insurance industry for insurance professionals, the media, and
the general public.
http://www.hiaa.org
More sites about:  Washington, D.C. > Health Insurance

Department of Banking, Insurance, Securities, and Health Care Administration
http://www.bishca.state.vt.us/
More sites about:  Vermont > Department of Banking, Insurance, Securities,
and Health Care Administration

Health Insurance Resource Center  - for individuals, the self-employed and
small businesses.
http://www.healthinsurance.org/
More sites about:  Insurance > Health

State Children?s Health Insurance Program (SCHIP)  - information and updates
from the American Academy of Pediatrics.
http://www.aap.org/advocacy/schip.htm
More sites about:  U.S. Department of Health and Human Services > State
Children's Health Insurance Program (SCHIP)

Health Insurance Commission  - responsible for administering health care
programs, including Medicare, the Pharmaceutical Benefits Scheme, and the
Australian Childhood Immunisation Register.
http://www.hic.gov.au/
More sites about:  Australia > Insurance Health > Organizations

Health Insurance Information, Counseling and Assistance  - consumer help
with Medicare, managed care, Medigap insurance, long term care insurance,
and more.
http://hiicap.state.ny.us
More sites about:  New York State > Government > Department of Health

Bureau of National Health Insurance
http://www.nhi.gov.tw/
More sites about:  Taiwan > Government > Department of Health

Private Health Insurance Ombudsman  - independent body set up to deal with
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More sites about:  Japan > Health

Canadian Life and Health Insurance Association Inc.  - representing life and
health insurance companies operating in Canada.
http://www.clhia.ca/
More sites about:  Canada > Professional Insurance Organizations

Texas Health Insurance Risk Pool  - provides coverage to Texans who are
medically uninsurable or have recently lost employer group coverage.
http://www.txhealthpool.com
More sites about:  Texas > Health Insurance

Philippine Health Insurance Corporation
http://www.philhealth.gov.ph/
More sites about:  Philippines > B2B > Health Insurance

Oregon Senior Health Insurance Benefits Assistance (SHIBA)  - statewide
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Copyright � 2002 Yahoo! Inc. All rights reserved. Privacy Policy - Terms of
Service - Help
----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Wednesday, January 09, 2002 8:38 AM
Subject: [CAHsupport] Digest Number 79


> There are 4 messages in this issue.
>
> Topics in this digest:
>
>       1. insurance
>            From: "motherofhunter" <JHmphr3@...>
>       2. Re: Digest Number 77
>            From: "CARES Foundation, Inc." <Kelly@...>
>       3. Re: Re: Digest Number 77
>            From: jaade1 <jaade1@...>
>       4. Re: insurance
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Tue, 08 Jan 2002 15:54:43 -0000
>    From: "motherofhunter" <JHmphr3@...>
> Subject: insurance
>
> I have been running into a lot of problems lately dealing with
> insurance coverage for my daughter, she has the salt wasting form of
> cah. I was wondering if others have run into the same thing and some
> of your solutions to this. Currently she is being covered by the
> state but they want to cancel her because we make to much to qualify
> but we have been searching all different insurances and no one will
> pick  her up because of her "pre-existing condition" One agent even
> went as far as to tell me that she will never be able to get
> insurance except for the state programs. I am at my wits end with
> this and would appreciate any advice you could give me. Thank you
> Jenny
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Tue, 8 Jan 2002 13:06:58 -0500
>    From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Re: Digest Number 77
>
> Dear Angi,
> I was recently told of a female singer in the UK that was all over the
> papers where she was raised as a male, but discovered in her late teens
that
> she was a female with simple virilizing CAH. You might want to contact the
> CLIMB group in the UK for more information, http://cah.org.uk/. So your
> story is not that far-fetched.
> Some Simple Virilizers can live without going into adrenal crisis. But,
all
> CAH affected individuals should take their meds because this is a risk not
> worth taking.Genital ambiguity in females is common in both forms of
> classical CAH--SW and SV. Some adults only take hydrocortisone and self
> medicate for the salt by consuming what they feel their body needs. Others
> take meds for this purpose. It depends on what the endo recommends and
your
> individual medical needs. Any treatment protocol for CAH affected adults
> should be prescribed by an endocrinologist.
> Good luck with the story and keep us posted on your progress.
> Kelly
>
> Kelly R. Leight, Executive Director
> CARES Foundation, Inc.
> (Congenital Adrenal hyperplasia Research, Education and Support)
> P.O. Box 264
> Short Hills, New Jersey 07078
> 973-912-3895 (CARES voicemail)
> 866-227-3737 (toll free)
> URL: www.caresfoundation.org
> email: kelly@...
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 8:26 AM
> Subject: [CAHsupport] Digest Number 77
>
>
> > There are 2 messages in this issue.
> >
> > Topics in this digest:
> >
> >       1. Fw: Research on CAH for fictional story
> >            From: "Angi Strong" <jaade1@...>
> >       2. Fw: Fw: Research on CAH for fictional story
> >            From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Mon, 7 Jan 2002 06:18:10 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Research on CAH for fictional story
> >
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> >    Date: Mon, 7 Jan 2002 06:20:44 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Fw: Research on CAH for fictional story
> >
> > Sorry, I forgot to tell you what this is....
> > I received this and thought if anyone would like to personally respond
to
> > this email that I would just post it here for you.  I'm still deciding
how
> I
> > feel about this....not that I could say anything one way or the other.
> > Maybe with some well thought out information, the author will treat this
> > subject correctly.
> >
> > Angi
> >
> > ----- Original Message -----
> > From: "Angi Strong" <jaade1@...>
> > To: <cahsupport@yahoogroups.com>
> > Sent: Monday, January 07, 2002 6:18 AM
> > Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >
> >
> > >
> > > ----- Original Message -----
> > > From: "K Dorian" <kdorian@...>
> > > To: <CAHsupport-owner@yahoogroups.com>
> > > Sent: Sunday, January 06, 2002 3:08 AM
> > > Subject: Research on CAH for fictional story
> > >
> > >
> > > > Dear List Owner:
> > > >
> > > > I am writing because I am searching for information on
> > > > CAH. Please allow me to apologize in advance if either
> > > > my terminology or the basic premise of my story is
> > > > inadvertently offensive.
> > > >
> > > > I am an amateur writer, and am considering writing a
> > > > short fiction story about an individual with classic
> > > > CAH. Before I do so, however, I want to make sure I
> > > > have my facts correct. I have visited dozens of web
> > > > sites with information on CAH, but the information is
> > > > frequently contradictory, leaving me very confused.
> > > >
> > > > Specifically, and assuming I have my facts correct (I
> > > > am still in the research stage), my story would be
> > > > about a female with Classic CAH who was mis-diagnosed
> > > > and raised as a male, and who discovers in "his" late
> > > > teens or very early 20s that "he" is actually a
> > > > female.
> > > >
> > > > Obviously, there are a number of factors that would
> > > > make this scenario impossible, so the basic outline of
> > > > the story may change. For example, some sites seem to
> > > > link female genital ambiguity with the salt-losing
> > > > variant; if this is correct, I would imagine it would
> > > > be very unlikely for a child so misidentified to
> > > > remain so and survive. Other sites link it to the
> > > > non-salt losing variant, and one site even
> > > > contradicted itself in successive paragraphs.
> > > >
> > > > I am also looking for information on living with
> > > > classic CAH. Is taking cortisone the only long-term
> > > > necessity? How common or rare is it to have an adrenal
> > > > crisis? I am certain there are other questions I
> > > > should be asking, but I'm not sure at this point what
> > > > they are.
> > > >
> > > > Do you know of anywhere I can get this information?
> > > > Would you be willing to either post an information
> > > > request for me, or allow me to post such a request,
> > > > with the CAH Support group at Yahoo?
> > > >
> > > > Thank you for your time.
> > > >
> > > > __________________________________________________
> > > > Do You Yahoo!?
> > > > Send FREE video emails in Yahoo! Mail!
> > > > http://promo.yahoo.com/videomail/
> > > >
> > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
>    Date: Tue, 8 Jan 2002 11:37:14 -0800 (PST)
>    From: jaade1 <jaade1@...>
> Subject: Re: Re: Digest Number 77
>
> I just want to repeat that this was not a request on my part.  I was
simply
> forwarding an email from an author who contacted me.  If you would like to
> reply to him/her, I included the forwarding address in the original email.
>
> Angi
>
>
>
>
>
> >On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
> <Kelly@...> wrote.
> >Dear Angi,
> >I was recently told of a female singer in the UK that was all over the
> >papers where she was raised as a male, but discovered in her late teens
> that
> >she was a female with simple virilizing CAH. You might want to contact
the
> >CLIMB group in the UK for more information, http://cah.org.uk/. So your
> >story is not that far-fetched.
> >Some Simple Virilizers can live without going into adrenal crisis. But,
all
> >CAH affected individuals should take their meds because this is a risk
not
> >worth taking.Genital ambiguity in females is common in both forms of
> >classical CAH--SW and SV. Some adults only take hydrocortisone and self
> >medicate for the salt by consuming what they feel their body needs.
Others
> >take meds for this purpose. It depends on what the endo recommends and
your
> >individual medical needs. Any treatment protocol for CAH affected adults
> >should be prescribed by an endocrinologist.
> >Good luck with the story and keep us posted on your progress.
> >Kelly
> >
> >Kelly R. Leight, Executive Director
> >CARES Foundation, Inc.
> >(Congenital Adrenal hyperplasia Research, Education and Support)
> >P.O. Box 264
> >Short Hills, New Jersey 07078
> >973-912-3895 (CARES voicemail)
> >866-227-3737 (toll free)
> >URL: www.caresfoundation.org
> >email: kelly@...
> >
> >----- Original Message -----
> >From: <CAHsupport@yahoogroups.com>
> >To: <CAHsupport@yahoogroups.com>
> >Sent: Monday, January 07, 2002 8:26 AM
> >Subject: [CAHsupport] Digest Number 77
> >
> >
> >> There are 2 messages in this issue.
> >>
> >> Topics in this digest:
> >>
> >>       1. Fw: Research on CAH for fictional story
> >>            From: "Angi Strong" <jaade1@...>
> >>       2. Fw: Fw: Research on CAH for fictional story
> >>            From: "Angi Strong" <jaade1@...>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 1
> >>    Date: Mon, 7 Jan 2002 06:18:10 -0500
> >>    From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Research on CAH for fictional story
> >>
> >>
> >> ----- Original Message -----
> >> From: "K Dorian" <kdorian@...>
> >> To: <CAHsupport-owner@yahoogroups.com>
> >> Sent: Sunday, January 06, 2002 3:08 AM
> >> Subject: Research on CAH for fictional story
> >>
> >>
> >> > Dear List Owner:
> >> >
> >> > I am writing because I am searching for information on
> >> > CAH. Please allow me to apologize in advance if either
> >> > my terminology or the basic premise of my story is
> >> > inadvertently offensive.
> >> >
> >> > I am an amateur writer, and am considering writing a
> >> > short fiction story about an individual with classic
> >> > CAH. Before I do so, however, I want to make sure I
> >> > have my facts correct. I have visited dozens of web
> >> > sites with information on CAH, but the information is
> >> > frequently contradictory, leaving me very confused.
> >> >
> >> > Specifically, and assuming I have my facts correct (I
> >> > am still in the research stage), my story would be
> >> > about a female with Classic CAH who was mis-diagnosed
> >> > and raised as a male, and who discovers in "his" late
> >> > teens or very early 20s that "he" is actually a
> >> > female.
> >> >
> >> > Obviously, there are a number of factors that would
> >> > make this scenario impossible, so the basic outline of
> >> > the story may change. For example, some sites seem to
> >> > link female genital ambiguity with the salt-losing
> >> > variant; if this is correct, I would imagine it would
> >> > be very unlikely for a child so misidentified to
> >> > remain so and survive. Other sites link it to the
> >> > non-salt losing variant, and one site even
> >> > contradicted itself in successive paragraphs.
> >> >
> >> > I am also looking for information on living with
> >> > classic CAH. Is taking cortisone the only long-term
> >> > necessity? How common or rare is it to have an adrenal
> >> > crisis? I am certain there are other questions I
> >> > should be asking, but I'm not sure at this point what
> >> > they are.
> >> >
> >> > Do you know of anywhere I can get this information?
> >> > Would you be willing to either post an information
> >> > request for me, or allow me to post such a request,
> >> > with the CAH Support group at Yahoo?
> >> >
> >> > Thank you for your time.
> >> >
> >> > __________________________________________________
> >> > Do You Yahoo!?
> >> > Send FREE video emails in Yahoo! Mail!
> >> > http://promo.yahoo.com/videomail/
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 2
> >>    Date: Mon, 7 Jan 2002 06:20:44 -0500
> >>    From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Fw: Research on CAH for fictional story
> >>
> >> Sorry, I forgot to tell you what this is....
> >> I received this and thought if anyone would like to personally respond
to
> >> this email that I would just post it here for you.  I'm still deciding
> how
> >I
> >> feel about this....not that I could say anything one way or the other.
> >> Maybe with some well thought out information, the author will treat
this
> >> subject correctly.
> >>
> >> Angi
> >>
> >> ----- Original Message -----
> >> From: "Angi Strong" <jaade1@...>
> >> To: <cahsupport@yahoogroups.com>
> >> Sent: Monday, January 07, 2002 6:18 AM
> >> Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >>
> >>
> >> >
> >> > ----- Original Message -----
> >> > From: "K Dorian" <kdorian@...>
> >> > To: <CAHsupport-owner@yahoogroups.com>
> >> > Sent: Sunday, January 06, 2002 3:08 AM
> >> > Subject: Research on CAH for fictional story
> >> >
> >> >
> >> > > Dear List Owner:
> >> > >
> >> > > I am writing because I am searching for information on
> >> > > CAH. Please allow me to apologize in advance if either
> >> > > my terminology or the basic premise of my story is
> >> > > inadvertently offensive.
> >> > >
> >> > > I am an amateur writer, and am considering writing a
> >> > > short fiction story about an individual with classic
> >> > > CAH. Before I do so, however, I want to make sure I
> >> > > have my facts correct. I have visited dozens of web
> >> > > sites with information on CAH, but the information is
> >> > > frequently contradictory, leaving me very confused.
> >> > >
> >> > > Specifically, and assuming I have my facts correct (I
> >> > > am still in the research stage), my story would be
> >> > > about a female with Classic CAH who was mis-diagnosed
> >> > > and raised as a male, and who discovers in "his" late
> >> > > teens or very early 20s that "he" is actually a
> >> > > female.
> >> > >
> >> > > Obviously, there are a number of factors that would
> >> > > make this scenario impossible, so the basic outline of
> >> > > the story may change. For example, some sites seem to
> >> > > link female genital ambiguity with the salt-losing
> >> > > variant; if this is correct, I would imagine it would
> >> > > be very unlikely for a child so misidentified to
> >> > > remain so and survive. Other sites link it to the
> >> > > non-salt losing variant, and one site even
> >> > > contradicted itself in successive paragraphs.
> >> > >
> >> > > I am also looking for information on living with
> >> > > classic CAH. Is taking cortisone the only long-term
> >> > > necessity? How common or rare is it to have an adrenal
> >> > > crisis? I am certain there are other questions I
> >> > > should be asking, but I'm not sure at this point what
> >> > > they are.
> >> > >
> >> > > Do you know of anywhere I can get this information?
> >> > > Would you be willing to either post an information
> >> > > request for me, or allow me to post such a request,
> >> > > with the CAH Support group at Yahoo?
> >> > >
> >> > > Thank you for your time.
> >> > >
> >> > > __________________________________________________
> >> > > Do You Yahoo!?
> >> > > Send FREE video emails in Yahoo! Mail!
> >> > > http://promo.yahoo.com/videomail/
> >> > >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > Your use of Yahoo! Groups is subject to
> >http://docs.yahoo.com/info/terms/
> >> >
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >>
> >>
> >> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >>
> >>
> >>
> >>
> >
> >
> >
> >
> >
> >
> >Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
>    Date: Tue, 8 Jan 2002 17:52:38 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Re: insurance
>
> Jenny,
>      Unfortunately I have no advice for you.  We've been in the military
for
> the entire time the girls' have been with us....and have always had
problems
> too.  Just wanted you to know I can totally sympathize with your
situation.
> We've actually been able to buy a supplement insurance to our military
> coverage, but had to pay for two years before coverage would begin.
> Unfortunately, they decided to drop us after a few years of being covered
> because TriCare (our military insurance) was "too difficult to deal with".
> They were bought out by another company who covered us, and then when we
> moved to NC they decided to drop us all together claiming they didn't
cover
> anyone in the Carolina's....I suspect its because 50% of the armed
services
> live here!  LOL!  (Actually, it's not funny, but its either laugh or cry
at
> this point!)  So, we're back to hunting.  I know we need to get them into
an
> insurance plan before they get out on their own, which is probably sooner
> than I'd like!  Let me know if you find someone who will cover your
> daughter, and if I find someone, I'll post too.
>
> Angi
>
> ----- Original Message -----
> From: "motherofhunter" <JHmphr3@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Tuesday, January 08, 2002 10:54 AM
> Subject: [CAHsupport] insurance
>
>
> > I have been running into a lot of problems lately dealing with
> > insurance coverage for my daughter, she has the salt wasting form of
> > cah. I was wondering if others have run into the same thing and some
> > of your solutions to this. Currently she is being covered by the
> > state but they want to cancel her because we make to much to qualify
> > but we have been searching all different insurances and no one will
> > pick  her up because of her "pre-existing condition" One agent even
> > went as far as to tell me that she will never be able to get
> > insurance except for the state programs. I am at my wits end with
> > this and would appreciate any advice you could give me. Thank you
> > Jenny
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#185

From: "preston" <preston@...>
Date: Sat Jan 12, 2002 5:11 am
Subject: Re: Digest Number 79

preston@...

Insurance problem is terrible!! Did you write Kelly at CARES and see if she
knows of anything. I would be lost without my health and dental insurance. I
work for the federal government and it hasn't been a problem for me to get
coverage for CAH.  My insurance payments are going up this year is the only
thing but the blood test and doctor's appointment are very expensive. And
then to think about the times that I have had to go to the ER - and have IV
so they did not have adrenal crisis and die. With a fever - you can not
chance it. .. just go to the hospital and get the IVs.

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Wednesday, January 09, 2002 8:38 AM
Subject: [CAHsupport] Digest Number 79


> There are 4 messages in this issue.
>
> Topics in this digest:
>
>       1. insurance
>            From: "motherofhunter" <JHmphr3@...>
>       2. Re: Digest Number 77
>            From: "CARES Foundation, Inc." <Kelly@...>
>       3. Re: Re: Digest Number 77
>            From: jaade1 <jaade1@...>
>       4. Re: insurance
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Tue, 08 Jan 2002 15:54:43 -0000
>    From: "motherofhunter" <JHmphr3@...>
> Subject: insurance
>
> I have been running into a lot of problems lately dealing with
> insurance coverage for my daughter, she has the salt wasting form of
> cah. I was wondering if others have run into the same thing and some
> of your solutions to this. Currently she is being covered by the
> state but they want to cancel her because we make to much to qualify
> but we have been searching all different insurances and no one will
> pick  her up because of her "pre-existing condition" One agent even
> went as far as to tell me that she will never be able to get
> insurance except for the state programs. I am at my wits end with
> this and would appreciate any advice you could give me. Thank you
> Jenny
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Tue, 8 Jan 2002 13:06:58 -0500
>    From: "CARES Foundation, Inc." <Kelly@...>
> Subject: Re: Digest Number 77
>
> Dear Angi,
> I was recently told of a female singer in the UK that was all over the
> papers where she was raised as a male, but discovered in her late teens
that
> she was a female with simple virilizing CAH. You might want to contact the
> CLIMB group in the UK for more information, http://cah.org.uk/. So your
> story is not that far-fetched.
> Some Simple Virilizers can live without going into adrenal crisis. But,
all
> CAH affected individuals should take their meds because this is a risk not
> worth taking.Genital ambiguity in females is common in both forms of
> classical CAH--SW and SV. Some adults only take hydrocortisone and self
> medicate for the salt by consuming what they feel their body needs. Others
> take meds for this purpose. It depends on what the endo recommends and
your
> individual medical needs. Any treatment protocol for CAH affected adults
> should be prescribed by an endocrinologist.
> Good luck with the story and keep us posted on your progress.
> Kelly
>
> Kelly R. Leight, Executive Director
> CARES Foundation, Inc.
> (Congenital Adrenal hyperplasia Research, Education and Support)
> P.O. Box 264
> Short Hills, New Jersey 07078
> 973-912-3895 (CARES voicemail)
> 866-227-3737 (toll free)
> URL: www.caresfoundation.org
> email: kelly@...
>
> ----- Original Message -----
> From: <CAHsupport@yahoogroups.com>
> To: <CAHsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 8:26 AM
> Subject: [CAHsupport] Digest Number 77
>
>
> > There are 2 messages in this issue.
> >
> > Topics in this digest:
> >
> >       1. Fw: Research on CAH for fictional story
> >            From: "Angi Strong" <jaade1@...>
> >       2. Fw: Fw: Research on CAH for fictional story
> >            From: "Angi Strong" <jaade1@...>
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 1
> >    Date: Mon, 7 Jan 2002 06:18:10 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Research on CAH for fictional story
> >
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> > Message: 2
> >    Date: Mon, 7 Jan 2002 06:20:44 -0500
> >    From: "Angi Strong" <jaade1@...>
> > Subject: Fw: Fw: Research on CAH for fictional story
> >
> > Sorry, I forgot to tell you what this is....
> > I received this and thought if anyone would like to personally respond
to
> > this email that I would just post it here for you.  I'm still deciding
how
> I
> > feel about this....not that I could say anything one way or the other.
> > Maybe with some well thought out information, the author will treat this
> > subject correctly.
> >
> > Angi
> >
> > ----- Original Message -----
> > From: "Angi Strong" <jaade1@...>
> > To: <cahsupport@yahoogroups.com>
> > Sent: Monday, January 07, 2002 6:18 AM
> > Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >
> >
> > >
> > > ----- Original Message -----
> > > From: "K Dorian" <kdorian@...>
> > > To: <CAHsupport-owner@yahoogroups.com>
> > > Sent: Sunday, January 06, 2002 3:08 AM
> > > Subject: Research on CAH for fictional story
> > >
> > >
> > > > Dear List Owner:
> > > >
> > > > I am writing because I am searching for information on
> > > > CAH. Please allow me to apologize in advance if either
> > > > my terminology or the basic premise of my story is
> > > > inadvertently offensive.
> > > >
> > > > I am an amateur writer, and am considering writing a
> > > > short fiction story about an individual with classic
> > > > CAH. Before I do so, however, I want to make sure I
> > > > have my facts correct. I have visited dozens of web
> > > > sites with information on CAH, but the information is
> > > > frequently contradictory, leaving me very confused.
> > > >
> > > > Specifically, and assuming I have my facts correct (I
> > > > am still in the research stage), my story would be
> > > > about a female with Classic CAH who was mis-diagnosed
> > > > and raised as a male, and who discovers in "his" late
> > > > teens or very early 20s that "he" is actually a
> > > > female.
> > > >
> > > > Obviously, there are a number of factors that would
> > > > make this scenario impossible, so the basic outline of
> > > > the story may change. For example, some sites seem to
> > > > link female genital ambiguity with the salt-losing
> > > > variant; if this is correct, I would imagine it would
> > > > be very unlikely for a child so misidentified to
> > > > remain so and survive. Other sites link it to the
> > > > non-salt losing variant, and one site even
> > > > contradicted itself in successive paragraphs.
> > > >
> > > > I am also looking for information on living with
> > > > classic CAH. Is taking cortisone the only long-term
> > > > necessity? How common or rare is it to have an adrenal
> > > > crisis? I am certain there are other questions I
> > > > should be asking, but I'm not sure at this point what
> > > > they are.
> > > >
> > > > Do you know of anywhere I can get this information?
> > > > Would you be willing to either post an information
> > > > request for me, or allow me to post such a request,
> > > > with the CAH Support group at Yahoo?
> > > >
> > > > Thank you for your time.
> > > >
> > > > __________________________________________________
> > > > Do You Yahoo!?
> > > > Send FREE video emails in Yahoo! Mail!
> > > > http://promo.yahoo.com/videomail/
> > > >
> > >
> > >
> > >
> > >
> > >
> > > Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
> > >
> > >
> >
> >
> >
> > ________________________________________________________________________
> > ________________________________________________________________________
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
> >
> >
>
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 3
>    Date: Tue, 8 Jan 2002 11:37:14 -0800 (PST)
>    From: jaade1 <jaade1@...>
> Subject: Re: Re: Digest Number 77
>
> I just want to repeat that this was not a request on my part.  I was
simply
> forwarding an email from an author who contacted me.  If you would like to
> reply to him/her, I included the forwarding address in the original email.
>
> Angi
>
>
>
>
>
> >On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
> <Kelly@...> wrote.
> >Dear Angi,
> >I was recently told of a female singer in the UK that was all over the
> >papers where she was raised as a male, but discovered in her late teens
> that
> >she was a female with simple virilizing CAH. You might want to contact
the
> >CLIMB group in the UK for more information, http://cah.org.uk/. So your
> >story is not that far-fetched.
> >Some Simple Virilizers can live without going into adrenal crisis. But,
all
> >CAH affected individuals should take their meds because this is a risk
not
> >worth taking.Genital ambiguity in females is common in both forms of
> >classical CAH--SW and SV. Some adults only take hydrocortisone and self
> >medicate for the salt by consuming what they feel their body needs.
Others
> >take meds for this purpose. It depends on what the endo recommends and
your
> >individual medical needs. Any treatment protocol for CAH affected adults
> >should be prescribed by an endocrinologist.
> >Good luck with the story and keep us posted on your progress.
> >Kelly
> >
> >Kelly R. Leight, Executive Director
> >CARES Foundation, Inc.
> >(Congenital Adrenal hyperplasia Research, Education and Support)
> >P.O. Box 264
> >Short Hills, New Jersey 07078
> >973-912-3895 (CARES voicemail)
> >866-227-3737 (toll free)
> >URL: www.caresfoundation.org
> >email: kelly@...
> >
> >----- Original Message -----
> >From: <CAHsupport@yahoogroups.com>
> >To: <CAHsupport@yahoogroups.com>
> >Sent: Monday, January 07, 2002 8:26 AM
> >Subject: [CAHsupport] Digest Number 77
> >
> >
> >> There are 2 messages in this issue.
> >>
> >> Topics in this digest:
> >>
> >>       1. Fw: Research on CAH for fictional story
> >>            From: "Angi Strong" <jaade1@...>
> >>       2. Fw: Fw: Research on CAH for fictional story
> >>            From: "Angi Strong" <jaade1@...>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 1
> >>    Date: Mon, 7 Jan 2002 06:18:10 -0500
> >>    From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Research on CAH for fictional story
> >>
> >>
> >> ----- Original Message -----
> >> From: "K Dorian" <kdorian@...>
> >> To: <CAHsupport-owner@yahoogroups.com>
> >> Sent: Sunday, January 06, 2002 3:08 AM
> >> Subject: Research on CAH for fictional story
> >>
> >>
> >> > Dear List Owner:
> >> >
> >> > I am writing because I am searching for information on
> >> > CAH. Please allow me to apologize in advance if either
> >> > my terminology or the basic premise of my story is
> >> > inadvertently offensive.
> >> >
> >> > I am an amateur writer, and am considering writing a
> >> > short fiction story about an individual with classic
> >> > CAH. Before I do so, however, I want to make sure I
> >> > have my facts correct. I have visited dozens of web
> >> > sites with information on CAH, but the information is
> >> > frequently contradictory, leaving me very confused.
> >> >
> >> > Specifically, and assuming I have my facts correct (I
> >> > am still in the research stage), my story would be
> >> > about a female with Classic CAH who was mis-diagnosed
> >> > and raised as a male, and who discovers in "his" late
> >> > teens or very early 20s that "he" is actually a
> >> > female.
> >> >
> >> > Obviously, there are a number of factors that would
> >> > make this scenario impossible, so the basic outline of
> >> > the story may change. For example, some sites seem to
> >> > link female genital ambiguity with the salt-losing
> >> > variant; if this is correct, I would imagine it would
> >> > be very unlikely for a child so misidentified to
> >> > remain so and survive. Other sites link it to the
> >> > non-salt losing variant, and one site even
> >> > contradicted itself in successive paragraphs.
> >> >
> >> > I am also looking for information on living with
> >> > classic CAH. Is taking cortisone the only long-term
> >> > necessity? How common or rare is it to have an adrenal
> >> > crisis? I am certain there are other questions I
> >> > should be asking, but I'm not sure at this point what
> >> > they are.
> >> >
> >> > Do you know of anywhere I can get this information?
> >> > Would you be willing to either post an information
> >> > request for me, or allow me to post such a request,
> >> > with the CAH Support group at Yahoo?
> >> >
> >> > Thank you for your time.
> >> >
> >> > __________________________________________________
> >> > Do You Yahoo!?
> >> > Send FREE video emails in Yahoo! Mail!
> >> > http://promo.yahoo.com/videomail/
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >> Message: 2
> >>    Date: Mon, 7 Jan 2002 06:20:44 -0500
> >>    From: "Angi Strong" <jaade1@...>
> >> Subject: Fw: Fw: Research on CAH for fictional story
> >>
> >> Sorry, I forgot to tell you what this is....
> >> I received this and thought if anyone would like to personally respond
to
> >> this email that I would just post it here for you.  I'm still deciding
> how
> >I
> >> feel about this....not that I could say anything one way or the other.
> >> Maybe with some well thought out information, the author will treat
this
> >> subject correctly.
> >>
> >> Angi
> >>
> >> ----- Original Message -----
> >> From: "Angi Strong" <jaade1@...>
> >> To: <cahsupport@yahoogroups.com>
> >> Sent: Monday, January 07, 2002 6:18 AM
> >> Subject: [CAHsupport] Fw: Research on CAH for fictional story
> >>
> >>
> >> >
> >> > ----- Original Message -----
> >> > From: "K Dorian" <kdorian@...>
> >> > To: <CAHsupport-owner@yahoogroups.com>
> >> > Sent: Sunday, January 06, 2002 3:08 AM
> >> > Subject: Research on CAH for fictional story
> >> >
> >> >
> >> > > Dear List Owner:
> >> > >
> >> > > I am writing because I am searching for information on
> >> > > CAH. Please allow me to apologize in advance if either
> >> > > my terminology or the basic premise of my story is
> >> > > inadvertently offensive.
> >> > >
> >> > > I am an amateur writer, and am considering writing a
> >> > > short fiction story about an individual with classic
> >> > > CAH. Before I do so, however, I want to make sure I
> >> > > have my facts correct. I have visited dozens of web
> >> > > sites with information on CAH, but the information is
> >> > > frequently contradictory, leaving me very confused.
> >> > >
> >> > > Specifically, and assuming I have my facts correct (I
> >> > > am still in the research stage), my story would be
> >> > > about a female with Classic CAH who was mis-diagnosed
> >> > > and raised as a male, and who discovers in "his" late
> >> > > teens or very early 20s that "he" is actually a
> >> > > female.
> >> > >
> >> > > Obviously, there are a number of factors that would
> >> > > make this scenario impossible, so the basic outline of
> >> > > the story may change. For example, some sites seem to
> >> > > link female genital ambiguity with the salt-losing
> >> > > variant; if this is correct, I would imagine it would
> >> > > be very unlikely for a child so misidentified to
> >> > > remain so and survive. Other sites link it to the
> >> > > non-salt losing variant, and one site even
> >> > > contradicted itself in successive paragraphs.
> >> > >
> >> > > I am also looking for information on living with
> >> > > classic CAH. Is taking cortisone the only long-term
> >> > > necessity? How common or rare is it to have an adrenal
> >> > > crisis? I am certain there are other questions I
> >> > > should be asking, but I'm not sure at this point what
> >> > > they are.
> >> > >
> >> > > Do you know of anywhere I can get this information?
> >> > > Would you be willing to either post an information
> >> > > request for me, or allow me to post such a request,
> >> > > with the CAH Support group at Yahoo?
> >> > >
> >> > > Thank you for your time.
> >> > >
> >> > > __________________________________________________
> >> > > Do You Yahoo!?
> >> > > Send FREE video emails in Yahoo! Mail!
> >> > > http://promo.yahoo.com/videomail/
> >> > >
> >> >
> >> >
> >> >
> >> >
> >> >
> >> > Your use of Yahoo! Groups is subject to
> >http://docs.yahoo.com/info/terms/
> >> >
> >> >
> >>
> >>
> >>
> >>
________________________________________________________________________
> >>
________________________________________________________________________
> >>
> >>
> >>
> >> Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >>
> >>
> >>
> >>
> >
> >
> >
> >
> >
> >
> >Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 4
>    Date: Tue, 8 Jan 2002 17:52:38 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Re: insurance
>
> Jenny,
>      Unfortunately I have no advice for you.  We've been in the military
for
> the entire time the girls' have been with us....and have always had
problems
> too.  Just wanted you to know I can totally sympathize with your
situation.
> We've actually been able to buy a supplement insurance to our military
> coverage, but had to pay for two years before coverage would begin.
> Unfortunately, they decided to drop us after a few years of being covered
> because TriCare (our military insurance) was "too difficult to deal with".
> They were bought out by another company who covered us, and then when we
> moved to NC they decided to drop us all together claiming they didn't
cover
> anyone in the Carolina's....I suspect its because 50% of the armed
services
> live here!  LOL!  (Actually, it's not funny, but its either laugh or cry
at
> this point!)  So, we're back to hunting.  I know we need to get them into
an
> insurance plan before they get out on their own, which is probably sooner
> than I'd like!  Let me know if you find someone who will cover your
> daughter, and if I find someone, I'll post too.
>
> Angi
>
> ----- Original Message -----
> From: "motherofhunter" <JHmphr3@...>
> To: <CAHsupport@yahoogroups.com>
> Sent: Tuesday, January 08, 2002 10:54 AM
> Subject: [CAHsupport] insurance
>
>
> > I have been running into a lot of problems lately dealing with
> > insurance coverage for my daughter, she has the salt wasting form of
> > cah. I was wondering if others have run into the same thing and some
> > of your solutions to this. Currently she is being covered by the
> > state but they want to cancel her because we make to much to qualify
> > but we have been searching all different insurances and no one will
> > pick  her up because of her "pre-existing condition" One agent even
> > went as far as to tell me that she will never be able to get
> > insurance except for the state programs. I am at my wits end with
> > this and would appreciate any advice you could give me. Thank you
> > Jenny
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#184

From: "Angi Strong" <jaade1@...>
Date: Tue Jan 8, 2002 10:52 pm
Subject: Re: insurance

gyswife

Offline

Jenny,
      Unfortunately I have no advice for you.  We've been in the military for
the entire time the girls' have been with us....and have always had problems
too.  Just wanted you to know I can totally sympathize with your situation.
We've actually been able to buy a supplement insurance to our military
coverage, but had to pay for two years before coverage would begin.
Unfortunately, they decided to drop us after a few years of being covered
because TriCare (our military insurance) was "too difficult to deal with".
They were bought out by another company who covered us, and then when we
moved to NC they decided to drop us all together claiming they didn't cover
anyone in the Carolina's....I suspect its because 50% of the armed services
live here!  LOL!  (Actually, it's not funny, but its either laugh or cry at
this point!)  So, we're back to hunting.  I know we need to get them into an
insurance plan before they get out on their own, which is probably sooner
than I'd like!  Let me know if you find someone who will cover your
daughter, and if I find someone, I'll post too.

Angi

----- Original Message -----
From: "motherofhunter" <JHmphr3@...>
To: <CAHsupport@yahoogroups.com>
Sent: Tuesday, January 08, 2002 10:54 AM
Subject: [CAHsupport] insurance


> I have been running into a lot of problems lately dealing with
> insurance coverage for my daughter, she has the salt wasting form of
> cah. I was wondering if others have run into the same thing and some
> of your solutions to this. Currently she is being covered by the
> state but they want to cancel her because we make to much to qualify
> but we have been searching all different insurances and no one will
> pick  her up because of her "pre-existing condition" One agent even
> went as far as to tell me that she will never be able to get
> insurance except for the state programs. I am at my wits end with
> this and would appreciate any advice you could give me. Thank you
> Jenny
>
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#183

From: jaade1 <jaade1@...>
Date: Tue Jan 8, 2002 7:37 pm
Subject: Re: Re: Digest Number 77

gyswife

Offline

I just want to repeat that this was not a request on my part.  I was simply
forwarding an email from an author who contacted me.  If you would like to
reply to him/her, I included the forwarding address in the original email.

Angi





>On Tue, 8 Jan 2002 13:06:58 -0500 "CARES Foundation, Inc."
<Kelly@...> wrote.
>Dear Angi,
>I was recently told of a female singer in the UK that was all over the
>papers where she was raised as a male, but discovered in her late teens
that
>she was a female with simple virilizing CAH. You might want to contact the
>CLIMB group in the UK for more information, http://cah.org.uk/. So your
>story is not that far-fetched.
>Some Simple Virilizers can live without going into adrenal crisis. But, all
>CAH affected individuals should take their meds because this is a risk not
>worth taking.Genital ambiguity in females is common in both forms of
>classical CAH--SW and SV. Some adults only take hydrocortisone and self
>medicate for the salt by consuming what they feel their body needs. Others
>take meds for this purpose. It depends on what the endo recommends and your
>individual medical needs. Any treatment protocol for CAH affected adults
>should be prescribed by an endocrinologist.
>Good luck with the story and keep us posted on your progress.
>Kelly
>
>Kelly R. Leight, Executive Director
>CARES Foundation, Inc.
>(Congenital Adrenal hyperplasia Research, Education and Support)
>P.O. Box 264
>Short Hills, New Jersey 07078
>973-912-3895 (CARES voicemail)
>866-227-3737 (toll free)
>URL: www.caresfoundation.org
>email: kelly@...
>
>----- Original Message -----
>From: <CAHsupport@yahoogroups.com>
>To: <CAHsupport@yahoogroups.com>
>Sent: Monday, January 07, 2002 8:26 AM
>Subject: [CAHsupport] Digest Number 77
>
>
>> There are 2 messages in this issue.
>>
>> Topics in this digest:
>>
>>       1. Fw: Research on CAH for fictional story
>>            From: "Angi Strong" <jaade1@...>
>>       2. Fw: Fw: Research on CAH for fictional story
>>            From: "Angi Strong" <jaade1@...>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>> Message: 1
>>    Date: Mon, 7 Jan 2002 06:18:10 -0500
>>    From: "Angi Strong" <jaade1@...>
>> Subject: Fw: Research on CAH for fictional story
>>
>>
>> ----- Original Message -----
>> From: "K Dorian" <kdorian@...>
>> To: <CAHsupport-owner@yahoogroups.com>
>> Sent: Sunday, January 06, 2002 3:08 AM
>> Subject: Research on CAH for fictional story
>>
>>
>> > Dear List Owner:
>> >
>> > I am writing because I am searching for information on
>> > CAH. Please allow me to apologize in advance if either
>> > my terminology or the basic premise of my story is
>> > inadvertently offensive.
>> >
>> > I am an amateur writer, and am considering writing a
>> > short fiction story about an individual with classic
>> > CAH. Before I do so, however, I want to make sure I
>> > have my facts correct. I have visited dozens of web
>> > sites with information on CAH, but the information is
>> > frequently contradictory, leaving me very confused.
>> >
>> > Specifically, and assuming I have my facts correct (I
>> > am still in the research stage), my story would be
>> > about a female with Classic CAH who was mis-diagnosed
>> > and raised as a male, and who discovers in "his" late
>> > teens or very early 20s that "he" is actually a
>> > female.
>> >
>> > Obviously, there are a number of factors that would
>> > make this scenario impossible, so the basic outline of
>> > the story may change. For example, some sites seem to
>> > link female genital ambiguity with the salt-losing
>> > variant; if this is correct, I would imagine it would
>> > be very unlikely for a child so misidentified to
>> > remain so and survive. Other sites link it to the
>> > non-salt losing variant, and one site even
>> > contradicted itself in successive paragraphs.
>> >
>> > I am also looking for information on living with
>> > classic CAH. Is taking cortisone the only long-term
>> > necessity? How common or rare is it to have an adrenal
>> > crisis? I am certain there are other questions I
>> > should be asking, but I'm not sure at this point what
>> > they are.
>> >
>> > Do you know of anywhere I can get this information?
>> > Would you be willing to either post an information
>> > request for me, or allow me to post such a request,
>> > with the CAH Support group at Yahoo?
>> >
>> > Thank you for your time.
>> >
>> > __________________________________________________
>> > Do You Yahoo!?
>> > Send FREE video emails in Yahoo! Mail!
>> > http://promo.yahoo.com/videomail/
>> >
>>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>> Message: 2
>>    Date: Mon, 7 Jan 2002 06:20:44 -0500
>>    From: "Angi Strong" <jaade1@...>
>> Subject: Fw: Fw: Research on CAH for fictional story
>>
>> Sorry, I forgot to tell you what this is....
>> I received this and thought if anyone would like to personally respond to
>> this email that I would just post it here for you.  I'm still deciding
how
>I
>> feel about this....not that I could say anything one way or the other.
>> Maybe with some well thought out information, the author will treat this
>> subject correctly.
>>
>> Angi
>>
>> ----- Original Message -----
>> From: "Angi Strong" <jaade1@...>
>> To: <cahsupport@yahoogroups.com>
>> Sent: Monday, January 07, 2002 6:18 AM
>> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>>
>>
>> >
>> > ----- Original Message -----
>> > From: "K Dorian" <kdorian@...>
>> > To: <CAHsupport-owner@yahoogroups.com>
>> > Sent: Sunday, January 06, 2002 3:08 AM
>> > Subject: Research on CAH for fictional story
>> >
>> >
>> > > Dear List Owner:
>> > >
>> > > I am writing because I am searching for information on
>> > > CAH. Please allow me to apologize in advance if either
>> > > my terminology or the basic premise of my story is
>> > > inadvertently offensive.
>> > >
>> > > I am an amateur writer, and am considering writing a
>> > > short fiction story about an individual with classic
>> > > CAH. Before I do so, however, I want to make sure I
>> > > have my facts correct. I have visited dozens of web
>> > > sites with information on CAH, but the information is
>> > > frequently contradictory, leaving me very confused.
>> > >
>> > > Specifically, and assuming I have my facts correct (I
>> > > am still in the research stage), my story would be
>> > > about a female with Classic CAH who was mis-diagnosed
>> > > and raised as a male, and who discovers in "his" late
>> > > teens or very early 20s that "he" is actually a
>> > > female.
>> > >
>> > > Obviously, there are a number of factors that would
>> > > make this scenario impossible, so the basic outline of
>> > > the story may change. For example, some sites seem to
>> > > link female genital ambiguity with the salt-losing
>> > > variant; if this is correct, I would imagine it would
>> > > be very unlikely for a child so misidentified to
>> > > remain so and survive. Other sites link it to the
>> > > non-salt losing variant, and one site even
>> > > contradicted itself in successive paragraphs.
>> > >
>> > > I am also looking for information on living with
>> > > classic CAH. Is taking cortisone the only long-term
>> > > necessity? How common or rare is it to have an adrenal
>> > > crisis? I am certain there are other questions I
>> > > should be asking, but I'm not sure at this point what
>> > > they are.
>> > >
>> > > Do you know of anywhere I can get this information?
>> > > Would you be willing to either post an information
>> > > request for me, or allow me to post such a request,
>> > > with the CAH Support group at Yahoo?
>> > >
>> > > Thank you for your time.
>> > >
>> > > __________________________________________________
>> > > Do You Yahoo!?
>> > > Send FREE video emails in Yahoo! Mail!
>> > > http://promo.yahoo.com/videomail/
>> > >
>> >
>> >
>> >
>> >
>> >
>> > Your use of Yahoo! Groups is subject to
>http://docs.yahoo.com/info/terms/
>> >
>> >
>>
>>
>>
>> ________________________________________________________________________
>> ________________________________________________________________________
>>
>>
>>
>> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>>
>>
>>
>>
>
>
>
>
>
>
>Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

Reply | Forward | Messages in this Topic (3)

#182

From: "CARES Foundation, Inc." <Kelly@...>
Date: Tue Jan 8, 2002 6:06 pm
Subject: Re: Digest Number 77

kleight1959

Offline

Dear Angi,
I was recently told of a female singer in the UK that was all over the
papers where she was raised as a male, but discovered in her late teens that
she was a female with simple virilizing CAH. You might want to contact the
CLIMB group in the UK for more information, http://cah.org.uk/. So your
story is not that far-fetched.
Some Simple Virilizers can live without going into adrenal crisis. But, all
CAH affected individuals should take their meds because this is a risk not
worth taking.Genital ambiguity in females is common in both forms of
classical CAH--SW and SV. Some adults only take hydrocortisone and self
medicate for the salt by consuming what they feel their body needs. Others
take meds for this purpose. It depends on what the endo recommends and your
individual medical needs. Any treatment protocol for CAH affected adults
should be prescribed by an endocrinologist.
Good luck with the story and keep us posted on your progress.
Kelly

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
P.O. Box 264
Short Hills, New Jersey 07078
973-912-3895 (CARES voicemail)
866-227-3737 (toll free)
URL: www.caresfoundation.org
email: kelly@...

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 8:26 AM
Subject: [CAHsupport] Digest Number 77


> There are 2 messages in this issue.
>
> Topics in this digest:
>
>       1. Fw: Research on CAH for fictional story
>            From: "Angi Strong" <jaade1@...>
>       2. Fw: Fw: Research on CAH for fictional story
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Mon, 7 Jan 2002 06:18:10 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Fw: Research on CAH for fictional story
>
>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Mon, 7 Jan 2002 06:20:44 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Fw: Fw: Research on CAH for fictional story
>
> Sorry, I forgot to tell you what this is....
> I received this and thought if anyone would like to personally respond to
> this email that I would just post it here for you.  I'm still deciding how
I
> feel about this....not that I could say anything one way or the other.
> Maybe with some well thought out information, the author will treat this
> subject correctly.
>
> Angi
>
> ----- Original Message -----
> From: "Angi Strong" <jaade1@...>
> To: <cahsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 6:18 AM
> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>
>
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>
>
>

Reply | Forward | Messages in this Topic (3)

#181

From: "motherofhunter" <JHmphr3@...>
Date: Tue Jan 8, 2002 3:54 pm
Subject: insurance

motherofhunter

Offline

I have been running into a lot of problems lately dealing with
insurance coverage for my daughter, she has the salt wasting form of
cah. I was wondering if others have run into the same thing and some
of your solutions to this. Currently she is being covered by the
state but they want to cancel her because we make to much to qualify
but we have been searching all different insurances and no one will
pick  her up because of her "pre-existing condition" One agent even
went as far as to tell me that she will never be able to get
insurance except for the state programs. I am at my wits end with
this and would appreciate any advice you could give me. Thank you
Jenny

#180

From: "Angi Strong" <jaade1@...>
Date: Tue Jan 8, 2002 11:52 am
Subject: Re: Research on CAH for fictional story

gyswife

Offline

Dear K.,
      Let me introduce myself.  My name is Angela Strong and I have identical
twin girls, age 12 1/2, with the severe salt-wasting form of CAH.  They were
born with ambiguous genitalia and have undergone two surgeries, a
clitoroplasty and vaginoplasty.  I'm sure you have come across both these
terms....I'll spare you a long explanation of both.  They are both being
treated with florinef and cortef, and of course, salt.  When my girls were
born, the doctors were testing a newborn screening process to diagnose all
sorts of genetic conditions.  The doctor actually thanked me for helping her
numbers look so good....she was quite a character!  LOL!  Anyway, before the
screening process was mandatory, girls were diagnosed because of the
virilization for the most part.  Many of the boys were not diagnosed, having
no outward physical symptoms.  They would simply go into an adrenal crisis
and sadly, many would die from it and it was called "crib death".  This is
why many CAH parents feel very strongly about the newborn screening
processes being made mandatory.
      Without taking the medications, my girls would never have survived the
first few months of life.  If they were to stop taking them now, they would
suffer an adrenal crisis and die.  (Quite dramatic, eh?)  We have been very
fortunate and only hospitalized for "mild crisis's" such as the flu and
dehydration.  A crisis is very severe and frightening to a parent and most
of us carry supplies to deal with such a situation (a cortisol shot we would
administer at the first sign of a crisis).  Anyway, without trying to sound
terribly negative, I don't believe your story is "possible".  I have heard
of hermaphrodites with such a situation, but it doesn't really involve CAH.
Maybe your story could take that direction?
       There is a wonderful book you could search for (it is available on the
internet, but I've lost the site).  "Your child with Congenital Adrenal
Hyperplasia" by G.L. Warne.  It explains CAH in very simple terminology.  I
use it for grandparents and aunts and uncles who are terribly curious.  It
could be very helpful to your research.  Anyway, if you have any specific
questions, I'd be more than happy to help, or post to my group.  Thank you
for taking the time to ask questions and do some research on this subject.
Please let us know when your book is published!

Angela Strong

----- Original Message -----

From: "K Dorian" <kdorian@...>
To: <CAHsupport-owner@yahoogroups.com>
Sent: Sunday, January 06, 2002 3:08 AM
Subject: Research on CAH for fictional story


> Dear List Owner:
>
> I am writing because I am searching for information on
> CAH. Please allow me to apologize in advance if either
> my terminology or the basic premise of my story is
> inadvertently offensive.
>
> I am an amateur writer, and am considering writing a
> short fiction story about an individual with classic
> CAH. Before I do so, however, I want to make sure I
> have my facts correct. I have visited dozens of web
> sites with information on CAH, but the information is
> frequently contradictory, leaving me very confused.
>
> Specifically, and assuming I have my facts correct (I
> am still in the research stage), my story would be
> about a female with Classic CAH who was mis-diagnosed
> and raised as a male, and who discovers in "his" late
> teens or very early 20s that "he" is actually a
> female.
>
> Obviously, there are a number of factors that would
> make this scenario impossible, so the basic outline of
> the story may change. For example, some sites seem to
> link female genital ambiguity with the salt-losing
> variant; if this is correct, I would imagine it would
> be very unlikely for a child so misidentified to
> remain so and survive. Other sites link it to the
> non-salt losing variant, and one site even
> contradicted itself in successive paragraphs.
>
> I am also looking for information on living with
> classic CAH. Is taking cortisone the only long-term
> necessity? How common or rare is it to have an adrenal
> crisis? I am certain there are other questions I
> should be asking, but I'm not sure at this point what
> they are.
>
> Do you know of anywhere I can get this information?
> Would you be willing to either post an information
> request for me, or allow me to post such a request,
> with the CAH Support group at Yahoo?
>
> Thank you for your time.
>
> __________________________________________________
> Do You Yahoo!?
> Send FREE video emails in Yahoo! Mail!
> http://promo.yahoo.com/videomail/
>

#179

From: "preston" <preston@...>
Date: Tue Jan 8, 2002 3:35 am
Subject: Re: Digest Number 77

preston@...

wow!! that is not as strange as you think... but you would have to set the
story back in a time.  I think that you should read medical journal about
how CAH was discovered. It was about 50 years ago.  Because children would
die from it (adrenal crisis) and no one knew why. A baby girl with severe
salt wasting form and severely virilized - might have died and been named a
boy's name. She would have never lived the tale that you wish to tell.  Or a
baby boy with untreated CAH can die and again no one would know why? Crib
death?  This still happens today. CAH is rare and doctors don't think about
testing for it especially the baby boy with CAH. My son almost died for
exactly that reason. Now about 20 or so states require newborn testing for
CAH. Yes - taking the cortisol medication every day is necessary - or you
will die ... a slow and painful death. My email is preston@... if
you really want to know a parents point of view of CAH.  I had a daughter
die from adrenal crisis at age 2 years. I have two boys with CAH (salt
wasting form).

Go to this web page http://congenitaladrenalhyperplasia.org/mb/page1.htm and
email Betsy. ... she suffered from bad surgeries and is having a difficult
time with the sexual feelings because the surgeries were not done correctly
in the past. Some of the CAH females had butchers for doctors. It is very
frightful to think about the past and how these doctor used these girls for
experimental purposes because they were not experts in these surgeries.
Doctors are fascinated by CAH. Somewhat like you. Betsy thinks that surgery
should not be done. I disagree... times have changed but I do agree that
there only  a few doctor in the United States that can successful perform
the surgeries. I can understand her resentment and pain.

Anyway, I suggest you chat with Betsy. You can listen to what she has to say
but remember that she was born in a time that surgery was not that good for
reconstruction of virilized female.

----- Original Message -----
From: <CAHsupport@yahoogroups.com>
To: <CAHsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 8:26 AM
Subject: [CAHsupport] Digest Number 77


> There are 2 messages in this issue.
>
> Topics in this digest:
>
>       1. Fw: Research on CAH for fictional story
>            From: "Angi Strong" <jaade1@...>
>       2. Fw: Fw: Research on CAH for fictional story
>            From: "Angi Strong" <jaade1@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>    Date: Mon, 7 Jan 2002 06:18:10 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Fw: Research on CAH for fictional story
>
>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>    Date: Mon, 7 Jan 2002 06:20:44 -0500
>    From: "Angi Strong" <jaade1@...>
> Subject: Fw: Fw: Research on CAH for fictional story
>
> Sorry, I forgot to tell you what this is....
> I received this and thought if anyone would like to personally respond to
> this email that I would just post it here for you.  I'm still deciding how
I
> feel about this....not that I could say anything one way or the other.
> Maybe with some well thought out information, the author will treat this
> subject correctly.
>
> Angi
>
> ----- Original Message -----
> From: "Angi Strong" <jaade1@...>
> To: <cahsupport@yahoogroups.com>
> Sent: Monday, January 07, 2002 6:18 AM
> Subject: [CAHsupport] Fw: Research on CAH for fictional story
>
>
> >
> > ----- Original Message -----
> > From: "K Dorian" <kdorian@...>
> > To: <CAHsupport-owner@yahoogroups.com>
> > Sent: Sunday, January 06, 2002 3:08 AM
> > Subject: Research on CAH for fictional story
> >
> >
> > > Dear List Owner:
> > >
> > > I am writing because I am searching for information on
> > > CAH. Please allow me to apologize in advance if either
> > > my terminology or the basic premise of my story is
> > > inadvertently offensive.
> > >
> > > I am an amateur writer, and am considering writing a
> > > short fiction story about an individual with classic
> > > CAH. Before I do so, however, I want to make sure I
> > > have my facts correct. I have visited dozens of web
> > > sites with information on CAH, but the information is
> > > frequently contradictory, leaving me very confused.
> > >
> > > Specifically, and assuming I have my facts correct (I
> > > am still in the research stage), my story would be
> > > about a female with Classic CAH who was mis-diagnosed
> > > and raised as a male, and who discovers in "his" late
> > > teens or very early 20s that "he" is actually a
> > > female.
> > >
> > > Obviously, there are a number of factors that would
> > > make this scenario impossible, so the basic outline of
> > > the story may change. For example, some sites seem to
> > > link female genital ambiguity with the salt-losing
> > > variant; if this is correct, I would imagine it would
> > > be very unlikely for a child so misidentified to
> > > remain so and survive. Other sites link it to the
> > > non-salt losing variant, and one site even
> > > contradicted itself in successive paragraphs.
> > >
> > > I am also looking for information on living with
> > > classic CAH. Is taking cortisone the only long-term
> > > necessity? How common or rare is it to have an adrenal
> > > crisis? I am certain there are other questions I
> > > should be asking, but I'm not sure at this point what
> > > they are.
> > >
> > > Do you know of anywhere I can get this information?
> > > Would you be willing to either post an information
> > > request for me, or allow me to post such a request,
> > > with the CAH Support group at Yahoo?
> > >
> > > Thank you for your time.
> > >
> > > __________________________________________________
> > > Do You Yahoo!?
> > > Send FREE video emails in Yahoo! Mail!
> > > http://promo.yahoo.com/videomail/
> > >
> >
> >
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
http://docs.yahoo.com/info/terms/
> >
> >
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

Reply | Forward | Messages in this Topic (3)

#178

From: "Angi Strong" <jaade1@...>
Date: Mon Jan 7, 2002 11:20 am
Subject: Fw: Fw: Research on CAH for fictional story

gyswife

Offline

Sorry, I forgot to tell you what this is....
I received this and thought if anyone would like to personally respond to
this email that I would just post it here for you.  I'm still deciding how I
feel about this....not that I could say anything one way or the other.
Maybe with some well thought out information, the author will treat this
subject correctly.

Angi

----- Original Message -----
From: "Angi Strong" <jaade1@...>
To: <cahsupport@yahoogroups.com>
Sent: Monday, January 07, 2002 6:18 AM
Subject: [CAHsupport] Fw: Research on CAH for fictional story


>
> ----- Original Message -----
> From: "K Dorian" <kdorian@...>
> To: <CAHsupport-owner@yahoogroups.com>
> Sent: Sunday, January 06, 2002 3:08 AM
> Subject: Research on CAH for fictional story
>
>
> > Dear List Owner:
> >
> > I am writing because I am searching for information on
> > CAH. Please allow me to apologize in advance if either
> > my terminology or the basic premise of my story is
> > inadvertently offensive.
> >
> > I am an amateur writer, and am considering writing a
> > short fiction story about an individual with classic
> > CAH. Before I do so, however, I want to make sure I
> > have my facts correct. I have visited dozens of web
> > sites with information on CAH, but the information is
> > frequently contradictory, leaving me very confused.
> >
> > Specifically, and assuming I have my facts correct (I
> > am still in the research stage), my story would be
> > about a female with Classic CAH who was mis-diagnosed
> > and raised as a male, and who discovers in "his" late
> > teens or very early 20s that "he" is actually a
> > female.
> >
> > Obviously, there are a number of factors that would
> > make this scenario impossible, so the basic outline of
> > the story may change. For example, some sites seem to
> > link female genital ambiguity with the salt-losing
> > variant; if this is correct, I would imagine it would
> > be very unlikely for a child so misidentified to
> > remain so and survive. Other sites link it to the
> > non-salt losing variant, and one site even
> > contradicted itself in successive paragraphs.
> >
> > I am also looking for information on living with
> > classic CAH. Is taking cortisone the only long-term
> > necessity? How common or rare is it to have an adrenal
> > crisis? I am certain there are other questions I
> > should be asking, but I'm not sure at this point what
> > they are.
> >
> > Do you know of anywhere I can get this information?
> > Would you be willing to either post an information
> > request for me, or allow me to post such a request,
> > with the CAH Support group at Yahoo?
> >
> > Thank you for your time.
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Send FREE video emails in Yahoo! Mail!
> > http://promo.yahoo.com/videomail/
> >
>
>
>
>
>
> Your use of Yahoo! Groups is subject to http://docs.yahoo.com/info/terms/
>
>

#177

From: "Angi Strong" <jaade1@...>
Date: Mon Jan 7, 2002 11:18 am
Subject: Fw: Research on CAH for fictional story

gyswife

Offline

----- Original Message -----
From: "K Dorian" <kdorian@...>
To: <CAHsupport-owner@yahoogroups.com>
Sent: Sunday, January 06, 2002 3:08 AM
Subject: Research on CAH for fictional story


> Dear List Owner:
>
> I am writing because I am searching for information on
> CAH. Please allow me to apologize in advance if either
> my terminology or the basic premise of my story is
> inadvertently offensive.
>
> I am an amateur writer, and am considering writing a
> short fiction story about an individual with classic
> CAH. Before I do so, however, I want to make sure I
> have my facts correct. I have visited dozens of web
> sites with information on CAH, but the information is
> frequently contradictory, leaving me very confused.
>
> Specifically, and assuming I have my facts correct (I
> am still in the research stage), my story would be
> about a female with Classic CAH who was mis-diagnosed
> and raised as a male, and who discovers in "his" late
> teens or very early 20s that "he" is actually a
> female.
>
> Obviously, there are a number of factors that would
> make this scenario impossible, so the basic outline of
> the story may change. For example, some sites seem to
> link female genital ambiguity with the salt-losing
> variant; if this is correct, I would imagine it would
> be very unlikely for a child so misidentified to
> remain so and survive. Other sites link it to the
> non-salt losing variant, and one site even
> contradicted itself in successive paragraphs.
>
> I am also looking for information on living with
> classic CAH. Is taking cortisone the only long-term
> necessity? How common or rare is it to have an adrenal
> crisis? I am certain there are other questions I
> should be asking, but I'm not sure at this point what
> they are.
>
> Do you know of anywhere I can get this information?
> Would you be willing to either post an information
> request for me, or allow me to post such a request,
> with the CAH Support group at Yahoo?
>
> Thank you for your time.
>
> __________________________________________________
> Do You Yahoo!?
> Send FREE video emails in Yahoo! Mail!
> http://promo.yahoo.com/videomail/
>