The "Zebra" article has some inaccuracies. I don't encourage folks to refer to it. While this article is long, it explains the link between PCOS and LOCAH...
Kelly is right. But I do think that the author was right... CAH is not black and white (zebra). CAH can range from mild or very severe (and places in...
preston
preston@...
Feb 28, 2002 2:19 am
191
Oh ... I do not disagree with Kelly about the inaccuracies of the article (mistakes)...she is very correct about that... just the title of the title is so...
preston
preston@...
Mar 2, 2002 4:49 am
192
Is it from this list that Val Jefferies has been mailing in bulk? I have no idea what transpired on the CAH board, but wondered why I was part of her list ...
Who is Val Jefferies? Angi ... From: <jrwatson@...> To: <CAHsupport@yahoogroups.com> Sent: Saturday, March 02, 2002 11:03 AM Subject: Re: [CAHsupport]...
Deb - your question below - I don't think that this is part of Val new email list or we would be "banned". Apparently she is mad a whole group of people and...
preston
preston@...
Mar 2, 2002 5:27 pm
195
Nevermind.....I was just wondering what list I was on that I was recieving e- mail and thought this group might have been the source. Since I don't know the ...
Sorry for any confusion (the zebra article has nothing to do with Val and all her emails to everyone about Danny Carlton). She wanted Danny to let her back...
preston
preston@...
Mar 2, 2002 5:58 pm
197
Well folks, I don't know who this Val is except that she posts on the CAH MB and has chosen to deluge folks who have posted on the MB (and put their email ...
Family Workshop on Congenital Adrenal Hyperplasia Please come to a CAH Family Workshop hosted by the CARES Foundation Inc. We give special thanks to the Texas...
Dear Friends, As discussed in an article on front page of today's NYTimes, http://www.nytimes.com/2002/04/11/technology/ebusiness/11PRIV.html Yahoo has decided...
Hi all! Well we've all been relatively quiet lately, but I have a question for the more experienced folks here. The twins (I never call them that anywhere...
Hi All, I'm new to this group and I have been on cahsupportforum,congenitaladrenalhyperplasia,bodieslikeours,cahourstories. These are all CAH web sites. Anyway...
I certainly hope this is a legitimate question. If that discussion could take place off the loop, I would truly appreciate it. Angi ... From: "kmlange27"...
At congenitaladrenalhyperplasia.org , there is a alternate forum where some of the your needs might be addressed. I think it is called controversies forum or ...
-Yes I thought it was a legitimate question that I could get answered, but I guess not. I was only asking for help and see that I may not get it here. If this...
First, let me say I did not mean to offend, but this is the internet and there are all kinds of people out there. I set up this group as a support for family...
Hello, we are Mark and Teresa Smith. Teresa is a 26 year old CAH patient (salt wasting type) and we are actually looking for someone that is having the same...
Dear Mark and Teresa, Welcome to the group. We're usually pretty quiet here unless someone has a specific question and then I find they are quite informative!...
Hi Mark and Theresa, I am Barbara Neilson, a paediatric urology social worker at Sick Kids in Toronto. I can't remember when I signed onto this group, but I...
Hello, we are so glad to have others in the same boat as us and we were wanting to shed a little light on the problems now that we know that this is a site to...
When Amanda and Elizabeth had their surgeries we were in Texas and then Salt Lake City Utah. The doctors we had were great, but they specialized in children....
I don't know of any adult doctors, but I would suggest that you contact Department of Urology University of Oklahoma Health Sciences Center and contact Dr....
Hi! I am looking for information/support. I recently adopted a daughter with SWCAH. She is two years old. I took her to the ped endrocrinologist last...
My girls didn't go through the early puberty. Right now we're at the point of trying to "start" things. At 15, only one has started her cycle. The other is...
hey gang i am needing to find a female that is an adult that has cah i need some insight into some thing if there are any that can help i'd greatly appreciate...
my name is ariel and i have a daughter in newyork that is 15 mths old and in aug is about to go through a clitoral reduction ...can u tell me more because i...
kelly leight to the main office kelly leight please dial 914 476 6696 ariel There is 1 message in this issue. Topics in this digest: 1. Oklahoma doctors ...
Ariel, I have not heard of this technique. I would ask your surgeon the following questions. 1. What is the technique called? 2. How many of these surgeries...
Excellent questions. I would definitely start there. When we had "our" surgery, there was noone but the doctor to ask questions to...no support group to...
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