Hello everyone. My name is Jenny and I just had my second daughter on March 16th. The doctors initally told us that she was a boy. Shortly afterwards they told...
Jenny Humphrey
JHmphr3@...
Mar 23, 2001 4:17 pm
150
Hi Jenny! Welcome to the group. We're a quiet bunch, but questions never go unanswered. My twin girls were diagnosed the day after their birth. They wouldn't...
Angela Strong
jaade1@...
Mar 23, 2001 6:31 pm
151
Thank you for responding. It feels really well to know that there are others that are or have been going through the same thing that we are. The more...
Jenny Humphrey
JHmphr3@...
Mar 24, 2001 2:02 pm
152
Hello. This is Jenny H. I just wondered if any of you had any tips on getting your baby to take the sodium chloride supplement. Hunter takes both her steriod...
Jenny Humphrey
JHmphr3@...
Mar 24, 2001 2:24 pm
153
<A HREF="http://www.congenitaladrenalhyperplasia.org/">Congenital Adrenal Hyperplasia dot Org -- A Family Education and Support Networ</A> <A...
jenannlynn@...
Mar 24, 2001 4:01 pm
154
I don't know the link to the book that is listed but here is a good link to a pamphlet about how to give the solu-cortef injection for fever, vomiting, injury...
preston
preston@...
Mar 25, 2001 1:04 am
155
I can not imagine the pain of losing a child. My heart goes out to you. I was shown the injections at the hospital and also was told to triple her prednisolone...
JHmphr3@...
Mar 25, 2001 1:35 am
156
... Endocrinology ... available ... Found that address I was talking about. Several of us have this book and it's really a good one! Angi...
Angi Strong
jaade1@...
Mar 26, 2001 2:56 pm
157
Thank you very much for that site. I just read the book and it is a very good one. I will probably give this to family members wanting to learn more. Thanks...
JHmphr3@...
Mar 26, 2001 3:40 pm
158
I am new to this site. I want to meet people from Texas. We are moving to the Dallas area soon. My daughter is 7 and has salt- wasting CAH....
nackenheil@...
Mar 27, 2001 5:52 pm
159
Hello. Well I'm not in Dallas, but we used to live near there in Irving. My twin girls also have the salt-wasting CAH and we went to the Children's Hospital...
Angela Strong
jaade1@...
Mar 27, 2001 6:02 pm
160
Since you mentioned that you give your daughter a bottle, why not give her the amount she needs in the formula? That is what we did. You will find as she...
Jim & Debbi Watson
jrwatson@...
Mar 29, 2001 5:56 pm
161
I recommend this manual (the chapters on CAH, adrenal insufficiency)from The Pediatric Endocrinology Nursing Society (PENS) is a voluntary non-profit specialty...
preston
preston@...
Mar 30, 2001 2:37 am
162
Hello! I am still looking for anyone who lives in the North Dallas area. I am new to this site and am hoping to meet some new people. My 7 yr old has salt...
nackenheil@...
Mar 31, 2001 9:54 pm
163
I just used table salt. 1/8 tsp of salt in each bottle (8 oz) - my first son with CAH. The sodium chloride is used for breast fed babies. And it is harder to...
preston
preston@...
Apr 1, 2001 12:44 am
164
Right now she is taking 2.7 ml three times a day. It seems like it would be alot easier if I could give it in a bottle. She is bottle fed too. She has a check...
JHmphr3@...
Apr 1, 2001 1:19 am
165
I hope that everyone is feeling better and the baby doesn't get sick. The doctor should have told you about solu-cortef. It is an injection of cortef for a...
preston
preston@...
Apr 3, 2001 1:21 am
166
Yes we have been shown the injections and have some here. But we do not have cortef it is Hydrocortisone Sodium Succinate. She is doing great so far. She had...
JHmphr3@...
Apr 3, 2001 1:54 am
167
FYI- Cortef comes in 5 mg tablets. They can be easily cut in half and administered like the florinef. In case you have problems with the prednisolone ( I...
Jim & Debbi Watson
jrwatson@...
Apr 3, 2001 2:20 am
168
BETHENBLACKFORD@...
Apr 17, 2001 9:31 pm
169
Hello all my name is Bethan and i am the mother of Megan who has salt losing CAH,she is 5 years old and a very livley little girl,she is very well and full of...
BETHENBLACKFORD@...
Apr 17, 2001 11:19 pm
170
Hello all my name is Bethan and i am the mother of Megan who has salt losing CAH,she is 5 years old and a very livley little girl,she is very well and full of...
BETHENBLACKFORD@...
Apr 17, 2001 11:19 pm
171
Hello Bethan! My name is Angi, and my oldest two, 12 year old twin girls, also have the salt-wasting severe CAH. We also found out at birth, although the ...
Angela Strong
jaade1@...
Apr 18, 2001 1:05 am
172
I am really glad that this group is here. I have 3 children 2 very healthy boys and a Daughter with Addison's' s Disease and CAH (the salt wasting type) She...
Arreana99@...
May 18, 2001 2:41 pm
174
... daughter on ... Shortly ... days ... came to ... salt ... never ... either ... said it ... her ... few. ... them ... situation ... much ... I ... life. Hi...
Arreana99@...
May 18, 2001 4:23 pm
175
Hi! Glad you could join us here! We're not very talkative, but everyone is always happy to answer any questions you might have. I have 3 children also, but in...
Angela Strong
jaade1@...
May 19, 2001 2:51 pm
176
Kelly might have already emailed this to you but just in case you haven't seen her newsletter - here it is!! Roberta Preston preston@... ... From:...
preston
preston@...
Dec 9, 2001 12:26 am
177
... From: "K Dorian" <kdorian@...> To: <CAHsupport-owner@yahoogroups.com> Sent: Sunday, January 06, 2002 3:08 AM Subject: Research on CAH for fictional...
Sorry, I forgot to tell you what this is.... I received this and thought if anyone would like to personally respond to this email that I would just post it...
wow!! that is not as strange as you think... but you would have to set the story back in a time. I think that you should read medical journal about how CAH...
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