CAHsupport : Messages : 129-158 of 242

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129	Clear DayI was on the waiting list for Adam to attend the daycare at my work. They called me and said he could attend. I was so happy to have him in a safer...	preston preston@...	Sep 8, 2000 10:00 am
130	Clear DayHi Roberta! Well I read through your packet and I don't see any reason for them to be freaking out. The only thing that would affect them really is...	Angela Strong jaade1@...	Sep 8, 2000 1:20 pm
131	Here is a web site from Australia with a book to download and print about CAH. Roberta ... From: "Angela Strong" <jaade1@...> To: "preston"...	preston preston@...	Sep 19, 2000 1:46 am
132	I also gave my son's daycare a print out of this... hopefully they will never have to use it. http://www.med.monash.edu.au/paediatrics/resources/shock.html ...	preston preston@...	Sep 20, 2000 2:18 am
133	I'm a new member and I have some questions about CAH. My son has the severe salt wasting type, but is doing fairly well. I had some questions about myself...	kelli palmyra shinning55@...	Nov 14, 2000 11:53 pm
134	Hi Kelli My son is 5 yrs old and also has the salt-wasting type. the first year was rough, but has been so much easier to manage now. Finding other folks to ...	Jim & Debbi Watson jrwatson@...	Nov 15, 2000 11:14 pm
135	Hi - my name is Roberta Preston. I have two sons with CAH - Stephen age 7; and Adam age 2 years old. I live in Alexandria, Virginia. I had never heard of CAH...	preston preston@...	Nov 17, 2000 3:40 am
136	Hi, my name is Shelly Stockton. I have a 9 year old daughter with the salt wasting cah,when we first found out there was really no one to talk to other than...	cabowaboshell@...	Nov 17, 2000 4:28 am
137	Kelli, I have twin girls, also with the severe salt wasting type. They are 11 1/2 and are doing very well. For my second pregnancy, we went through the CVS...	Angela Strong jaade1@...	Nov 19, 2000 11:27 pm
138	Hi! I just wanted to introduce myself since I just joined this list. I am a stay at home mother of two beautiful and wonderful children, Zach--who is 3--and...	jenannlynn@...	Feb 21, 2001 5:06 pm
139	HI, Welcome to the group. I'm Nicole, and I have 3 children ages 5, 4, and 2. My 5 year old son and my 4 year old daughter both have salt-wasting CAH but my...	dennis rice mosawe@...	Feb 21, 2001 6:22 pm
140	My name is Eileen Wells. I just joined egroups. I have a 9 year old daughter with salt wasting CAH. Amanda has genitoplasty at 8 months of age. She also just...	sistergldnhair66@...	Feb 22, 2001 2:49 am
141	my son is eight weeks and is being treated for hyperplasia except we are not sure if it is hyper or hypo or something else. I was just looking for more...	adele543@...	Feb 25, 2001 2:41 am
142	Adele, I remember the stress when the twins were first born and diagnosed, so I completely understand what you are going through! Since you're not sure of his...	Angela Strong jaade1@...	Feb 25, 2001 2:58 am
143	I strongly recommend reading the pamphlet as well. They talk alot more about glucose than our doctors do...not sure why. All the information is hard to take...	Jim & Debbi Watson jrwatson@...	Feb 25, 2001 4:52 pm
144	http://www.medhelp.org/nadf/ Here is a web site about adrenal disorders. Our first child almost died because no one knew he had CAH. He was 5 weeks old and...	preston preston@...	Feb 25, 2001 4:52 pm
145	thank you very much! that page was very helpful! I am still slightly confused. They did a CT scan of my sons adrenal gland and it wasnt enlarged..it wasnt to ...	adele burich adele543@...	Feb 25, 2001 5:39 pm
146	and the height is okay because his father ... Is your son seeing a pediatric endocrinologist? As long as he takes his meds daily, his height should be well...	Kathy Partridge atelierk@...	Feb 25, 2001 5:54 pm
147	Wow! My girls are 12 and I have NEVER given them that shot. We've had fevers and all sorts of things happen (been hospitalized with severe dehydration a...	Angela Strong jaade1@...	Feb 25, 2001 8:48 pm
148	Another thing.... infrant vaccinations can fever and again a fever can kill your baby (ADRENAL SHOCK). I waited until my son was over a year old so because he...	preston preston@...	Feb 25, 2001 11:23 pm
149	Hello everyone. My name is Jenny and I just had my second daughter on March 16th. The doctors initally told us that she was a boy. Shortly afterwards they told...	Jenny Humphrey JHmphr3@...	Mar 23, 2001 4:17 pm
150	Hi Jenny! Welcome to the group. We're a quiet bunch, but questions never go unanswered. My twin girls were diagnosed the day after their birth. They wouldn't...	Angela Strong jaade1@...	Mar 23, 2001 6:31 pm
151	Thank you for responding. It feels really well to know that there are others that are or have been going through the same thing that we are. The more...	Jenny Humphrey JHmphr3@...	Mar 24, 2001 2:02 pm
152	Hello. This is Jenny H. I just wondered if any of you had any tips on getting your baby to take the sodium chloride supplement. Hunter takes both her steriod...	Jenny Humphrey JHmphr3@...	Mar 24, 2001 2:24 pm
153	<A HREF="http://www.congenitaladrenalhyperplasia.org/">Congenital Adrenal Hyperplasia dot Org -- A Family Education and Support Networ</A> <A...	jenannlynn@...	Mar 24, 2001 4:01 pm
154	I don't know the link to the book that is listed but here is a good link to a pamphlet about how to give the solu-cortef injection for fever, vomiting, injury...	preston preston@...	Mar 25, 2001 1:04 am
155	I can not imagine the pain of losing a child. My heart goes out to you. I was shown the injections at the hospital and also was told to triple her prednisolone...	JHmphr3@...	Mar 25, 2001 1:35 am
156	... Endocrinology ... available ... Found that address I was talking about. Several of us have this book and it's really a good one! Angi...	Angi Strong jaade1@...	Mar 26, 2001 2:56 pm
157	Thank you very much for that site. I just read the book and it is a very good one. I will probably give this to family members wanting to learn more. Thanks...	JHmphr3@...	Mar 26, 2001 3:40 pm
158	I am new to this site. I want to meet people from Texas. We are moving to the Dallas area soon. My daughter is 7 and has salt- wasting CAH....	nackenheil@...	Mar 27, 2001 5:52 pm

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