Well, Debbi,
There's only 1 ped endo in our state and she refused o care for our son
because she doesn't agree with NIH. So, our regular ped has agreed to care
for our son. He and NIH are in close contact. We go to NIH every 6 mos for
testing. My ped draws the necessary blooddraws and ships them via FedEx to
NIH. They make a great team :o)
Selena
----- Original Message -----
From: Jim & Debbi Watson <jrwatson@...>
To: <CAHsupport@onelist.com>
Sent: Sunday, February 27, 2000 2:22 PM
Subject: Re: [CAHsupport] Introduction


> From: "Jim & Debbi Watson" <jrwatson@...>
>
> Hi Selena-
> Just happened to be downloading a looooong program when your e-mail came
in.
> I also have a 4 yr. old son with salt-wasting CAH. I also have a 6 yr.
old
> daughter who does not have CAH. Our endo has brought up the NIH study in
> the event he becomes difficult to control. We live in Northern Alabama
and
> see a ped endo locally. Where do you see your endo?
> -Debbi
> -----Original Message-----
> From: Selena Vincent <batmanv@...>
> To: CAHsupport@onelist.com <CAHsupport@onelist.com>
> Date: Sunday, February 27, 2000 2:16 PM
> Subject: [CAHsupport] Introduction
>
>
> >From: "Selena Vincent" <batmanv@...>
> >
> >Hello Everyone,
> >My name is Selena. I have a 4 y/o son who has CAH. We are currently
> >with NIH's experimental protocol for his treatment. We live in
> >Louisiana. I also have a 1 y/o daughter who does nothave CAH.
> >Selena
> >
> >
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