Hi Becky!
Not that I'm glad you're having it rough with puberty, but it's nice to
know I'm not alone out here! I don't think we've had that particular test done.
What is involved with that?
We do the series of 3 blood tests (all drawn at the same time) and the
bone-age test (a simple x-ray) occasionally, so I don't really do anything to
calm them down. They don't really get excited over it too much either. There
is the obligatory "I hate needles!", me saying "hold still and get it over
with!", and then it's over. But before their surgery they went through some
strange tests. I just had the technicians explain everything to them and what
to expect as far as discomfort. (I do better when I know what's coming, too.)
I've never told them "It won't hurt!" because then later, they won't trust you.
But yours are older kids so you already know that. Just be upfront with them.
Let them ask the techs all the questions they want, and then bribe 'em to death!
LOL! Just kidding of course, but ice cream fixes everything in our house!
I hope everything goes well with the test. Let us know!

Angi
----- Original Message -----
From: Becky
To: CAHsupport@onelist.com
Sent: Saturday, October 30, 1999 11:32 AM
Subject: [CAHsupport] Girls & puberty


Hi,

I am also experiencing girls and puberty. My twin girls turned 12 Thursday.
I survived the party last night.

We are dealing with possible growth hormone problems with them. I am the one
with CAH, but I have had them monitored since I am concerned about hormonal
problems with them, including extremely short stature. I am only 4'8".

Now we have been advised to do a clonidine stimulation test. My girls are
very anxious about all of this. What have you done to get your children calm
and coorperative for medical tests?

I would appreciate any advise.

Becky
-----Original Message-----
From: Angela Strong <jaade1@...>
To: CAHsupport <CAHsupport@onelist.com>
Date: Saturday, October 30, 1999 1:13 PM
Subject: [CAHsupport]



Hi All!
Well since we haven't heard from anyone in a while, I'm assuming that
everyone is healthy and happy. My girls had their 6 month check-up yesterday.
Since it's a 2 1/2 hour drive we made a day of it in the "big city"! LOL! They
are doing fine but going through puberty is killing me! I have a question for
those of you with older girls (with or without CAH). My girls have terrible
stretch marks on their hips. They look just like the ones when you are
pregnant. The doctor seems to think this just happens to some girls. I've
never heard of it, but their father's mother says she had the same thing. Has
anyone else experienced this? It just seems odd.
Other than that, we've been doing fine here. Hope everyone is doing
well!

Angi