>
> Hi! My name is Sue, my son Mathew has CAH non-salt wasting . He is 2 and
full of energy ( and the devil somedays) I just wanted to say Hi, and see
is anyone else on the list has a child with non-salt wasting . Thanks!
>
Hi Sue!
I wasn't aware that the devil had moved out of my house into yours!
LOL! He must travel quite a bit! My son is 7 and I have considered
actually changing his name at times! Just kidding of course. My girls have
the salt-wasting form. I'm not sure I've heard anyone mention the
non-wasting form before. Do you know how it differs from the other? Does
he take the cortef and not the florinef also? Of course, I've heard all
kinds of meds before but those are the most popular, I think. When the
twins were little, I used to get prescriptions for cases of IV bags (can't
remember what the real term for it was). They drank it down like it was ice
cream!
Anyway, I look forward to hearing from you again.

Angi